well it sounds like you made up your mind! and that is one of the most important things, also sounds like you are happy with your decision.
I had UC for eight long, miserable years, and like others if i had known i would have done it at the first drop of blood!
While i was pregnant i was in complete remission, i ate whatever, no problems at all! it was so great! then about
three weeks after my son was born, it all went down hill, and it just kept getting worse. Well, he was born in June 2005, and I had surgery in April 2007 and in that whole time i never took him anywhere by myself. The poor kid spent alot of time in the bathroom with me, luckily he thought that was fun, i let him write on the shower walls with crayons. In August of 2006, i was in the hopstial away from my child, and missing out on his life, on lots of things, wasn't able to go the beach with him, etc. And i kept thinking, what about
field trips in shcool, and even just waiting in the car line for him I wanted him to have a mommy that could do things with him, same as you. Anyway, right before i went in the hopstial i went to the dr and i said, jsut take it out, NOW, and he convinced me to try remicade, i wish i hadn't. by Dec that year it was starting to fail, and by Feb 2007, i was worse than i had been in along time. I was actually hoping i would developo something that would force them to take it out. I went to teh dr and i said, either you find someone to take it out, or i will, and i didnt'mean i would find a dr, i meant i would take it out myself!
anyway, i had my surgery and recorvery wasn't fun, i won't lie and tell you it was cotton candy and fluffy clouds. But life is great now! i have been on field trips, we went to teh mountains, went to the beach, i take him all kinds of places now. Which to a normal place getting to take your kid to wal-mart seems like a non event, to me it was wonderful!
You do have to make changes, but after a while you will forget all about
it, alot of times i forget i even have the thing.
With what you have, you will have to have an ileo, and your rectum removed, i think that means you won't be eligible for a j-pouch, but i am not sure.
I chose not to do that, because i didnt'w ant the extra surgeries or the chance it would fail
I don't know why you would have lost your babies, i am so sorry that happened to you.
I have heard lots of women have healty pregnancies with bags, they just have to have c-sections, and your stoma changes so you have to keep up with that, but it's far better to have a bag than be sick during a pregnancy
I wish you all the luck in the world and will keep you in my thoughs!