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Eva Lou
Veteran Member

Date Joined Sep 2006
Total Posts : 3442
   Posted 9/27/2007 9:58 AM (GMT -6)   
Hi people! I have my surgery consult next Tuesday & I am so excited. I am hoping to have the surgery in the beginning of November. I do have one more Remicade infusion scheduled for Oct. 15, a double dose, & I plan to see if that "works". I don't have high hopes though. I've been miserably sick for weeks now & have had it up to HERE with UC! Time to say Bye Bye colon! I was on Shaz's Ostomy Pages (which rock, by the way!) & was looking at the pics- it seems as if most of the people had the big, gut-wide-open surgery.... However, my GI told me they do it laparascopically these days. Any feedback??? Thanks!
diagnosed '02
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 60mgs/day

Regular Member

Date Joined Apr 2007
Total Posts : 385
   Posted 9/27/2007 2:32 PM (GMT -6)   
I had my TC done on 9/10 and it was done laparoscopically. I went to the Bay Area for my surgery because if I would have had it done in the area I live in, it would have been open.

Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 9/27/2007 3:39 PM (GMT -6)   
Eva Lou,
I know what you mean by having had enough of being sick. I felt the same way when I decided to have surgery, too. I wasn't given the option of having it done laparoscopically, so I got the big zipper job.

I figured since I was going to have a bag, my bikini days were over anyway, so who cares about a big scar?! The incision did hurt while it was healing, so if I had the choice, I would have done it laparoscopically.

Good luck with your surgery consult on Tuesday. You definitely have the right attitude going into this, and I promise, you are going to feel so much better once that disease is gone. Surgery is a cure for UC!!

Take care and keep us posted on how you're doing.

Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 9/27/2007 8:58 PM (GMT -6)   
i would have had to go somewhere else to get it done laparpscopically, and my sugeron said it doesn't really make that big of a diff in recovey time, just the scar thing. And like churchlady said, my bikni days were over anyway, although mine were over post baby!

Regular Member

Date Joined Sep 2007
Total Posts : 27
   Posted 9/27/2007 9:46 PM (GMT -6)   
I had my ileostomy done lathroscopically. I can tell you that the scarring is minimal. I now have a 1/2 inch scar under the sternum, another one about 1 inch long under my bellybutton. Both are hardly noticeable. After surgery, my upper body was sore for about a day and a half, as that during surgery, you are pumped full of gas to "inflate" you. This allows the surgeon to maneuver the camera and instruments inside you. After the surgery, there is residual gas that takes about a day or two to dissipate. I was up and walking about two days after the operation, and home after a week. The first two days the nurses got me to sit up and bend my body up and down while holding a pillow against my chest. This supposedly was to help the gas dissipitate, as well as get my body moving again.

One VERY important thing. Make sure you get the location of your stoma marked out beforehand, where you want it to be. Keep in mind belt line and clothing. The ET nurse, or qualified person, should go over this with you before surgery. I myself wasn't aware of this, and none of the hospital staff went over this with me beforehand. I never had my stoma marked for a good location. Now my stoma is right next to my bellybutton, so swimming for me (wearing a bathing suit) is out of the question. The surgeon placed it too high on me as far as I'm concerned. Be sure to get your stoma mapped out beforehand.
"The world hates change, yet it is the only thing that has brought progress."
-Charles Kettering

"He who rejects change is the architect of decay. The only human institution which rejects progress is the cemetery."
-Harold Wilson

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