Hi, I am new to this forum as well, but my symptons are very similar to what you are going through, and I know how frustrating it can be when no one seems to know anything for sure. My problem started back in 1991 when I had pain every time I ate anything. Needless to say, I lost 30 pounds in two months. Went through all kinds of tests and they found NOTHING! The doctor threw his hands up and suggested I try Lactaid. Believe it or not, that actually worked, and after a year I was able to discontinue. I continued to have painful and infrequent BM throughout the years off and on. This year it started up again in April, and I spent 4 days in the hospital after going to emergency and they sent me home with pain pills. They could see there was inflamation in the lower right abdomen, but could not see from CT scan or Ultra Sound what was causing the inflamation. By July I was in so much pain, had red blood fill the toliet from small BM, and went to emergency one more time. The doctor on call said he thought it was my gallbladder, and I needed to come back for another Ultra Sound in a couple of days. He gave me pain pills to hold me over until that time. When I returned, my hero of a surgeon was in the ER at that time, and he said since they could not see anything on film, he was going to admit me and do exploratory to find out what the obstruction an inflamation was all about.
After 3 hours in surgery, I came out with a huge incision and bag attached. I was diagnosed with terminal ileum and cecum, active enteritis and colitis, consistent with active Crohn's disease. Resection was done, and I was in the hospital 8 days. That was 7-31-07, and I am still trying to recover from the surgery. No more pain, but, I am so weak and get dehydrated very easily.
If you can just find the right doctor, there is hope, and I pray you find it sooner than I did. So, hang in there, and do your best to find an excellent surgeon that will not waste your time, but go in and explore your situation so you will know for sure what is happening to your body.