I have a feeling the 1 in 3 figure might be a little high. All the figures I read tend to read more like between 10% - 15% of people diagnosed with UC ever have to have surgery.
My perspective - having a bag is much better than having UC. I was running to the loo (and sometimes not making it) 20+ times a day, was on 21+ tablets a day plus enemas and basically had no quality of life whatsoever. My bag gave me my life back!
I've spoken to literally thousands of ostomates over the years and the vast majority say to me 'if I'd only known how well I would feel after surgery, I wouldn't have tried to put it off for so many years'.
Surgery is a last resort and only when you have reached the point where no meds help at all and your quality of life is nil do they usually consider it (unless signs of dysplasia show up). Chances are you won't ever need surgery, but it's good to find out about
it 'just in case'.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!