Mom's Unresponsive, sleeping all the's scary

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New Member

Date Joined Nov 2012
Total Posts : 2
   Posted 11/28/2012 5:03 AM (GMT -6)   
Dear all,
I am new to this forum. My mother has had Parkinson's for the past 20 years.
She is almost 94.
She lives in an independent setting in a community for the elderly and has had a full time caregiver for the last 7 years. Yes, we are blessed to have been able to do this for her.
She is running out of money just when we need it the most.

That may all be a mute point. Mom's PD has gotten worse in the last 2 months. Much worse.
She started having swallowing issues, she falls, we couldn't keep her in bed.
Hallucinations have been increasingly wild. She is angry and bellicose often. She has been focusing a lot of her anger on me. Oh well. It's been crushing for me to witness.
It's so hurtful but this isn't a time for that.

Two days ago, Mom, who has had a big appetite all her life is now not interested in food. She has wound down so that you couldn't understand her speech, she ceased speaking and now can't speak and she sleeps all the time. Sometimes she is responsive, and will make a sound to indicate that she hears you. Other times she is completely unresponsive.

I so wanted to ensure that Mom's last days were nice and I was not able to accomplish that.
I am here for her. I hope that she isn't feeling alone.

This is an awful disease. I don't know what to do. I don't know what to think !
Does she have weeks? Months ?
She just got over pneumonia and could easily get it again as all the congestion isn't gone.
I don't know how to help her.

New Member

Date Joined Jan 2012
Total Posts : 13
   Posted 11/29/2012 8:47 AM (GMT -6)   
Hi mslaurel  I know exactly what you are going through except my mother was only 71 and was finally diagnosed at age 64 dont know really how long she sufferred with the pd took a few years to get someone to diagnose her.  It was only about 2 months since my mom started sleeping all the time that she passed.  I took care of her til the end with the help of my sister and hospice and the one thing that gave me piece of mind is that she went to sleep and just went on without suffering anymore which gave me great relief that she was not going to have a horrible last few weeks of life on this earth.  At times she did get a little difficult and irritated but we got through it I would also like to say that I know that even though mom wasnt responding anymore she could hear me and if you have hurt and unresolved issues this is the time to talk to her and let her know or you may regret not getting that off your chest I did and I feel much better for it

New Member

Date Joined Dec 2012
Total Posts : 1
   Posted 12/25/2012 1:18 PM (GMT -6)   
I got a call at 1:00 AM from medalert dad fell again. The disease is progressing faster now. He is at the ER while they take blood etc.. I hope they admit him for in-house therapy. The hardest decision right now is to determine whether he can still remain at home or move to a nursing home. I don't want to impose my will on dad and stepmom. I would prefer they make the decision together. Thanks for listening. I feel like all on here understand the dispair that accompanies this disease.

Regular Member

Date Joined Aug 2008
Total Posts : 480
   Posted 1/17/2013 9:41 AM (GMT -6)   
Caregiver 101,

May I ask how your mom died? That seems awfully quick for a PD patient from time of diagnosis. Sorry about her passing.

New Member

Date Joined Jan 2013
Total Posts : 1
   Posted 1/18/2013 2:06 AM (GMT -6)   
My dad has had PD for many years. Up until last October he was in an assisted living center and lived alone in his tiny apartment and was able to go to the dining room using his walker. His speech was often slow and he struggled for words but basically he could still comminicate and he enjoyed watching ball games on TV. Then suddenly (almost overnight) he took a turn for the worse and he fell. He was taken to the hospital and from there he went downhill very fast. He was living out of state at that time but we (my 2 sisters and I) drove there and brought him home to a wonderful nursing home here in his original hometown. Now he has good days and bad days but even the good days are pretty bad. He mumbles and is delusional and failed the swallowing test. He eats very little and we can barely understand what he says. He sleeps a lot but he is still antsy and tries to get out of his wheelchair or his bed. The staff has alarms set everywhere so they can get to him quickly. They are very good but it is so sad. The one thing that comforts me is that he never complains and doesn't really seem to be in pain or even aware of his sad situation. Sometimes he laughs and tells me the other residents on his floor are crazy. (Most are as bad or wors off than him). My sister and I each visit him twice a week and I usually take a Wendy's Frosty for him. He likes that! (He's on pureed food and a thickened liquid drink). We even took him a McDonalds hamburger last week and he loved it! The nurses said it was ok as long as we watched him eat it and he didn't choke. It's hard to have a conversation so I just hold his hand and sit with him and we listen to music or watch the birds in the beautiful birdcage at the nursing home. This is a heartbreaking disease! May God have mercy on and give peace to those patients who are suffering from PD.

Regular Member

Date Joined Aug 2008
Total Posts : 480
   Posted 1/18/2013 8:05 AM (GMT -6)   
So so sorry. You are great daughters and yes I know what you mean and so scary to see what's to come for me. Falls are really bad. People do go downhill from that because you don't know what you damage from hitting the ground and recovery is very slow. I think as long as you keep his spirits up he may improve. The willingness to heal and get better is very important. If a person gives up then they've lost more than half the battle. Getting sick sucks. Even a common cold has no cures. What do we expect for something as devastating as PD and Dementia?

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 1/18/2013 7:34 PM (GMT -6)   
Call her doctor and ask for a home eval
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