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Smoke3
Regular Member


Date Joined Jul 2007
Total Posts : 23
   Posted 9/5/2007 4:52 PM (GMT -7)   
I am fairly new here so maybe this is old hat to some of you. When I change my wafer which is usually at the 4-5 day mark, it has been the time to do it. Lately I have, when changing my bag taken to using a bulb syringe and washing my stoma and inside of the wafer and there is still no sign of deterioration. The one have on now has lasted 8 days and still looks good I will change it tomorrow because I don't like to push it
Anyone else ever tried this?
I will try it again and let you know the results

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/5/2007 6:42 PM (GMT -7)   
Smoke,
I use the Coloplast Assura Extended Wear wafer, and it lasts an easy 7 days with daily showers.
I keep the bag on in the shower, except for the day when I remove the wafer and wash the skin around the stoma. I think it lasts so long, because it's Extended Wear.

The first couple of weeks after surgery, I would rinse out the bag and clean up my stoma several times a day. I treated it like a baby. I'd clean it, and it would poo. <<giggle>> I'd clean it again, and it would poo again. <<giggle giggle>> I finally couldn't keep up with demand and realized that it likes its little poopy environment, so I let it have its way and stay poopy! After all, it is an intestine and has never known a life without poo. :-)

That was 18 months ago, and so far so good. Everyone is different, and we will all eventually find out what works best for us. If what you're doing is working, then keep it up! That's great!

Good luck!
Cecilia
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/6/2007 4:11 PM (GMT -7)   
I do the water in the bag trick, but only when I am at home, and usually only a couple times a day - first thing in the morning before I leave for work, and then again when I get home.  Habit I guess.   I just have a plastic cup I leave sitting on the side of the bath tub, which is near the "loo", and rinse and repeat as needed.  It give me that clean and fresh feeling!!!
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/8/2007 12:20 AM (GMT -7)   
So, Smoke3, how was the skin around the stoma at the 8 day mark? Hope all looked good ---

I was having some issues just recently with wear time, only the opposite. I usually can go about 7 days, give or take. Recently, it's been about 4. Just 3 days ago I tried inserting one of the convex inserts inside my ConvaTec stomahesive wafer. So far, so good. It isn't as flush against my abd. now, which doesn't make me happy. But no breakdown so far. Waiting on samples of the durahesive and moldable wafers to arrive in the mail to try them out. I just have been really lucky this many years out from surgery and feel blessed. This is just one little obstacle to have to conquer -- it can be done! :)
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/8/2007 9:44 AM (GMT -7)   
By day seven, my skin under the wafer starts to feel a little itchy. So, I take the wafer off, hop in the shower and just itch away. It feels sooo good! Then, I put on a new wafer, and I'm good to go for another seven days. :-)

Smoke3
Regular Member


Date Joined Jul 2007
Total Posts : 23
   Posted 9/8/2007 7:31 PM (GMT -7)   
It looked good on day 8 , I took the wafer off and there was just a slight sign of it starting to break down. I bet I could have gotten another day out of it but"cluck cluck"

Thanks for the replies

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/11/2007 4:55 PM (GMT -7)   
when I had my ostomy I used one of those bottles that they make for dying your hair. I would bring it in the shower and squirted it in the hard to reach areas. I had to change mine every other day or I had leaking though
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 9/12/2007 3:10 PM (GMT -7)   
flchurchlady,

The Coloplast Assura Extended Wear wafer, is it better than Hollister's New Image? Have you ever tried New Image? I am having a big problem with my skin being irritated. I am allergic to many of the products. Anything you can recommend?

Are the Coloplast bags you use the lock and roll type?

