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Micheal J fox

Chronic Illness Forums
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Parkinson's Disease
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Micheal J fox  
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shadow101
New Member
Joined : Sep 2009
Posts : 10
Posted 10/25/2009 2:33 PM (GMT -7)
I read his new book Always looking up it really inspired me to not give up in life even if a illness such as parkinsons trys to tear us down. I want to help find cures for diseases some day when i am older. I am taking a interest in biology. It really must be hard having parkinsons. If you have it how do you get by with your illness what helps you in every day life not to give up?
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Ronnies_girl
New Member
Joined : Oct 2009
Posts : 10
Posted 11/1/2009 7:56 AM (GMT -7)
Hi! I don't have PD but my Mom has had it for 16 years. It has always been just my Mom and me and when she was diagnosed with PD, in a way I was too. I live it with her. We have always talked openly about how she feels about life with this disease. My Mom has told me that PD has opened her eyes more to the beauty that surrounds her, how she has learned to treasure the small things and she has said that seeing the people she loves everyday gives her hope and strength. Somedays are better than others, the good days we fill with laugher and outings and the bad days we just take minute by minute and "remember when". She has been such an inspiration to so many people. I can only speak about what I have experienced with my Mom but I think it's up to each person to will themselves forward. My Mom has never let a test result, tremor or freezing stop her. She's now bed ridden, unable to walk, hardly can swallow, is in a diaper... but every time I walk in that door I am met with a smile and an "I love you".
She is amazing.
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shadow101
New Member
Joined : Sep 2009
Posts : 10
Posted 11/1/2009 5:31 PM (GMT -7)
Wow what a good experience. Family sure can build us up were facing problems and I am glad for my family.
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Ronnies_girl
New Member
Joined : Oct 2009
Posts : 10
Posted 11/2/2009 12:33 PM (GMT -7)
Me too! Watching my Mom go through all of the stages of PD with such grace and courage has taught me things I never imagined I'd learn.
Take Care~
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Nana Monster
Veteran Member
Joined : Jul 2009
Posts : 968
Posted 11/2/2009 7:31 PM (GMT -7)
My son is experienceing early stage parkinsons at 35. He has started with arm tremors and it sometimes

affects his speach and neck twitching. He found out that because he has tealangctasia (probably spelled

wrong) it is killing off brain cells and causing the early PD. The tealangctasia is a blood disorder which can

affect brain, kidneys and other organs. He also suffers from a rage oriented siezure disorder and Raynauds.

Seems like the deck is stacked against him. Unfortunately, his girlfriend, who is the mother of his 5 year old,

thinks he is faking it. Boy, does this sound familiar. I went through the same thing when I tried to get him

tested when he was a kid and his Dad said we were just getting him mad and that was why he was getting

so ticked off. WRONG. The EEG said he was one glitch higher than the textbook case of the siezure disorder.

He doesn't have any medical coverage so it's impossible to go to a dr.

               nana monster

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Ronnies_girl
New Member
Joined : Oct 2009
Posts : 10
Posted 11/2/2009 9:18 PM (GMT -7)
Hi Nana Monster,
I'm so sorry to hear about your son!!!!! That breaks my heart for you!!!
Is there any way he could apply for a state funded medical program?
I know here there are Doctors that do clinics that are on a sliding scale or even free if someone has multiple things going on...
Maybe someone on this site can make a recommendation about getting medical assistance?
What state are you in?
My prayers are with you!!!
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lizzy4451
Forum Moderator
Joined : Jun 2005
Posts : 448
Posted 11/3/2009 12:02 AM (GMT -7)

Shadow,

I was diagnosed with Parkinson's in 2001 - symptoms 2-3 years before that ('Oh yeah .... THAT's what that was.) I have been very fortunate to have had a slow progression.

 

What makes me not give up? 1) I have to believe that there will be a cure or significant advancement in the treatment of PD before it's too late for me, and 2) I believe there was a reason this happened to me and that the reason is for me to use my strengths, in combination with other's strengths, to help others with PD.

 

'Help' has meant different things to me including: starting a young onset PD support group, going to Capitol Hill with Parkinson's Action Network (PAN) to lobby for PD legislation, educating PD folks on the benefits of exercise for PWP at Rock Steady Boxing, and most often ... listening.

 

I'm a fighter. I ain't goin' down .. and if I do, it won't be without a fight. Dukes up!


Life is a dance. Don't sit it out.  ---- Jackson H. Brown

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Nana Monster
Veteran Member
Joined : Jul 2009
Posts : 968
Posted 11/3/2009 1:26 PM (GMT -7)
New York and unfortunately he makes too much to get state ins. My Mom had  the same problem when she

was alive....she made $3 too much a month even though at the time her meds cost almost $200. That was

20 years ago. Thanks for the prayers, we could sure use them.

Is it heriditary? My Dad died of parkinson complications.

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yekkimo
Veteran Member
Joined : Apr 2003
Posts : 1283
Posted 11/3/2009 4:29 PM (GMT -7)
No hereditary link yet.My grandfather had it.I'm currently involved, along with many others,as a research volunteer in the search for a genetic marker.If one is found then in many cases pd can be identified before symptoms show ,and more effective treatments or even a cure is possible.Hope for all.Ed
Ed-Moderator Parkinson's disease forum.

Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.Meds:Stalevo,Mirapex

support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.

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shadow101
New Member
Joined : Sep 2009
Posts : 10
Posted 11/8/2009 2:33 PM (GMT -7)
Wow when readind these stories I really felt moved and I am glad that your all not gving up. my favorite saying that i made up is when life brings you down to your knees dont give up. I also prayed for you guys and I am very proud to hear your not the type to give up thats very encouraging to me and others
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