Prolapsed ileostomy

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JsMom
Regular Member


Date Joined Jul 2006
Total Posts : 57
   Posted 7/18/2007 10:59 AM (GMT -7)   
My 8yr old son has a recent ileostomy (his surgery was July 9, 07). 2 days ago, it prolapsed and his small intestine is now protruding from the stoma about 3 inches.
His surgeon had me take him to emergency room where they put it back into the stoma, it came back out a short time later. Now, when he lies on his back it recedes back inside, but when he stands it comes out again. I can't keep him lying on the couch forever. I now how to place it back inside, but I don't know how to keep it inside. Also I don't know why this is happening in the first place.

Please, has anyone experienced this? What do we do about it? His surgeon says this is a common problem with ileostomy and that if it gets longer than 6 inches we may need another surgery, but he says it may prolapse again because this is common.

Can anyone give me any advice please, my son needs to live his life.

Thank you
Jsmom

Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 7/20/2007 10:19 AM (GMT -7)   
i TOO HAVE BEEN HAVING PROBLEMS GETTING INFORMATION ABOOUT PROLAPSED STOMAS. i HAVE A TRANSVERSE COLOSTOMY THAT HAS PROLAPSED. sORRY FOR THE CAPS. I went to see my surgeon a couple of cays ago and he has referred me to my ostomy nurse for fitting of a herniated stomal belt. I am sure that such a thing might be possible for your son. The problem is to find someone who will take the responsibility of getting you some satisfaction. Surgery is always an alternative, but , my surgeon does not think that I can survive aditional surgery. Check into a belt, and then think about other alternatives.

Arundinaria
When there are no more choices, tha decision is easy!


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 7/22/2007 4:35 AM (GMT -7)   
A prolapse is more of an annoyance than a danger.

Imagine a sock rolled back once on itself. This is how a stoma is constructed. What you actually see of the stoma is the inside not the outside of it. Now, imagine you pull the inside of the sock out so the sock gets longer. This is what happens in a prolapse.

To get the stoma to return to it's normal size, there are a couple of things you can do. Try putting ice on it. If that doesn't work, sprinkle some brown sugar on it (yes it does work!).

If it constantly prolapses, surgery may be the answer.

Good luck to both of you.
I have had an ileostomy for 31 years now due to UC.
 
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Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 7/23/2007 5:52 PM (GMT -7)   
I just talked to my surgeon again about the stoma prolapse. He says that there is some evidence of hernias about the stoma and has referred me to be fitted with ostomy belt. He did say that the other alternative is surgery, but that I am such a poor candidate for surgery that he woould not sonsider it in my case. Perhaps , though for a younger person this might be the best option.
Arundinaria
When there are no more choices, tha decision is easy!


JsMom
Regular Member


Date Joined Jul 2006
Total Posts : 57
   Posted 8/2/2007 6:50 AM (GMT -7)   
Thank you both for your advice. My husband and I have been putting a belt on him and it's been working pretty well. In his case, the belt must be tight and cover the stoma completely, otherwise he still prolapses. We were uncomfortable about the pressure and completely blocking his stoma in this way, but his surgeon said it's okay as long as my son periodically raises the belt off the stoma so it can eliminate into the bag. If it were only cosmetic, it wouldn't be a big concern, but he has intense cramping and nausea during prolapse. No cramping or nausea otherwise. His surgeon had him x-rayed and ruled out possible obstruction. Many doctors, incl surgeon, recently checked him and ruled out hernia. His surgeon said that we can consider surgery to adjust the stoma, but there is no guarantee of positive outcome. (must be great to not have to be accountable for results--- there, I vented) It's been a few days now and the belt is preventing prolapse. We're scheduled to see surgeon again to re-evaluate this in 3 weeks. Will keep everyone posted.

Thanks for the ice recommendation also and the brown sugar idea is intriguing. Will try these too! The prolapse retreats slowly on its own when my son lies on his back. But lying on one's back is disruptive during the day. Maybe I'll try an alternate belt fitted with an ice pack that he can change out during the day. When he cannot change ice packs, just tighten the belt over the stoma like before.

Thank you again so much for responding.

