ileostomy on 9/05/07 i have questions

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New Member

Date Joined Oct 2007
Total Posts : 8
   Posted 10/26/2007 11:21 PM (GMT -6)   
 1.  i have had UC since i was 15 i'm now 36. i went to the hospital in Aug for a flare up and after a week my colon preforated and i had emergency surgery. they removed my colon. i should be having my reversal in december at which point they will take out my rectum but last week i felt nausea and i began to throw up. i was told to go to emergency. They ran blood tests, cat scan and a ultrasound. I was diagnosed with acute pancreatis and they found a blood clot in the vein that use to be connected to the colon. I was sent home with Coumadin and Lovenox (which i inject myself with 2xs a day). Did anyone else go through this?
2. i noticed that some people only had two surgeries but i'm gonna have 3 including the above mentioned. I was told that my rectum will be removed in the second surgery and the reversal. they also told me that i would have a ostomy bag until i heal from the surgery. Did anyone else go through this. i would appreciate any feedback. i  have been going through my ups and downs but reading everyone else's stories has inspired me to appreciate life and i now realize that the situation could have been worse

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 10/27/2007 9:29 AM (GMT -6)   
Hello Scici,
Welcome to HealingWell forums!
Sounds like you have had a rough go of it for a little while like many of us...  there is light at the end of the tunnel. 
I cannot say that I ever had a pancreatic issue before, during or after surgeries so I won't be able to help you with that question.  However, I am very familiar with the drugs you are taking for the blood clot.  2 years ago, my mom had blood clots in her lungs (lung cancer, radiation, chemo), and she was on the same drug regimen.  I gave her the shots.  It worked for her.
I did have a temp. ileostomy for a few months after one of my resections "to allow the intestine to heal".  Of course, I was only 17 at the time and was sure I would NEVER have to have a perm. ostomy.   I made it to age 24 when all went downhill and the ileostomy saved my life.  I've had multiple surgeries prior to perm. ileostomy --- none since then.
There is a ton of very helpful information on this forum, and going back and reading the stories and posts is really educational - it was for me, I know.  And there are so many nice, truly caring, knowledgeable people on this forum.... feel free to ask ANY questions.  I'm sure someone will have the answer for you.  Again, welcome.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

New Member

Date Joined Oct 2007
Total Posts : 8
   Posted 10/27/2007 9:39 AM (GMT -6)   
thanks for your response and welcoming me
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