NashRambler
Regular Member


Date Joined Jan 2007
Total Posts : 22
   Posted 9/12/2007 3:30 PM (GMT -7)   

I can't get pass 3 -4 days and I will leak. I use the coloplast also. Don't know if it is the heat down here in the South or what. I have double checked everything and shave area well and dry before putting new bag on. I do have quite a mound that has developed. I just don't know but was tired of leakage at work and having to drive an hour home to resolve problem. When I put it on I lay down in bed and put a hot washcloth over the wafer for 10-15 minutes to get a good seal. Can't do that here at the office. lol

 


Total collectomy and permanent Illeostomy April 2006
Pain free and enjoying life again
Have a Blessed day


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/12/2007 7:54 PM (GMT -7)   
Ohio,
I'm so sorry you have sensitive skin and allergies. I wish I could recommend a wafer for you. I've done online searches for wafers for sensitive skin and allergies and haven't found one yet. If anyone here knows of one, please share what you've found.

I've never tried Hollister's New Image, since I've been happy with the Assura Extended Wear. The Coloplast pouches I use have velcro at the bottom.

Nash,
Sorry you're having such trouble with leaks, especially at work. Have you tried the Coloplast Assura Extended Wear wafer? I haven't had any problems with it leaking, and I've been using it since Feb. '06.

So much of this is trial and error and finding the right products that work for us. I'm glad that companies will send free samples for us to try out.

Good luck,
Cecilia
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


NashRambler
Regular Member


Date Joined Jan 2007
Total Posts : 22
   Posted 9/14/2007 12:34 PM (GMT -7)   
Thanks for the info Churchlady. It is time for new supplies so I ordered 2 boxes of the extended wear and emailed coloplast for samples. What makes it extended ? Extra sticky stuff on wafer or what? Would love to go at least 6 days between changes. I will let you know how it all works out.
Total collectomy and permanent Illeostomy April 2006
Pain free and enjoying life again
Have a Blessed day


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/14/2007 7:30 PM (GMT -7)   
Remember this?
Recently, it's been about 4. Just 3 days ago I tried inserting one of the convex inserts inside my ConvaTec stomahesive wafer. So far, so good. It isn't as flush against my abd. now, which doesn't make me happy. But no breakdown so far.
 
Well the update on this is:   I was due to change yesterday.... that was the one week mark and still no itching.  I pushed my luck until today, and when I changed it, very little breakdown around the stoma!!!   I am soooo happy with this little addition (little cost too) to my pouching system.  I just rec'd my samples from Convatec of the moldable system after I already changed it today.  So the inserts worked well for me so far.
 
 

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/15/2007 9:35 AM (GMT -7)   
Peggy,

Just a little advice about the convexity of your appliance. Check your abdomen when you change your appliance for bruising. I don't think the convexity of the inserts is as deep as the convex flange, but just wanted you to know that it could be a problem. I had permanent bruising which meant poor blood flow to the stoma because of it. I never knew it was a problem until my surgeon saw it and freaked out, I guess it can cause problems with your stoma.  Not that I could have done anything different anyway, even with deep convexity I was only getting 24 hours out of a flange.


Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/15/2007 10:26 AM (GMT -7)   
Judy - Thank you so much for your heads up about the abd bruising.  You mentioned permanent bruising -- did it every go away?  Do you actually feel it or does it just look bruised?  I didn't noticed any bruising, but then again I wasn't real perceptive to it.  I will be sure to take a closer look at the next change.   Maybe this new information will push me into trying the moldable next time; or even alternate between the moldable and the stomasive with convex insert for cost effectiveness, if I don't see/ feel any bruising.  I am just so psyched about my extended wear time again.  You know what it is like to doubt your confidence, and right now, I am just too busy to have that doubt.  (We are acting as general contractor in building our very first home right now.  It is just being framed right now.  Lots and lots of decisions, etc. to be made.)
 
Thank you so much for all of your advice, recommendations and hints.... I guess this is a good lesson for all of us... even veterans can learn something new everyday!!! 
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/15/2007 1:43 PM (GMT -7)   
It didn't feel bruised at all, but it was definitely visible. I didn't think much of it, but like I said I didn't have much choice either because my stoma actually was convex the wrong way because of disease and shrinkage and pulling.

I don't think the inserts are as deep as the convex wafer, and I also had to use Eakin Seals which made it push in even further, so I don't think you'll have a problem, but just wanted you to know to watch for it.

