Plumbing problems

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candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 11/24/2007 7:20 PM (GMT -7)   
Oh no!  I'm exactly one month post-op since removing the big, bad colon skull and I finally allowed myself to go out tonight to a decent Italian dinner with my family.  So I'm enjoying a delicious pasta and seafood dish - no veggies - and all of a sudden I realize everything is clogging up around the stoma area.  Oh, the itching and poofing in the bag!! sad   Is this common?  Until now, everything has been so liquid that I haven't noticed this happening before.  Even when I stood up, everything was still hanging around the top of the bag.  A serious Mr. Plumber moment....  When I got home, it took 3 water bottles to get everything cleaned out of there. (I'm kind of anal with the water cleansing process).  Anyway, what did I do wrong - or is this normal?
 
P.S.  I'm with you guys a lot, but I do more reading and nodding my head than actual posting.  This forum is wonderful and you're all to be commended for the aid and relief you bring to people like myself who still feel a somewhat freakish at times and a little shy about "sharing."  Thanks to everyone for making this craziness a little more mainstream. :-)    -Laura

Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 11/24/2007 7:35 PM (GMT -7)   
I'm not sure I am picturing this correctly! lol Was the stool thicker than usual? Pasta will definitely help thicken typically looser stools. Was it not coming out? I'm a little confused.

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/24/2007 7:57 PM (GMT -7)   
Laura,

I am confused as well. Was your stool even coming out of your stoma? And what do you mean by "it took 3 water bottles to get everything cleaned?" Did you drink 3 water bottles or flush your stoma with 3 water bottles? Did you have any cramping? Or was stuff just moving really slow?

Can you give more details so I can help you?

I am sorry you had this experience. I would love to help you figure this out.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 11/24/2007 8:01 PM (GMT -7)   
Sounds like you are like me. When things are thicker, and especially if I am sitting for a long time, things kind of "pile up" around the stoma. I usually just push it around in the bag with my fingers until it is at the bottom. Like a pastry bag kind of...I just squish and push. Sounds kind of gross, but it gets it down. It is completely normal for me. I, too was concerned the first few times it happened.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 11/24/2007 8:09 PM (GMT -7)   
Oh maybe she meant it was sticky like/pasty when it came out and because it wasn't liquid, it stayed piled up near the stoma, instead of heading down towards the end of the bag. That would explain why it was itchy. That's happened to me. Sometimes my stool gets "sticky" like and it's annoying to have to use the bag to kind of wipe the stoma off. I get paranoid when I can't see the little bugger! Lol

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1250
   Posted 11/24/2007 8:13 PM (GMT -7)   
if your stool tends to stay around the top (some people call it 'pancaking'), try spraying some cooking oil inside the top of the bag (don't get it on the wafer) before putting it on. That helps the stool slide down :)
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/24/2007 8:27 PM (GMT -7)   
Laura,
I'm glad your doing so well only one month post-op. What happened to you is completely normal. Pasta will thicken the output, and then it can collect around the stoma.
:-)  Cecilia
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06. In remission since surgery.
Pain-free, med-free, and very thankful to be healthy again :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/24/2007 8:38 PM (GMT -7)   
i'm not exactly sure what you were saying either, but i am glad you seem to be doing well
if i sit at work and have eaten something like fries which thicken it up, i have to take my hand on the outside of my pants and kind of smooth it out
 
 
snaej ni tfel eht no cip


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 11/24/2007 9:20 PM (GMT -7)   
Oops - guess I wasn't too clear about that. Sfgiantsjo and Ash had it right though. I was sitting and it was just piling up around the stoma. I actually did try to "mush" it down through my pants - that was kind of awkward and gross - but it wasn't working too well. Up till now it's been mostly liquid and it gets heavy at the bottom - nothing at the top. In fact, I sometimes have to empty the bag 2 or 3 times an hour. I mentioned this to my doc at the post op visit a couple of weeks ago and he said I shouldn't have more than 1 liter of output in a 24 hour period. That's around 32 oz. and I measured around 55 oz. in a 24 hour period. I was supposed to report that back to him, but I never did. As for the "water bottles", I meant that it took 3 bottles to flush out the bag. It was kind of thick and chunky - eeyew - sorry for the graphics. I can't believe it could go thru me so fast! That never ceases to amaze me. Thanks for the replies and the encouraging words. If I'm doing well, it's probably cuz I'm too chicken to try much of anything away from my house for very long. I know I need to go back to work one of these days and I honestly don't know how I'm going to fit into a "normal" world again....

Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 264
   Posted 11/26/2007 3:45 PM (GMT -7)   
I drink a lot of Gatorade....lots and lots.  Seems to work for me.

