You will probably be offered a j-pouch as a replacement for your rectum, a very good and liveable solution. I had j-pouch surgery 6 years ago for UC and I have never regretted it. You should visit www.j-pouch.org There are others on that discussion board who had a colectomy and then years later had to go back and have the rectum removed. They can share their experience with you.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free