I recently only had a temporary ileostomy but I have a son who just turned 11. I can't imagine what it would be like for my son to have to go though what I went through. I just wanted to say that I am so glad you are such good parents and take whatever steps necessary to not only make sure your children have what they need medically, but also that they lead normal lives. I am amazed at the strength and support you give to your children and yet would expect nothing less from loving parents.
It's very humbling to be on a site like this seeking support for oneself, only to find there are children out there dealing with the same things or even worse things. I guess I never really thought about it until I read your post.
Anyway, I just want to say that I think you are doing a great job as parents and I will be thinking and praying for everyone I read about on this site from now on, especially the children and their parents. I know this is not an easy thing to go through.
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
The whole world is at your feet; so paint your toenails Red!