I could have written that post. Seriously. I have been sick since June, had my surgery in August cause I was basically dying, after surgery they decided my UC was indeterminate, and I've had rectal spams and a lot of bleeding. My doc said it could just be the UC in your rectum and tiny piece of colon they leave to form a J-pouch. If I understood correctly, when they do the j-pouch they remove some of what was originally left, because the j-pouch is really formed from your small intestine. They just leave stuff so your muscles stay strong, and you're not sewed up for the j-pouch surgery. According to my Doc, the UC symptoms will go away after the surgery. The thing we indeterminates have to worry about
is pouchitis if we actually have Crohn's. UCers can develop pouchitis, but Chronies are more susceptible. I'm no Doctor, but that was the way I understood what my surgeon explained to me. He didn't seemed concerned with the UC symptoms now.
It sucks though. But, if there's a light at the end of the tunnel, it's more worth it, right?
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
Surgery August 24, 2007. Home now!