Well I made it home Saturday about 3pm and have basically been sleeping most of the time since. I was sent home with Vicodin who is my best friend now! I am doing well. I have had an
in-home-nurse come to see me twice now to observe me changing "the goods" and to inspect my incision. She will take my staples out next Monday-oh that is going to feel so good. I think I have the changing part down, but its the emptying that is difficult for me. My STOMA is a juvenile delinquent!!! I no sooner get it empty and clean and it is going again. Ugh!! It just won't stop going and it won't listen. I feel like I have a newborn baby in the house again.
And how do you empty the bag in a public restroom when it is so thick and won't come out of the bag and you really can't rinse it? I practice at home sitting as far back on the toilet as I can and just squeezing and squeezing but it sticks and if I don't get it all out it is just very heavy and tugs on my sensitive stomach too much??? I seem to be emptying 10-12 times a day and thats at about 1/2 full. Is this normal?
So I need emptying advice please, what's the best method, any tricks, anything to make it easier? How many times do you guys empty a day?
Thanks for the input and prayers and the continued best support EVER!
A NEW me calls for a NEW profile :)
Ileum stricture removed laporscopic May 23, 2007
Subtotal colectomy & ileostomy September 24, 2007
Currently tapering off prednisone from surgery will be done and officially med. free in 3 more weeks :)
Will need rectum removed within next 10 years
Allergic to: Asacol, Pentasa, Imuran, Paxil, Zoloft, Penicilian, Ampicilian, Humira, and Vancomycin (sp?)