I'm 44, female, had a total colectomy, ileostomy x1yr, J-pouch, reconnect with only small intestine remaining all due to Ulcerative Colitus. Final surgery was in Jan 98. I did really well for first 7 yrs. Used Immodium, Metamucil & watched my diet to slow the stools and bulk them up as much as my body would allow. Unfortunately also have a lot of scar tissue on the inside and causes a lot of pain especially when gassy and bouts of uncontrollable diarrhea.
Lots of life issues have caused tremendous stress in past few years including husbands deployments, daughters rape, moms death...most recently husband asked for divorce after 23 yrs of marriage. Needless to say, whats left of my small intestine is in an uproar. Constant diarrhea, gas, pain. In past 2 months have gone from 142lbs to 113 (weighed yesterday at doctors office). Love my gastro dr. but she seems to be at a loss as well. Blood work looks good, sig scope looked "great". What really scares me is that these were all tests and results I received over the years before they ended up having to remove my colon. Your body builds up a tolerance to immodium over the years so I was up to 30 a day. My Dr. was obviously asstounded and asked me to cut back. Since doing so (15 day/5 3xs day) - I'm living in the bathroom, afraid to eat because it just runs through me. Painful, even my legs have started cramping. Any suggestions/help would be much appreciated.