Thank you both for your response!
My mom has been to the doctor 3 times this summer seeking relief.
The reduction in medication was to address the hallucinations. While things have somewhat improved, especially at night, she sleeps solid most of the time, the days have been progressively trying with the random outburst of crying.
Strangley, I approximate 15+ years ago, she demonstrated the crying but it was so infrequent that my family attributed to depression or frustration. When she shared the news with the family, she had been living with PD for a few years and yet as a teenager I had no clue for what PD is, was and would be as she lived and the impact it would have on my family.
My family participation is mostly reactive. I think is mostly because they don't understand the condition fully subsequently the care and support she could be getting falls short of what they are capable of giving. While I have implemented serveral strategies to reduce many of her needs, the impact on my dad and myself, many more remain that I am unable to manage. Thankfully my dad is living and assumes a great deal of the responsibility, he is a senior as well in decent health. However, the trickle down affect is also making sure that he gets a break as well.
My mom will be getting a caregiver in the next few weeks to help her and to take some of the load off my dad. This may be challenging as well because she is a strongly proud and independent woman. Its unfortunate that being the last born of 5 children that I assume a significant amount of this responsibility but I could not imagine living my life without trying to doing something for my folks. Thankfully here sister helps with doctors visits. Definately a relief.
With regards to fitness and activity, I spend 3 days a week with her, we get out to enjoy the beautiful Chicago lakefront somedays and other days we excercise. I have progressively work towrads trying to get her involved with support groups but it is a struggle. Generational differences greatly affect how she views herself. I constantly remind her that she is not alone and there are people in this world willing to help.
So my presence in this forum is all about finding relief for myself and to gain clarity. I have conducted a vast amount of research and continue to remain positive. I am at a point where i am shopping skilled care facilities for what I beleive is next in the evoluytion of PD.
Thank you again for your support, it menas a lot!