Hello Everyone...here is more story:
Ok, I have had chronic constipation since 14. Diagnosed with IBS at 14 as well as GERD. I am now 26. I will try to explain everything in a nut shell. When the constipation began, I took Citrucel, other persribed meds for spasmatic activity and Propulsid to help empty my stomach. Nothing was working. I ended up over time giving myself fleet enemas. I was on Zelnorm, Miralax, and the latest, Amitiza. I tried the natural way...got really sick. I now have to give myself ho***er bag enemas...it is the ONLY thing that makes me feel relieved. If I take citrate of mag...it takes almost 7 or 8 hours to start working and it doesn't make me feel empty. Miralax, I have drank about 4 full caps for 3 days straight...and nothing. Dulcolax...just cramps. MOM, sometimes go, but only a little...makes me nauseated. That is why I stick to the ho***er bag enemas...3 and I am done (takes me about 2 hours to get all the water out though) I do this about every 3 or 4 days...whenever I can tell I am getting full of poop.
I have been to Hershey (live in PA) and they diagnosed me with colonic inertia, rectocele and enterocele back in 2002 I think it was. I went to Johns' Hopkins this past May after I had my daughter (she just turned 11 mths) and they diagnosed me with general dysmotility...I have gastroparesis (paralysis of stomach...so I can't eat very much).
I have spoken to a few surgeons. One is saying he would gladly do it. The other is saying if I can relieve myself with enemas then to do that the rest of my life (I don't know about you...but that isn't a life...I had to take my enema bag with me on my honeymoon). And the final one is saying fix the rectocele and I should go to the bathroom.
The Sitz Marker showed I passed 3 rings in 8 days (my study was kind of screwy and it ended up being 8 days instead of 7). Most of the markers were in the sigmoid.
I don't eat a lot. With my gastroparesis it is really hard. But, I really should be able to pass some bowel...don't you think? My day may consist of a cup of applesauce, a bowel of rice, animal crackers, and a handful of rice cakes or pretzels. That is about all I can eat...some days not even that much. I have been given Reglan....terrible side effects, domperidone (not FDA approved in the US and gave me chest pains) and erythromycin. Nothing seems to be helping. It should be noted, before I had my daughter, I was able to eat normally and ate healthy. I exercised regularly, and still no BM.
What do you guys think? I have a friend who got a TC who has gastroparesis and her symptoms are improving and she is going regularly. Although her markers were scattered throughout her colon.
I don't want to keep trying new pills, giving myself enemas, etc. I want a permanent fix. Do you think I am a candidate?
If I hear one more doctor say eat more fiber I am going to scream....that made my symptoms worse!!
Any advice is greatly appreciated.