I am not sure if the disease is advancing more or what is happening with Mom's body, specifically her bowels. Saturday brought 3 BM's, not too bad to deal with, Sunday was only 1 BM, but very loose and the odour was unreal. Today was 1 more, but worse than anything I have dealt with in the time that Mom has been here. Mom does not even realize she has gone and she takes no notice of the smell. Thank goodness for Mom's support worker this morning, between the two of us we were able to clean her up without too much rolling or discomfort to her.
Her willingness to get up and out of bed has decreased. Mom has asked more and more to remain in bed. The sleeping continues, but at times when she wakes from a sleep, I don't know what she will do. She will be nasty, or very sad with much crying, sometimes just a lost look on her face. If she isn't sleeping, then it is staring and more staring. She continues to be unresponsive and when she does answer it is usually "yes" or "no" or "I don't know".
I am not sure what lies ahead for Mom. I'm not sure of how to make things better for her. When is it time to stop all the meds, it is only Sinemet & Comtan 3x/day? The drugs are not doing anything to increase her mobility. I have asked Mom and she is not in pain.
If any one knows where I can find out more information about the "end" stage of PD, please let me know. As I have said before, the hallucinations are still here, she has dementia, non-weight bearing and the appetite is decreasing, what next? I know that no one knows for sure, not even the doctors, but it is so frustrating. The days are getting longer and very lonely.