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 11/26/2007 4:29 PM (GMT -7)   
You'll fit back in the "normal" world again - trust me. I thought I could never be "normal" again, too. I'm 3 months post op, and I'm doing all sorts of stuff - going to the gym, working, hanging out with friends. Some days are easier than others, but it really does get easier - and better.
As for output, mine was up and down and all over the place for a couple of months after surgery. It's evened out now, but it still can go from tons of watery output to really thick output from hour to hour.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/26/2007 8:06 PM (GMT -7)   
32 oz a day of output? Is that the norm? I wear a mini bag that holds about 6-8 ounces. I probably empty twice in the day and once at night. That would mean I have about 18-24 oz a day.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/26/2007 8:20 PM (GMT -7)   

Amey - remind me again, how much colon and small intestine did they remove?  All your colon, right?  And how much small?  I've had all of my colon & several feet of small removed and most of my output is watery, usually.  And depending on what and how much I eat, I bet I'm up around 32 oz, but I've been eating like a horse too!  You don't eat that much.. your salad from Chili's would have lasted me a couple of hours and I would have been hungry again!!! 

Also, diet really determines output --  what goes in must come out!!  Some things act like a laxative for me.... like black licorice candy, apple juice, cider, vinegar (italian dressing).  So, when I eat those things, output is the same as input... really quick!  But sometimes I just can't help myself but I try to eat these items at home cuz I know the "out"come!!

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/26/2007 8:23 PM (GMT -7)   
Laura,
It's normal to have more activity so soon after surgery. It will slow down, and you will become more comfortable with everything as time goes by. Nobody can tell what you have on under your clothes, unless you choose to tell them. The bottom line is, everyone has to poo, and we just do it differently than others.
:-) Cecilia

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/26/2007 8:25 PM (GMT -7)   

Candyland,

Don't be so hard on yourself... you are only 1 month out.  Things are still adjusting.  Your body's getting used to its new plumbing.  Sometimes I find that fish and seafood slow my output down some.  I just drink more fluids when I eat them.  Food for thought!  It's good you are getting out and trying new foods.  Good for you.

 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/27/2007 10:19 AM (GMT -7)   
Peggy,

I have all of my small intestines. With my motility disorder, I asked my surgeon to give me a short bowel (removal of some of the small intestines) but he said that can cause issues with nutrients being absorbed property. My meals have to be small because my motility is so slow. However, I am slowing working on increasing my food intake. This morning I had 2 eggs with 1/2 pc of bread. It is noon and I am still waiting for my tummy to empty and my bag to show movement. My body will hold this food until about 3pm and then I can eat lunch. The problem with Colonic Inertia is that you feel full all the time. Eatting that salad was huge progress for me. Before my surgery I never ate dinner or breakfast and now I eat these meals pretty reguarly.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/27/2007 12:26 PM (GMT -7)   

So Amey, is it looking like the motility problem "might" be resolving itself as you slowly increase your food intake?   Does putting more in your system now seem to  push what is in there out at all for you with the ileo?  Do you have to wait for the tummy to empty or is it that you really Don't feel hungry to eat any thing else?   I'm really trying to wrap my brain around CI... sorry for asking the questions.  I am so exactly the opposite of you.  And yes, removing part of the small intestine can and for me has led to some absorption issues.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


blue85
Regular Member


Date Joined Mar 2005
Total Posts : 62
   Posted 11/27/2007 12:57 PM (GMT -7)   

This happens to me if I don't drink enough liquids.  If I just sit down and eat my meal my output is really thick and hangs around the stoma, if I drink more liquids with my meal the thinner the output.  But thats just me.... Everyone is different. 

Hope it gets better.  And it will.

April


Dx: with Crohns in 10-2003 then changed to Ulcerative Colitis 1-2007
 
Proctocolectomy with Ileostomy June 19th 2007 - Doing great.
Prednisone 60 mg (currently tapering by 10 a week until zero)
6MP 125 mg po qd
Pentasa 500 mg 3 po tid
Calcium 400 mg with D tid
Iron po tid
Vit C po tid
Tylenol #3 prn
Multivitamin
Remicade - Quit working
Asacol
Colozal
Abatacept Study
Asacol
 
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/27/2007 1:48 PM (GMT -7)   
Thanks Peggy and April. Peggy, normally once I see something moving then I will eat again. Today my eggs started to move at 3:15 and I was really hungry so my kids and I went to Wendys for lunch. I got a small chili and ate a little over half. Because I ate something so hardy for lunch I doubt I will eat dinner. For some people, 2 eggs, 1/2 bread and 1/2 cup chili is not a lot to eat in one whole day but for me, it is all I can consume. I am hoping that since my stoma is already working on the eggs maybe the chili will come through faster.

To answer your question, putting more in does not push things through is just backs up until I get very bloated and sometimes I vomit. Even though I am hungry about 2 hours after I eat, I know that if I put more in my body it will just cause pain. It is better for me to wait and make sure things are "on the move" before I eat again.

Does this make sense? Trust me, living this way is no fun but it is sooooo much better than before my surgery.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/27/2007 3:57 PM (GMT -7)   

Hey Amey,

I had Wendy's Chili today for lunch too.  But I brought it home, added a huge handful of shredded cheddar cheese and heated up a couple of leftover homemade yeast rolls to go with.  MMMM!

Yes, I'm beginning to understand a bit more about CI..  I'm glad it is better for you now and I sure hope that things continue to improve for you.  Are you still holding a lot of fluids --- swelling or puffy at all?


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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