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Smoke3
Regular Member


Date Joined Jul 2007
Total Posts : 23
   Posted 8/4/2007 10:40 AM (GMT -7)   
Has anyone ever had the location of their Stoma changed? I had a comptent E.T. nurse mark where my stoma should in conjuction with my opinion and particular build and it was a perfect place,
The operating surgeon decided in all his wisdom that he would put it directly on my belt line ,which needless to say is absolutely no good at all and I am not a "Happy Camper"

I want to see if he will move it and if anyone knows if this can be done and what it entails (recovery etc.)

Thanks in advance

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 8/5/2007 6:38 AM (GMT -7)   
I had a temp and then a permenant ileo and my surgeon was able to keep it in the same location, because I didn't have issues with the location of the temp site. I don't see why you wouldn't be able to have it moved, BUT beware of insurance coverage. I don't know if ins will cover the surgery of relocation, unless you can convince the surgeon of a medical problem. Also, I would imagine (I'm not sure) that the recovery time would be similar to any abd surgery. You may not have the issues associated with the stoma actually beginning to function, but it would be a major abd surgery.

I would like to hear what the outcome of this issue is... please keep us posted.

P

Smoke3
Regular Member


Date Joined Jul 2007
Total Posts : 23
   Posted 8/5/2007 6:52 PM (GMT -7)   
Thanks I'll let you know how I make out

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 8/6/2007 8:09 AM (GMT -7)   
Depending on how far you have to move it, it may or may not be possible. I too am unhappy with my stoma placement.

I had a stoma for 17 years that was in the perfect spot and because of disease my surgeon said they would have to move it to the other side. When I asked him if we could mark the spot I want, he said no, just tell him and he'll move it there.

Well, the spot is too high (At the waistband of my jeans), and too far to the center. Ufortunately it's too close to the spot that I wanted it, so moving it would be almost impossible not to mention another major surgery which I'm not ready for.

It drives me crazy that these surgeons don't bother to think about the impact this surgery has on our lives. We have to live with this for life (most of us) and we have to have a life. "Placing Stomas" should be a continuing education class that all surgeons should attend, and it should be taught by an ET nurse, with patients showing how hard it is to live with and pictures.

Have you talked to your surgeon, and is he willing to relocate it? Will you be using a different surgeon? Have you reviewed your surgical notes from the surgery to see if anything was mentioned regarding physical reasons that they had to put the stoma where it is, you may want to find out about that.

Good luck, you're brave to want to go through another major surgery to have it moved, however if you can't lead a normal (meaning normal for you, normal clothes, etc.) life, I understand your need to do it.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade still on Prednisone (my worst enemy), Finally had another surgery hoping for a long remission. 
 
 

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