I have not experieced that, just going too much. Not sure which is better.
I posted some of the problems I am having now. I hope someone has
I hope things get better for you.
Post Edited (Stuck42Long) : 7/21/2007 9:10:31 AM (GMT-6)
Hi Amey, I'm so sorry that you're going thru all of this - my heart goes out to you!!! I know that feeling of being bloated and my belly being distended all too well since I began using the MiraLAX again. I'v regained almost all of the weight I lost immediately post-op, however, the MiraLAX is at least helping "somewhat".
Have you touched based with the surgeon who did your colectomy? When I began to slow down I contacted mine and he checked to make sure there wasn't any issues with the rectum. It appears that I have a "lazy" small intestine now (in his words) and I guess the MiraLAX sort of wakes things up a bit for me. I will tell you that I don't think my bm's have any real substance to them - even after I do have a "watery" bm, I still feel "unemptied"
I'm just hoping and praying that the MiraLAX continues to work. My surgeon did tell me that he could remove what "very little" colon I have left, however, that would be a last ditch effort.
I don't know if this helps, but I do feel your disappointment and how you must feel so discouraged, especially thinking the colectomy would solve the issues you're going thru all over again.
Boy, you surely are having some major problems. Was your colectomy done for Colonic Inertia? Also, how long ago was your surgery (forgive me if you've posted it and I didn't see it).
I can't even imagine not urinating AT ALL!! That cannot be healthy!! Especially since you bike 20 miles a day, you must be, or at least should be, losing a lot of fluids. So, there isn't anything other than the Sorbital that can help you in obtaining a bowel movement?
I'm guessing that when my surgeon mentioned removing what very little colon I had left as a last resort - that may mean resorting to a bag - he didn't come right out and say that - this is my assumtion.
Boy, there is so much I do not know, but I'm assuming that they would somehow close up your rectum and disconnect the small intestine from it and change the colectomy to a colostomy.
At this point in the game I'm not ready for that and I will continue to find ways until there are no more before I would even consider the bag. But then again, if I were in your shoes and living the quality of life you're living - my opinion might be different.
Whatever you decide to do and the direction you wish to take, may it give you a better quality of life than what you're living now. I would like to keep updated on what you find out in your search for answeres. My e-mail is availiable in my profile if you would like to keep in touch.