Ileostomy and Weight loss/gain

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Veteran Member

Date Joined Jul 2006
Total Posts : 942
   Posted 8/12/2007 7:26 PM (GMT -6)   
I am wondering, if I decide to have a ileostomy, what will happen to my weight?  I am at a good weight and I do want to stay where I am. 
What has been your experience? If you gained, why did you gain?  If you lost weight, why did you lose it?

Regular Member

Date Joined Jul 2007
Total Posts : 65
   Posted 8/12/2007 7:38 PM (GMT -6)   
I lost weight. But that's partly because I had my colon removed and the doctor said it weighed about 15 pounds.

Before my ileostomy I weighed anywhere between 135 to 145 pounds. After, I am holding steady at about 125 pounds. I think another major factor in my weight staying so low is the loose stool. I am having major problems getting a handle on the diarrhea.

I had a colostomy several years ago and it was much easier to put on weight then it is with my ileostomy.

I honestly think that if I could get a handle on the loose stool I would probably weigh a little more. Especially since I eat everything I can get my hands on! Everything that my stomach can handle that is. But it seems everything I eat comes right back out a couple hours later.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 8/12/2007 8:50 PM (GMT -6)   
The chronic diarrhea associated with Crohn's caused me to be underweight, malnourished, and sickly looking.

Now I get all of the nutrients from the food I eat and have the energy to exercise, so I am at a normal weight, have muscles again, and am much healthier than I was before.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/12/2007 9:47 PM (GMT -6)   
about a week before my surgery i was 135, but then the prep and being off my meds and tapering the steroids made my tummy upsest so i lost that way also, then when i came home from the surgery, which was two weeks after the first time i weighed i was 120, which for me is too little, at least now. I looked like a ghoul! i gained the weight pretty quick though, a steady diet of chips and ice cream helped! now i am staying right around 140, i need to go back to 135 though, but i can't stay away from those stupid mints at work!

Regular Member

Date Joined Aug 2007
Total Posts : 22
   Posted 8/13/2007 1:10 PM (GMT -6)   
I lost weight after my ileostomy, over 2 yrs. ago, then I went back to my normal weight by the 1st yr. and have stayed there ever since.

Sandy B

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 8/15/2007 5:14 PM (GMT -6)   
I had a temp ostomy that was reversed in June. I went in the hospital in Feb and had emergency resection and had complications causing me to have the temp ostomy the week after. I still had many complications even after that surgery with abscesses etc. When I went in the hospital in Feb I was 119 (I was still tapering off of pred. I went up to 140 in the hospital from fluids pred etc. I lost some weight down to about 110 before my reversal and now I am at 99
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

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