Do you have Crohn's Disease? Sounds like a fistula. You must have an opening in your intestine that worked it's way to the surface along the outside of your intestine.
Is this surgery new? You mentioned the stool coming between the stitches? Could the stoma be pulling away from the skin? If so, it's a wound care issue, but you shouldn't have stool coming out of the opening.
I'm not sure what an ET could do, except help you figure out how to pouch it up until you can see a surgeon or GI (depending on whether you think it's a fistula or the stoma pulling away from the skin). You do know all you can do is make the opening big enough so the stool all goes into the pouch instead of under the wafer. Now that you know where the stool's coming from, you can use an Eakin or something to try and corral it into the pouch.
I think you need to see someone. I would probably go see the colorectal guy your doctor mentioned. You can always see an ET later.
Good luck, let us know what happens.
Too many surgeries, ileostomy, 6MP for maintenance.
Post Edited (JudyK89) : 11/17/2007 12:33:06 PM (GMT-7)