Jsmom

Brenda and Dan
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/13/2009 7:53 PM (GMT -7)   
Hi I am new to this site, my son had an emergency ileo done this June, at first we had about 10 absolute obstructions, the last one this October. Since then we are having prolapses, at first it was one a month, then every other week, it is now down to all the time. He has CP and uses a wheelchair so is sat most of the day, the intestine prolapses very fast and if not checked will be over 9" long and very swollen before you can get him out of his chair. I am concerned with him loosing blood supply. It seems that sitting and emotions are causing most of this. His doctor mentioned a revision, I am not sure what this involves, but I am not looking to put him though more surgery if I can help it. I read about the belt, I am concerned about stopping the flow due to all the obstructions he has had. Has anyone any info as to what a revision involves. I am sure that the possition of his stoma is not helping either, It is right were all the waist belt part of his clothes go.
Brenda and Dan

spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 2/17/2009 10:09 AM (GMT -7)   
Would it be possible to use any type of belt to prevent prolapse in the first place?
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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 2/17/2009 2:26 PM (GMT -7)   
I recently only had a temporary ileostomy but I have a son who just turned 11. I can't imagine what it would be like for my son to have to go though what I went through. I just wanted to say that I am so glad you are such good parents and take whatever steps necessary to not only make sure your children have what they need medically, but also that they lead normal lives. I am amazed at the strength and support you give to your children and yet would expect nothing less from loving parents.

It's very humbling to be on a site like this seeking support for oneself, only to find there are children out there dealing with the same things or even worse things. I guess I never really thought about it until I read your post.

Anyway, I just want to say that I think you are doing a great job as parents and I will be thinking and praying for everyone I read about on this site from now on, especially the children and their parents. I know this is not an easy thing to go through.

HUGS
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
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Brenda and Dan
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/17/2009 9:37 PM (GMT -7)   
I am kind of re posting my question seeing as there seems to be some interest again. My son has prolapses of his ileo all day. We are going to hospital next week, not sure what will have to be done, I am not wanting more surgery as the last one this past summer was so serious and difficult. My son has CP and uses a wheelchair for mobility so is sitting most of the day. Has anyone had surgical correction for a prolapsed ileo on this site please? If so what did the surgery consist of and did it work?
Brenda and Dan
We have a great blog at DansSideCar.blogspot.com

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/20/2009 12:40 PM (GMT -7)   
Brenda and Dan--welcome to the site! Sorry I don't have an answer for you...but I wanted to mention you might get more activity to your question if you post your own thread. Sometimes questions get lost if they are at the bottom of an older thead.

I hope you can get the answers you need...please keep up posted on the outcome.

Brenda and Dan
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/24/2009 9:41 AM (GMT -7)   
Thank you for responding. We recently had an emergency with the prolapse, on Thursday it would not return. We took Dan to Jefferson Hospital in Phili, traveling on the bed in motor home. This all started at 2pm, we were quite worried as it was getting more swollen and prolapsed as time went by. There was not a surgeon available to see us right away, Dan was very uncomfortable. At around 11.30 it finally started to go back ( I have no idea why) by 12 pm the surgeon came and it was 100% back. They told me that he was no longer an emergency and we had to leave. I was concerned as I knew that it would come out as soon as he sat up, they were not concerned, "just come back" was what they said. Somewhere I remember reading about someone having an ostomy belt made for them, none of the doctors I have talked to have anything other than a revision as a plan, so I decided to put Dan's waist band right over the stoma, and it is a miracle for the first time in over a whole month he has gone a day without a prolapse. we are on the 5th day right now and I am so pleased at how this is working. I am still checking all the time and concerned that it does not effect his out put, but all in all this is OK.
Brenda

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/24/2009 5:56 PM (GMT -7)   
That shouldn't be a big deal...I have a pair of jeans that ride low and are right on my stoma. It keeps working...his should too. Do you still have a appointment with his doc?

Brenda and Dan
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/24/2009 7:52 PM (GMT -7)   
no I don't we and they canceled it as there is nothing that can be done that is better than it working with this pressure on it. The medical fix is not a great option. I tried an ACE bandage today but it did not work as well as the sweat pants waist band. I plan to try a pair of boxer undies under his pants. Since the surgery I have not been able to zip his reg pants up as the bag is in the way. Sitting in a wheelchair complicates things though. But like you say the stoma is having good output even with the pressure on. I always have to be very vigilant as the first 4 months after surgery we had many horrible blockages that lasted over a week. Thanks, B and D
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