colonic inertia

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angela38
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 12/13/2007 1:36 PM (GMT -7)   
 
       hello..im new 2 this site & really nervous..ive had colonic inertia 4r over 5yrs & have finally reached the end of the road,(hopefully), with surgery booked 4r 20th dec 07, week 2 go..total colectomy..if theres anyone out there with advice i would appreciate it..thank u
 
               xx a xx :-)

angela38
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 12/13/2007 2:54 PM (GMT -7)   
please help
xx a xx


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 12/13/2007 3:49 PM (GMT -7)   
Hi Angela,

Welcome to Healingwell, i have an ileostomy and have had it since Feb 06, i'm due for a reversal in 08. I know how nervous it can be but everyone on here is really lovely and caring, i hope someone will pipe in with some good advice for you, please keep posting, and good luck with your surgery.

Gillian.
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/13/2007 4:06 PM (GMT -7)   
Angela,

I also have CI. I had a TC in 2001. Unfortuately, the TC did not work for me. CI exists in your large intestine (hence the term "colon"ic" from the "coon.") The theory is that if the large intestines is removed, the CI no longer exists in the body. However, for some, including myself, the slow motility issue also exists in the small intestines. Therefore, removing the large intestines is very helpful but is not a cure for the disease. I had many complications with my TC and finally had to get an ileostomy in Aug. 2007. My case is rare and very unusual. I have chronic slow transist and it is more pronounced in my small than it is for most people with CI. There are several people here who had the TC due to CI and are doing very well. I hope they respond to your post. The surgery is very helpful and you will benefit greatly by having the TC. I wish you all the best. You have stumbled upon a wonderful forum. Keep posting questions and we will be happy to help you.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/14/2007 1:37 AM (GMT -7)   
Angela,
I had a proctocolectomy due to Crohn's and have a permanent ileostomy, so I can't answer your question about having a TC for CI, but a lot of the people who post in the Ostomies section under the topic "Total Colectomy" have had a TC for CI. You'll definitely want to read their posts and post your questions there. They are so kind and a wealth of information. I'll be praying that your surgery is a success! Please keep us posted on how you're doing after surgery.
Take care,
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06. Remission since surgery.
 
Pain-free, med-free, and very thankful to be healthy again :)


Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 12/14/2007 6:17 AM (GMT -7)   
ANGELA - First, let me tell you that it's only natural to be scared and nervous going into this sugery.  Secondly, please seek the "thread" TOTAL COLECTOMY in the "ostomies" forum.  You can and will find a wealth of information there.  There are several "PARTS" to the TOTAL COLECTOMY.  The best advise I can give you is to go "BACK" to the many "PARTS" - as far back as you can - prior to your surgery (not many days I see).  Don't feel too overwhelmed if you cannot read all of the posts - there really is a lot of information.  Try beginning somewhere in the middle (PART 11 or 12).
 
I hope your surgeon has answered your questions and concerns and what you can expect post-op.  Just keep in mind that everyone is different and their personal experience is also different.  This is a HUGE surgery and there is NOTHING easy to it.  I don't believe in sugar coating things and that honesty is the best policy.  For me personally I felt like I had been ran over by a truck and didn't begin feeling back to par until week 16 post-op.  However, I would have this surgery all over again in a heartbeat!!  The 16 weeks of healing compared to 43 years of pain and suffering and never knowing what "normal" was - I gained a life I didn't know existed.  There have been a few bumps in the road for me personally in my first year post-op, but nothing compared to the many years pre-op.
 
I don't mean to alarm or scare you - others have had an easier time - a quicker healing time and back on their feet within six weeks or so.  This is a proven than everyone is different and their case unique.
 
Please seek as much information as you possibly can in the "TOTAL COLECTOMY" thread.  It's the best gift you can give yourself.  The people are so wonderful and caring and always willing to help you thru anything.
 
 
 
 
 
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 12/17/2007 7:44 PM (GMT -7)   

Angela,

My name is Lizzie and I too have colonic inertia. It has been just about eight years. I am having a TC, but it is scheduled after yours. I am just as scared and nervous as you. If you need anyone to talk to I am here. I do not have the best advice becuase I need it myself. I do suggest reading the TC inserts. They gave me the best advice. Hope your well. 3 more days.


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 12/18/2007 8:39 PM (GMT -7)   
I had colonic inertia. Had my colon removed Oct 07.

Not to scare you but it was the hardest thing I've ever done, and I'm no wimp. But now that it's two months after I'm feeling soooo much better. I can eat whatever I want and go to the bathroom.

I have MS and it seems the MS shut down the nerves regulating the colon. So hopefully I won't have trouble w/ my small intestines.

I did have a lot of pain. Went to my post op two weeks ago and the doctor gave me some pain meds b/c my small intestines were spasming. But he mentioned how stress effects the intestines so I decided to try and take my xanax I have but rarely take and that has helped wonders. I haven't even taken the pain meds.

Some ppl's surgery goes smoother than others. I was in the hospital twice as long as they had told me I would be, but my body is doing much better. I'm very glad I got the surgery and have no regrets.

Good luck and keep us posted!!

Kim

angela38
New Member


Date Joined Dec 2007
Total Posts : 4
   Posted 2/4/2008 12:15 PM (GMT -7)   
 hello everyone, its been a while..just logged on and read the many replies i had when i joined in dec07, 7days before a total colectomy..thank you so much too all the people who sent messages, i really appreciate it..how did it go? a total nightmare!!!!!!....had first op on 20th dec, unfortunately had complications post-op and went for laparotomy and division of adhesions on 2nd jan, followed on with central line sepsis, so 10days in itu and 5wk hospital stay..good news? yeah, so far im going too the toilet daily, several times but with NO MEDS!!!!!!!!..pains still a big issue, muscles are so sore but getting better everyday..wound is looking great and healing well..heres hoping small bowel continues to behave, so far so good. :-)                               
xx a xx


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/4/2008 5:03 PM (GMT -7)   

Congrats on your progress now that you got the surgeries out of your way!  Keep us updated on the good news..

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 2/4/2008 7:38 PM (GMT -7)   
Sorry for the complications and long hospital stay.

But glad you are on the mends and things are moving along well. It took me a good 3 months to finally start feeling better and the pain to start easing.

I still have pain but it's manageable.

TC
Kim
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