Hi All!! Thanks for all the advice & info here. I have had Parkinsons disease now since 2003
when it was first diagnosed and I have the rigidity, spasticity in my left leg & thigh. When I
first started Dr., ing for Parkinsons, they started me on Requip, but later as of 2005 I started
on sinemet cr and went from 100mg 3x daily to 200mg 3x daily in 2006 until the fall of 2006,
when I started to have more rigidity problems and then my dosage was increased to 200mg 4x
daily and then Comtan was added 1x daily, probably largely as a result of some of my own
inquiries, I made to the Ask The Drs. Forum for Parkinsons.
I do feel that I have been getting around better than when I was on the 3X per day schedule,
except for an early morning dystonia problem in my left foot that I am still trying to find a solution for. My mother had Parkinsons and was on a lot of meds and I do think that a person
can end up taking too many things which cause side effects also. I did not agree with that
increase in the sinemet dosage and had some opinions on it given to me from the Drs,. from
the Ask The Dr. Forum. I still went along with it and am on the 50-200mg sinemet 4x daily.
Then they wanted me to start on Mirapex, which I did for a while at the lowest dosage level,
however, after my last visit to the Dr., they wanted me to increase the Mirapex, which I decided I didn't want to do until I had another opinion. Mirapex, may be alright for some, but
I have just read too much about it in the higher dosage levels, so I decided to get off of it at
least for awhile. The Drs. forum suggested Azilect which I started about a month ago from a
new Dr. who's a Parkinsons Specialist. So, I am on this now and in some respects, except for
the early morning dystonia in my left foot which is very crippling for a few hours, I seem to get
around alright. I may have to cut back on the sinemet or try and spread it out if I am having
OFF dystonia problems, which I suspect. Maybe the Azilect will have to be increased, I don't
know. Just would be nice to be freed from the Dystonia problem if that's possible.
Anyway, I appreciate all the ideas and input on this forum and maybe through a sharing of each other's problems we all can learn new ways of dealing with this disease. If anyone wants
to email me on anything, as I do like to keep up on whats going on with things, they can write
me at email@example.com.
Thanks and Have a Great Day