Posted 3/24/2004 9:23 AM (GMT -6)
Paste isn't a bad thing really - just not good for sore skin.

Remember too, paste is not actually paste as in a glue. Instead, it's a caulking agent designed to fill in any gaps between the stoma and the skin or the wafer and the skin.

I'm not a complete idiot - some parts are missing!

Posted 3/24/2004 1:44 PM (GMT -6)
i hated my bag and cried constantly until i got help from my dad, who also has an ileostomy. my skin never was oozing, just red and sore...but after my dad had his operation his skin was as irritated as it could was oozing and puprle...but it actually healed...and once it does the bag will stick to you better and it won't be as bad :) just remember that you will have better days...the reason my dad's skin got so bad was that none of the products he tried would stick properly and he was constantly having to peel the bags off and put on new appliances because they would always spring a leak! he fixed this himself, using products that his ostomy nurse at ubc hospital had not heard of....i use the same stuff he does now...and i went for 10 months straight without ever having any leaks...and i change it about every 5th or 6th day. my ostomy nurse thought that the kind of paste i use would be too strong and irritating, but she was suprised when she actually looked at my stoma site, after 10 months of using the paste, and it was fine-not irritated a bit. she said that i was just unusual, but my dad and grandpa both use it and have no problems too....i think i have figured out why my ostomy nurse is afraid of it though-it would be very bad to use just after surgery when you have fresh wounds....and hard to get off without hurting....and also, she thought i was using it all over, but i actually only apply a little bit of paste right around the stoma.....i don't put any on the really thin, sticky part around the outside. our gluing system is this: i brush a thin layer of "skin-bond" (it's a white glue) ina circle around the stoma, that is about 1/2 an inch-1 inch wide and goes right up to the stoma...then i squeeze "stomahesive" paste from a tube and apply it on the appliance in a circle around the hole, right up to the edge. the white glue protects my skin from the stomahesive, and the stomahesive makes a good barrier to stop leaks...and that has to set up for a few minutes before you stick it on rubber cement has to set up. then i carefully put it on (its hard ro adjust once its stuck on) and push gently down....some of the stomahesive paste will ooze out , and i just wipe the excess off. and then i just snap on the bag (because i wear a small two-piece bag....its too hard to do this gluing with a one piece because its messy) and it is not a good idea to change it in the first couple of days unless you have to because the glue becomes harder...and if you take it off in the first 2 days it is still soft and you will be having a hard time trying to scrape it off your skin..if you wait a few days it comes off all in one piece...and if there is any little bits that are left on my skin i just use "remove" to wipe it off...just make sure that your skin is dry before you put a new appliance on, if you use remove. anyways, i hope that helps someone-i felt like it saved me because it gave me the confidence to go out and not worry that my bag would come off.....oh, and i also fill in a little dip beside my stoma with "adapt" paste before i put on any other glues...because it will leak where there are any dips. i also have found that hollister bags broke more often for me and my grandpa...i use convatech bags (with a filter!!!!!! it stops it from filling up like a balloon!) and i use "m-9" deodorizing drops just put a few drops into the bag after you empty it, and then the next time you empty it the smell isnt so bad! that helped me because i was afraid to empty it in public washrooms! oh, and it took me a while to figure out that if i used a small clip for the end of the bag, and then tucked it into the top of low-rise panties...that you couldnt see that i had a bag and i could wear pants that were tighter in the legs...sorry this is so long lol :)
Posted 3/26/2004 9:35 AM (GMT -6)
Thanks Niki...
I couldnt help by noticing you have 3 generations of ostomies??? WOW!
The econ seals seem to be working, I did go see my nurse, and that was helpful. I too sut the bag up into my panties..your right, you cannot tell this way, and still can wear all the styles out there:)
Take care, and thanks again.

Posted 5/5/2004 1:43 AM (GMT -6)
Well you've received some very good advice I hope you''re feeling better and like they said there is still life after the surgery. Just check out what I call myself and trust me no one can tell me otherwise!
God Loves You!

Posted 5/7/2004 10:30 AM (GMT -6)

Hi Tammy,

I dont have any advice for you yet . I am getting my ileostomy on the 12th. So I just wanted you to know that I hope things will start getting better for you soon.

I know I will probably be going through all the things that you are going through now. I am hoping that I will be able to deal with it better because I suffer from Crohns disease and severe fistulas. I am always in pain, so my quality of life has to get better.

I wish you could feel better, I think you will in time. This is a great place for support. Please stay in touch.


I Just tell myself, it could be worse !!!
                  T Jane

Posted 5/18/2004 3:43 PM (GMT -6)
Hi I'm not trying to bug you or anything but I was wondreing why no one on the ostomy board says anything. I know people have lives but I thought this board was a really good support group for those who needed it. I'm sure it's helped a lot of people. Well sorry for bothering you.
God Loves You!

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