ileostomy reversal

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New Member

Date Joined Dec 2007
Total Posts : 1
   Posted 12/15/2007 11:53 AM (GMT -6)   
Hi my name is Aaron. I'm 18 years old and have had an ileostomy for over a year. I've been living with hirschsprung's disease for all my life and wasn't even diagnosed until I was almost 17. Thats when I got a temporary ileostomy and have hated it since. But fortunatly I'm scheduled to have it reversed this tuesday (YAY!). And I was wondering if anyone had any info that they would like to share about their personal reversals. But more specifically I was wondering (my last surgery I had a urethra catheter put in) what are the chances of having a ureatha catheter put in? They said they will try to do it laparoscopicly but they might have to open up my previous abdomen incision. I don't know if I make any sense and sorry for the spelling errors. Any input will be appreciated.

Regular Member

Date Joined Jul 2007
Total Posts : 65
   Posted 12/16/2007 11:14 PM (GMT -6)   
Hello. I have (had) Hirschsprungs Disease also.  I was diagnosed when I was 4. I am 30 now. My HD is pretty severe. I have had 21 operations for Hirschsprungs. Including 4 colostomies and 1 ileostomy. I had my colon removed completely about 5 months ago. Had complications and a week later got an emergency ileostomy. I kept my ileostomy for a few months and got it reversed a couple months ago.
I'll be honest, for me the reversal was the toughest surgery. I have no idea why because the reversal is supposed to be minor compared to what I went through before. I was sick for about a month after I got home and had to be put back in the hospital twice. I just had such a tough time. It slowly got better though. But my story most likely will NOT happen to you. Most come through it fine. I breezed through my other 4 reversals with NO problems.
After I woke up from the reversal surgery I only had a catheter in my bladder. But no NG tube in my nose. Thank God. I had an "open" surgery. I wanted it to be done lap but I have had too many previous abdominal surgeries. Therefore it wouldn't have worked because of the scar tissue.
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