Ileostomy surgery was in 1984 - Hysterectomy in 1986 - they checked me out in '86 since they were in there anyway - no signs of Crohns then. I've had my share of other "stuff" going on, but no CD. No other abd. surgeries since 1986 either (knocking very hard on wood, can you hear me?) I had an excellent surgeon at Cleveland Clinic. He is the head of the Gastro Dept there now - Victor Fazio. It took my local drs quite a while to diagnose me as well - finally made the CD diagnosis in 1979. Prior to diagnosis, I was treated for rheumatic fever, mono, boils, etc. All white cell related disorders - hence, probably CD very early on. No heart murmur, no relapse of mono, no boils (erythema nodosum), since I started steroids and subsequent surgeries. I am sooo thankful Doc Fazio took as much out as he did - when he did. He gave the drugs one chance after another, did resections several times, temp. ileo., finally said that was it when I couldn't keep water or fluids down. Probably totally obstructed at that point... took tpn to get me up to power to have the surgery by then. [sorry for the biography]
Where did you end up being diagnosed and have your surgery(s), just curious. Were the symptoms not classic, or just not enough experience at the docs you were going to for them to recognize it?
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery