Had ileostomy and offered chemo but not taken it?

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anne h
New Member

Date Joined Dec 2007
Total Posts : 5
   Posted 12/16/2007 5:51 PM (GMT -6)   
Hi everyone back again for some more advice.
My father has been offered chemotherapy as a back up to prevent his cancer from possible coming back after his ileostomy.  The onchologist said it is 5% more beneficial to have chemo than not have it.  The chemo would be in tablet form for 6 months and the side effects are supposed to be really bad.  Has anybody not taken the chemo and are ok?  If he does not take the chemo he would have his reversal in just two months or so and would be monitored with blood tests, scans etc to check on any rodent cancer cells that may go else where is there are any.  He is Seventy coming up and as you all know not coping well with the situation he is in at present (see previous posts).  I just feel that getting back to normal would be better for him than having to go through another 6 months of possible hell.  Any advice would be welcome.  Thanks.

Regular Member

Date Joined Jul 2007
Total Posts : 275
   Posted 12/20/2007 1:28 PM (GMT -6)   
I was asked that difficult question. Chemo, with the possiblity of ostomy surgery if it didn't get all the cancer or just go straight for surgery and forego the chemo? My oncologist was very concerned about more weight loss on the chemo. I had only had it for a week along with the radiation and was already down to 72 pounds. Plus having Crohn's, I was going about every hour and dehydrating terribly. I did make the choice to quit the chemo and go ahead with the surgery. His doctor really should have him weigh all the outcomes and help him make the right decision. I know as a family, we got together and discussed it at length with the oncologist. Good luck to you. I hope everything turns out successfully.
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.

Regular Member

Date Joined Apr 2007
Total Posts : 385
   Posted 12/20/2007 10:00 PM (GMT -6)   
Oral chemo is a lot easier to deal with than regular chemo. I know someone that finished it for rectal cancer and he did fine with it.

Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.

New Member

Date Joined Dec 2007
Total Posts : 2
   Posted 12/30/2007 12:37 PM (GMT -6)   
I am a bladder cancer survivor. Before my bladder and everything else down there came out, the Urologist felt that the cancer had NOT spread through the bladder wall. Much to his and my surprise, the pathology of one of the lymph nodes removed from the groin showed a few CANCER CELLS. This meant three months of intensive Chemotherapy. I was sick 24/7 for the whole three months. I will admit it was hell. When it was over, it took about a year for me to get back to my old self. I vowed that I would never take Chemotherapy again.

Today, I have changed my mind. The Chemotherapy is the major reason that I am still alive today, eight years later. If my cancer comes back and taking Chemotherapy can give me a few more YEARS of life, I would do it again and be sick 24/7 for another 3-4 months.

I hope that you can convince your father to take the chemotherapy. The Urologist or Oncologist must have a very good reason for suggesting it. I was not given a choice. It was ' take it or be dead in a year or two. I am going to turn 70 this April.

Below is a link to my personal blog outlining my fight with bladder cancer since diagnosis in 2000. Take a look if you have time.

Give your father my best.

A surviving bladder cancer patient.

My personal fight can be viewed at:


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