New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 12/13/2007 11:23 AM (GMT -6)   
I have some good news to share. I have had a g-tube in my abdomen since my surgery in August of '05. I needed it to provide nutrition after my various surgeries. Fortunately, I have not had to use it for several months. It has been a constant source of annoyance. There is weeping at the site of insert and it constantly gets infected, not to mention that I have this big honking tube sticking out of my abdomen!
Well, today I went to the surgeon and he feels that I no longer needed this "back-up" and he removed the tube! I know this is a relatively small thing but I am walking on air! Not only do I not have to deal with this constant annoyance but this affirms the fact that I am getting better!
My next project is to close the opening in my trache caused by being on a ventilator for so long. I am looking at an outpatient(I Hope!) procedure to be done in Jan. '08. The surgeon was also on board for this!
It may be snowing in New York today but the sun is shining on me!
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 12/13/2007 11:42 AM (GMT -6)   


That is just such great news for you!!!   Yipppeeeee!  

Are you on any special kind of diet to maintain you weight so you don't have to go back to tpn?   Or, like me, eat everything!  yeah

I'm so happy for you and esp to have great news like this right before the holidays.  Congrats!


Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Nov 2007
Total Posts : 272
   Posted 12/13/2007 12:36 PM (GMT -6)   
Glad to hear your news Richard! every small improvement means so much to us all, best wishes, Gillian
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.

Veteran Member

Date Joined Jul 2006
Total Posts : 942
   Posted 12/13/2007 3:05 PM (GMT -6)   

This is wonderful news. This is not a small thing at all. This is a big accomplishment. You have had to deal with this issue for over 2 years. I am so glad you do not have to deal with the g-tube anymore. It sounds awful. You must be a very patient person to have tolerated having a tube in your abdomen for so long. If the tube was a source of nutrition, does this mean you are going to have to increase your calorie intake? Of course, an excuse to eat more is never a bad thing... :o)
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 12/13/2007 8:29 PM (GMT -6)   

Thanks for your posts. To answer your questions, I have been on a normal (ileostomy diet) for the last six months. Like all of us, I guess, raw vegetables and fruit with tough skins do not really digest, but, I eat about everything else. My weight has gone from 115 lbs. in January/February '07 to 170lbs. today (I'm 6' 3" tall). Before getting sick I was a husky 220lbs.! I still struggle mightily, however, with hydration but I guess that comes with the territory. I celebrated with a lunch of pizza and spinach roll with a Vitamin Water to wash it down. I also just finisshed a nice chicken dinner with baked potatoes and my ever present Vitamin Water. Life is good!



Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 12/14/2007 3:09 AM (GMT -6)   
That is such great news! I'm celebrating and praising God with you! WOO HOO!!! yeah
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06. Remission since surgery.
Pain-free, med-free, and very thankful to be healthy again :)

Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 12/14/2007 3:49 AM (GMT -6)   
That is wonderful Richard. I'm doing the happy dance for you :) Let's hope it keeps getting better and better for you.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 4:59 PM (GMT -6)
There are a total of 3,006,197 posts in 329,314 threads.
View Active Threads

Who's Online
This forum has 161825 registered members. Please welcome our newest member, TheRayf.
270 Guest(s), 8 Registered Member(s) are currently online.  Details
Erichardson234, AZdiane, Admin, Girlie, BillyBob@388, bw1963, Envsciguy, k07