I know this is gross, but where else to talk about this stuff in graphic detail?
Don't want to hear it....click of the page....or "deal with it" as Taylor would say on Kid Nation.
I believe that many of you have temporary ileostomies, right?
I know that some drainage from the real "back door" is normal and to be expected, but how much is 'some', and how much is 'too much'?
For me, I had the surgery due to Crohn's disease, not cancer (yet!), I had developed many fistulas that would simply not go away and the idea was to give the colon and rectum time to rest without any food going through there...then when the fistulas got better, reconnect and "voila" back to a healthy colon...
Now, in reality, while the pain and discomfort have certainly become much less severe most of the time, the fistulas (which now have Setons in them to help them "drain" properly) continue to remain active, either in the sense that they are still painful, that they still drain fistula puss (yellowish puss-y fluid), and there is a few, that did not have Setons placed in them, that seem to come and go. My skin in the area around the rectum is very sensitive, and there doesn't seem to be a lot of flesh under there....I feel like my rectum is still slowly dissolving away from the inside out!!!!!!
anyway, on to the drainage question. Several times a day, I get a strong feeling of urgency to have a bowel movement, but of course, there is nothing to move, except some yellowish, stinky puss-like drainage stuff. Sometimes, it is a pretty significant amount of fluid...like a 1/8 of a cup or so, but usually less. Anyway, any of the rest of you have this kind of thing going on? if so, do you have fistulas, did you have them?
for those without Crohn's, do you still get drainage?
if so, is it yellow, or more clear?
I get some clear drainage, but in much less volume than the yellow kind...
If nothing is going through my colon anymore, why won't this just stop!!!!!!!!!!!!!!!!!!!!!!!! ahhh!!!!!!!!!!!
"All we need is love....love is all we need"