I'm so sorry your going through this right now, believe me I know excately what your going through.
I had a permanent ileostomy on June 19, 2007. My rectum was to diseased so I wasn't a candidate for the J-Pouch. I have to say that I read every post I could find on people who had the surgery. I will tell you that I would do it again in a second. I eat what I want, I take no meds now except vitamins, and no more blood, painful, diarrhea.
I do want you to know that right after surgery while in recovery it was excruciating. They couldn't find a pain medication that would get my pain under control, so for the first hour I just wanted them to put me back under. I read other posts that said the first thing they thought was "what did I do", and yes I did think that also, but only because of the horrible pain. After the first hour however things were fine. Pain was controlled with meds and I was fairly comfortable.
I am not trying to scare you I just want you to prepare mentally for what you may experience. I truly thought I was prepared by reading all the other posts, but I don't think they made it clear on how much pain was involved at first. Maybe they didn't have as much pain as I did, and maybe you won't either. I hope that everything goes great. And again its been a little over a month now since my surgery and other than a wound that I developed by my stoma (which is healing nicely now after a wound vac) I'm doing great. Best Wishes on an awesome outcome, and if I can answer any questions about my surgery just ask.
Dx: with Crohns in 10-2003 then changed to Ulcerative Colitis 1-2007
Proctocolectomy with Ileostomy June 19th 2007 - Doing great.
Prednisone 60 mg (currently tapering by 10 a week until zero)
6MP 125 mg po qd
Pentasa 500 mg 3 po tid
Calcium 400 mg with D tid
Iron po tid
Vit C po tid
Tylenol #3 prn
Remicade - Quit working