Showing early Parkinson symptoms - Need some advice

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soccermom54
New Member


Date Joined Sep 2016
Total Posts : 1
   Posted 9/22/2016 6:03 PM (GMT -7)   
Hi,
I am showing some early signs of Parkinson Disease. My father and grandmother had Parkinson's. My father had a mild case and had a stooped posture, but no tremors. My grandmother had tremors. I am starting to have a tremor in one thumb and am having sleep disturbances (yelling and kicking at night) I would like to find the best doctor possible and was wondering if anyone had a recommendation. I live in the Northern Virginia area and would be open to participating in clinical trials or trying natural supplements.

Thanks,

deen521
New Member


Date Joined Sep 2016
Total Posts : 6
   Posted 11/8/2016 7:09 AM (GMT -7)   
Hello, Finding the best doctor possible is so important and I recommend finding a movement disorder specialist in your area. Try calling the Parkinson's helpline at 800-457-6676 for information. I called many years ago and they gave me the name of the top specialist in my area. Also, I applaud your decision to participate in clinical trials! Sign up on line to the fox trial finders (foxtrailfinder.michaeljfox.org) and they will match you up with studies in your area. Best of luck to you. I have been living with PD for many years and life is still good!

CML
New Member


Date Joined Nov 2016
Total Posts : 3
   Posted 11/12/2016 6:48 PM (GMT -7)   
I have been diagnosed with PD. I had a normal DatScan, but I am doing much better on Parkinson's medication. My neurologist (movement disorder specialist), I think, is confused as well! Do I have Parkinson's Disease or not? She says only time will tell, but I'd sure like to know something now.

deen521
New Member


Date Joined Sep 2016
Total Posts : 6
   Posted 11/12/2016 9:29 PM (GMT -7)   
There is no definitive test that tells you that you have Parkinson's disease . Usually your doctor will give you the diagnosis after blood work and an MRI and of course observing you I believe my neurologist knew I had PD based on my symptoms even before any testing.

PDspouse
New Member


Date Joined Jan 2017
Total Posts : 2
   Posted 1/11/2017 8:12 PM (GMT -7)   
Sorry to read this. I am a PD spouse. My hubby has been sick for 9 years. I am a nurse. Definitely seek a good PD neurologist. (careful, some see mostly MS and seizure patients). Find a support group for education on a monthly basis and to make friends with same!!
However, once you have your diagnosis,.... you are pretty much headed down the same road. Same meds. Most of the same symptoms. Don't get too excited about having a great doc. They all give the SAME meds. I wish marijuana was legal here. It really helps they say.
Best of luck,
PDspouse

allyburcat
New Member


Date Joined Mar 2017
Total Posts : 1
   Posted 3/2/2017 8:10 AM (GMT -7)   
I, too, am a PD spouse of some 12-15 years now, and am also a retired nurse. I live on Delmarva, so I recommend Johns Hopkins who has a movement disorder clinic. We were treated very well there, but couldn't continue because we did not have MD medicaid, living in DE as we do. Godspeed.
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