Just from my experience.
>so I change my bag about 2 times a week?<
Thats about right. Some last longer than others. It'll all depend on how your skin handles it.
>And do you change your wafers every time you change your bag also?<
Yes. Pretty much have to. Most likely you won't need to change the actual bag ( depends on what type you are using) before the wafer. I've put the old bag back on after changing the wafer, but only because the wafer didn't last more than a day or so. Again, it depends on your skin. I usually toss the bag with the wafer though.
>However, my surgeon did say the only restriction is the volume of food, per se- since the stoma opening is fixed, <
I've eaten anything. Pizza, steak, doesn't matter. I've never been told about the opening of the stoma. Heck, i had to swallow this HUGE pill looking thing that was actually a camera. If that thing made it through my stoma anything would. I was always told....CHEW. Maybe thats what your surgeon was saying. The food needs to be broken down pretty well, so large CHUNKS might be tough.
>Did anyone have serious complications from surgery? Or after surgery?
My only problems came from stopping all my meds so quick. Stopped everything except the Pred, but slowly came off that. I had so many side effects from the meds that it seemed to be even worse after the surgery. How long have you been on 60 Pred? I was on 60 for about 2 years. Coming off it was just as tough as being on.
I recently had a skin reaction to the tape on the wafers i was using. Just changed wafers and it's getting better.
I never wanted surgery. Never wanted a bag. But just like you said, it's MUCH better than the way i was living. It'll take time but you WILL notice that down the line.
Crohn's for what seems like forever
Bagged in August 2006
We cheer for 2 teams. The Red Sox and whoever is
playing the Yankees.