I am nowhere near managing PD....I have made some advances but only to an extent.
I have said at other times I could be doing a lot better but I am still lost.
I suppose the problems are in two areas....after working a full day I am too tired for anything much, unfortunately I often have to work on week ends too.
The second problem is that I am capable but too slow.
What all this means is that I cannot do physical activities with others, yet I am able to do such things but due to me being on my own I do not.
I have very limited support at home because my wife has a very sick father, her mother died of PD, she has had big problems at her previous work etc and I do not think she has the capability to assist me.
An example of what the situation is...in April a group of us are going overseas for several days. I ceased going years ago for three reasons....I cannot manage the flight...the pain I get from sitting in a plane is too much....I have tried all the usual things like moving around etc. The second reason is when I get there I am too tired to get out and do things. The third thing is that I am too slow for everybody so I am left at the resort by the pool and by myself.
My work has become my life because I am able to do it successfully.
There has been one very bright light in my life and that is my personal trainer who to my total amazement understands PD...she is so observant and encouraging and as a consequence our sessions are succesful, some more so than others.
I am now after a psychologist that understands PD.
On the subject of writing a will, yes I have one.
On the subject of life span...I am 56....I want to see my 60th birthday and a few more after that...the object is to see my boys grow up a bit and then the greatest thing to happen to me would be a sudden heart attack when I am 60+ but before I decline too much.