Went to the ET nurse today.

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Regular Member

Date Joined Feb 2007
Total Posts : 420
   Posted 11/9/2007 3:03 PM (GMT -6)   
They don't know what the sore is. They gave me some grey stuff to put over it that will hopefully give me more wear time, and silver nitrated a few spots. Other than that, they said to come back in a week, and if it hasn't gotten better, they would refer me to dermatology. Really? Dermatology? At least they didn't seem overly concerned about it.  Now I just hope I can get more than 12 hours of wear out of my wafers.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
Surgery August 24, 2007. Home now!

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 11/9/2007 3:08 PM (GMT -6)   
Well, I'm glad to hear it's not the stoma separating or a fistula. You can deal with a sore, it's just like you said, keeping your wafer on for enough time that you don't make the rest of your sking raw. All I can say is use lots and lots of barrier, my favorite is the 3M.
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 11/9/2007 4:07 PM (GMT -6)   
I'm also glad to hear that it's not stoma or disease related.. doesn't make the problem go away or life any easier with respect to wear time, but aren't you a little relieved as well? Crossing my fingers for you.

I don't have any recommendations for you (imagine that!), because I don't use skin barriers, but from everything I've read and heard about indicates they would be a good idea.

I sure hope the stuff they gave you helps to heal it quickly.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

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