Well I can only account my own story, Diagnosed in 1992 with crohns, like you had bloody stools, cramping eating certain meals, had a re-section surgery in 98, in between taking various meds, Pentasa, Azulfadine, and Prednisone. I took Lomotil for the urgency issues. After my '98 surgery I started getting Remicade Infusions and felt fantasic with a capital F, felt never better actually "crohns free", check ups good, colonoscopies good, until this years memorial day, I discovered I had a fistula going to my female anatomy. At the ER they did a catscan which sadly revealed more that just the fistula, my entire colon was just raging with active disease, none of which I felt. My surgeon gave me 3 options:
J-pouch which in his option highly didnt recommend
temporary ileostomy (letting my colon heal and then be reversed)
Permanent ileostomy ( and his quote "You'll probably never need another Crohn's related surgery again"
I chose the permanent, Colon cancer runs in my family, Diabetes in both grandmothers and now my mom too.
In my option about Crohns, There is such a wide spectrum of what you can expect I really wouldnt be expecting it for yourself, cross that bridge if you have too, Stay on the bright side of it--Be positive