Judy - Thank you for the great input.... I have one more question. It seems that there is a difference between the durahesive and the moldable. Is that correct? Do you cut the
opening in the durahesive like the stomahesive flexibles? I don't mind doing that. And will the Eakin seals work with Convatec products? Or is 'Eakin Seals' just another name for that company's wafers? I think you are right about
the eating more, producing more stool causing less wear time. I just can't keep the food out of my mouth! I really need this weight gain tho. Been borderline underweight all my life -- combination of heredity and CD and ostomy, or so I thought. Maybe my body is just changing - the 7 year thing! I certainly appreciate all of your experienced insight. Thank you.
LillyIlly - "Barbie" butt , Oh that is so funny. I haven't heard of that one before! I'm way too sheltered. I, too, was on all of your drugs, but they didn't do diddly squat for me. I was not given the option of a J pouch. Too much of a risk for CD reoccuring in that
location for me. So I was given my O as a present! I had not done any research into what it was before my surgery. I was in total denial at age 17. Wanted nothin' to do with it then. It only took 1 visit from a UOA trained visitor to change my mind. She was so vibrant leading a completely normal life, very active, working in the real world, without pain, raising 2 small children. That was my turning point. So I became a visitor as soon as I was physically able (after I gained some strength and weight). How rewarding! I really enjoyed doing that. Not much of a UOA program in the little town I live in.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery