Wow. I don't have much info - I had Ulcerative Colitis, and that's why I had my ileostomy. But I do want to say hang in there, and that I hope she's okay - what a lot for a tiny baby to go through, poor thing. She'll be in my prayers.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
Surgery August 24, 2007. Home now!