I invite you to use this space to address caregiving issues. This is a two way street we are on, and we need to better know how it feels to be in the shoes of someone w/PD.
Some issues I am facing with my beloved are: 1) medicine changes, 2) constant fatigue,
3) sleepiness, 4) emotional changes,
5) skin problems, 6) loss of appetite, 7) diabetic needs, 8) social withdrawal
Some issues I face within myself include: 1) loss of contact with church/social community 2) not having or making the time (being too tired to make it happen) to do the things I enjoy (flowerbeds), 3) being outside, taking walks 4) getting out to grocery, etc. without worrying and watching the clock, 5) difficulty to travel to see family, or vacation trip.
Each of the above could encompass long discussions and exchanges of ideas, and that is what I am asking from you. A way to exchange ideas and suggestions on CAREGIVING so that together we can make each day the best we can for our beloved AND ourselves.
This is an excellent Parkinson's Forum which is run by Ed, a very gracious person who has scheduled a chat on June 7th, at 8:00 EST.
From your Forum, I have met new people and have learned more about everyday issues we face that the drs. and books do not/will not tell us. Thank you for your help.