Hello. I've recently been diagnosed with ulcerative colitis. I've read a lot about this disease and I also note that about 1 in 3 people with UC eventually need their colon removed either for quality of life purposes or for cancer concerns. I'm very new to all this and the idea of losing my colon initally freaked me out (a lot!). But as I've accepted me disease I think I've mellowed to the fact that such removal could in effect 'give you your life back' and 'free you from heavy heavy med use'.
I was just wondering whether anyone had comments on this? What was it like to have your large intestine removed? Are you happy with the decision? Would you even have done it earlier if you'd kown the benefits or has it not changed your life much.
Any advice for a newbie like me would be so helpful.
800 mg Asacolon twice a day
Iron tablets (only for short term to build up iron stores)