long term complications??

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New Member

Date Joined Dec 2007
Total Posts : 1
   Posted 12/11/2007 9:28 PM (GMT -6)   
Hi there.  I've joined here to hopefully get some answers or guidance.  My father has had an ileostomy since 1983 due to ulcerative colitis.  He has indeed lived the span of my memory just fine.  He has over the past 5 years had once again abdominal problems enough to see a doctor regularly.  (he is not much for doing that)
In 2006 he had a jejunostomy. 
Here's what I'm looking for help in.  (and i have browsed the forums some.. but there is just so much to look through)
since this last surgery he has gotten "dumping syndrome", a bacteria infection in his duodonem, hypoglycemia, rapid body mass loss. (from 234 lbs to 175lbs within a year and he's 6'4") he's constantly weak and yet they say he is absorbing enough nutrients. 
The thing is his current GI doc can't figure out why he's rapidly losing the weight. 
Does anyone else know what could be the root of this or recomend a route to address this? 
They recently took a blood sample and sent it away (to California) to see if he has or has ever had Crohns.
I'm sure I don't need to mention the back and forth without answers to the recent problems has caused undue stress issues.  and borderline depression.
*fortunately he has a home based hobby of a recording studio to keep him going*
If anyone can give any feedback or direct me to a thread already posted.. I would greatly appreciate it. 
dad has had an ileostomy since 1983

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 12/11/2007 10:45 PM (GMT -6)   
i really don't know anything about this, i tried looking up some of it and got more confused. I want to say though that i hope he gets soem answers and gets to feeling better soon.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 12/11/2007 10:46 PM (GMT -6)   
I had a horrible bacterial infection in Oct 06 and lost a lot of weight. After a round of Flagyl and adjusting my diet a bit (no caffeine, no carbonation and going easy on spices), I have finally gained some weight. In fact, I weigh more now than I have my whole life. A whopping 120 (5'5"). And I feel better too. As you can see in my signature, I've had an ileo since 1984. All my labs were fine even when I was thin. Have the docs had him on any meds?

I hope some others chime in on this question.... I hope you find some answers for him. Best of luck to you. Welcome to HW - you will find a lot of very caring people here.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 12/12/2007 3:09 AM (GMT -6)   
Hi There

You might like to visit Richard's page at http://www.richarddw.net/homepage.htm
 He has a jejunostomy too and a lot of good info there including pages regarding his modified diet. He has to eat frequently because jejunostomies usually means the patient has short bowel syndrome and therefore malabsorption of food issues. You might find something useful there to help your dad.

I would also recommend this website http://www.regence.com/trgmedpol/medicine/med97.html  for info on the different nutritional needs short bowel syndrome patients need.

Good luck and thanks for looking out for your dad :)

I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

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