a few questions!

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f1racer
New Member


Date Joined Jul 2007
Total Posts : 3
   Posted 7/25/2007 3:58 AM (GMT -7)   
Hi all, i've had my ileostomy since the end of may after an op for a bowel re-section because of crohns which was diagnosed only last december, luckily it seems they got it first time and i didn't get fobbed off for months with wrong diagnosis. Anyway i've had lots of fun with hospital stays for an abscess and having my appendix removed and general illness until it was diagnosed and hopefully after this i should at least be ok for a while!

sorry waffled there, first time i've posted on a forum about it, so anyway, next week i'm having a scan to see if the small bowel has healed where they've re-joined it and i've read a lot of stuff about the scans but i've been told i'm having a Tubogram which i've yet to come across. anyone got any idea's what it is and how it's carried out? i've searched but it all seems to be about checking to see if ovary tubes are open or something (i'm a 21 year old male so i'm really sorry to any women reading if i got the wrong tube or part or something! tongue )

also i've read a lot of problems about having the runs and stuff after being re-connected, but this all seems to be with a pouch or something? mine is just a straight small bowel re-connection and i had this stoma to give my guts a chance to heal cos they were "a hurrendous mess" as my surgeon told me afterwards.

so to summarise (i'm really sorry i waffled, i kept thinking as i typed!)

1) any ideas what a tubogram is/have you had one?
2) what (if any) sideaffects will come from having a straight bowel re-connection

thanks so much for reading!

Danny

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/25/2007 9:18 AM (GMT -7)   
Well I don't have any idea about any of it, my first thought about a tubogram was that it was a worm, lol. And I have never heard anyone say "waffled" like that before, I love it!
I just wanted to tell you that i hope you feel better soon!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/25/2007 3:57 PM (GMT -7)   
You've been through quite a lot in a very short time and seem to be handling it very well. A good attitude is so important when dealing with this disease.

I had never heard of a tubogram, so I googled it and came up with the same results you did - it's an x-ray of the uterus and fallopian tubes. Since you're a guy, that would definitely be a waste of time! :) Your doctor must have misspoken and meant some other test.

I wasn't a candidate for a bowel resection, since I had Crohn's in the rectum and descending colon. Basically, there was nothing healthy to connect to, so I had to have my colon and rectum removed. I have a permanent ileostomy and am very healthy.

There are lots of people on this site who have been re-connected after a bowel resection, so I'm sure you'll get lots of good advice.
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


f1racer
New Member


Date Joined Jul 2007
Total Posts : 3
   Posted 7/26/2007 1:42 AM (GMT -7)   
Hi! thanks for the replies, it's definately a tubogram as i've had the confirmation through the post this morning! maybe they'll just inject the dye into the stoma the same as they would when checking the uterus and fallopian tubes? who knows, guess i'll find out on the day!

Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 7/26/2007 6:17 PM (GMT -7)   
Danny, Don't go off the pill just yet. You need some better information about your body. Good Luck
Arundinaria
When there are no more choices, tha decision is easy!

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