I am new to the "HealingWell" chat. I was diagnosed with early onset PD back in January of this year. I was placed on Stalevo and Sinemet and have been doing very well, in fact most people would never know that I have this disease. However, I am being referred to a movement disorder specialist and my neurologist and I have decided to slowly take me off my meds before I go to the specialist so that they can get a good picture of my symptoms without the meds. (Otherwise there is not much to see.)
Has anyone else ever gone through being removed from all meds and then gone back on them? My main concern is that when I was first placed on the meds I was very sick for about 3 months and lost a large amount of weight. (Not that I minded loosing the weight, it was a pleasant side-effect; but the sickness was almost to the point of debilitating me.)
Also, if anyone has been to a movement disorder specialist and could give me some idea of what they may do differently than the neurologist I would appreciate hearing from you.
THANKS! And, God Bless you all!