Also, you could probably wear the inserts with the moldable, but if you're having great success with what you're using, don't change it ;0)
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 9/19/2007 4:31 PM (GMT -7)   
flchurchlady, thank you for your reply about the Coloplast Assura Extended Wear Wafer and Pouch. I love the velro seals on the pouch - much easier to use. My Stoma Nurse is having me use Kenalog Spray to clear up my allergic reaction. I need to be careful with it since it's a steroid and can thin the skin.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/20/2007 1:26 AM (GMT -7)   
Ohio,
So glad to hear you're happy with them! :-) Hope the spray helps clear things up.
Cecilia

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/20/2007 5:43 AM (GMT -7)   
Nash and Ohio,

If you are both using the Coloplast Extended wear, can you let me know how it works for you? I am HIGHLY allergic to Convetec so I have been using Holister New Image. I like the New Image accept around day 2 my skin starts to itch under my wafer. By the end of day 3, I need to change my wafer because it will start to leak. My skin is so sensative and it does not do well with the changing every 3 days (it gets rashy and bleeds a little). I want to try the Coloplast. I am going to order some samples but I would like to get your opinion as well. Also, I like the New Image because they are thin and you cannot see them under my clothes like you can with Convetec. Are the Coloplast thin?

Thanks for your help.
Amey

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 9/27/2007 5:36 PM (GMT -7)   
Amey, actually, I have not tried the Coloplast Assura Extended Wear Wafer and Pouch yet. When I went to see my ET Nurse, she had me put on a Convatec Sur-Fit Natura pouches and wafers. We did a patch test and found that these work for me. I have ordered samples of the Coloplast though. I was very allergic to the Hollister paste and wafers. It was an extremely bad rash. It's been three weeks or so and I'm still fighting it. The Kenalog spray seems to be working. One of my Home Reach Nurses thought the adhesive was the same on all the wafers. She thought my rash was only due to the paste and a yeast infection, which I don't think I had at all. Oh well! I guess that's why there are ET Nurses.

What kind of reaction did you have to Convatec? How long did it take for you to react to them?

Mary

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/27/2007 5:49 PM (GMT -7)   
Mary,

When I put a Convetec Durahesive wafer on or a Hollister wafer (that is NOT New Image Flextend), my skin starts to itch right away. Then, within hours the skin under my wafer will itch and burn. The burning gets increasingly worse. The Durahesive held up for 4 days but the whole time I was wearing it, my skin was burning and itching like crazy! I felt like I had ants under my wafer. All of my skin around the wafer tape forms a red rash and the skin under the wafer gets more red and irritated. After wearing the wafer for 2 days, my skin starts to bleed. I have been wearing a Hollister New Image Flextend for 4 day now, with an insert, and my skin has not felt this calm in weeks. I always use powder and No Sting spray. I do not use pastes because they burn as well. I hope this answers your question. :o)

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/28/2007 6:36 PM (GMT -7)   

Amey - how's the insert working for you so far?  Sounds like you might have found some success!!  YEHHHHH!  It sure isn't as flat as what I was used to but the extra wear time is worth it to me.  What do you think?

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


fancci
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 4/24/2008 10:19 PM (GMT -7)   
Hi,
I"am new here and was reading the posts,my husband had a
urostomy about three months ago,still new to this.I was reading the post about bruising on the abdomen. Is it caused
by pulling to hard when removing the wafer?What can you do
for it ? my husbands stoma has a bruise around it and around
the belly button area also. These forums are awesome,you
learn so much on them.Thank you for the info

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/25/2008 3:16 AM (GMT -7)   
Hi Fancci,
Welcome to Healing Well. I've never had a problem with bruising, but I can help with an easy wafer removal tip. I use an adhesive remover wipe to gently slide the wafer off my skin. You can purchase them at medical supply stores. Have you checked with your husband's doctor about the bruising? I hope you two find out what's causing it. Good luck!
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Small Bowel Obstruction Surgery in '08, caused by adhesions.
Disease-free, medicine-free, and very thankful to be healthy again :)

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