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biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/28/2007 8:32 PM (GMT -7)   
I don't know if I can word this right but will try.
 
You ladies on this forum are truly amazing.  You adjust to this  PCa situation much better than we guys do.  That's probably because you understand what we are going through much better than we do.  The possibility of peeing our pants and not being able to get it up just scares us to death, to the point where we have a difficult time even thinking about it.  Yet you are always there, comforting, supporting and loving us.  What a gift you are - not only to your men but to all of us guys that log in here.
 
My first posts in November 2006 were answered by Bluebird, M.Kat and Linda(lawink).  Your responses surprised me.  You treated me with respect and understanding even when my statements and questions were so naive.  Because of you I stayed here and would probably not be alive now if I had left.
 
Then I read Swimom's responses.  She scared me at first by her frankness and knowledge.  I wasn't sure if I wanted to risk talking to her.  But when I did, she was so very caring and helpful.  She worked me through my misconceptions and ignorance of PCa and its effects.
 
Later I read Susan, Tanya, Lana and Chayna whose posts are so sweet and caring.  They hug my heart whenever I read them.  Their support and love for their guys comes through each time they write.  And their support for each other is amazing.
 
Finally my wife MaryLu is my primary support.  She props me up when I am about to fall over.  She doesn't post here very much but insists that I keep her updated on you all.  And she sends you all her love and thanks.
 
I risk offending any of you ladies that I have not mentioned and I apologize.  Be assured that you are in my heart and thoughts.
 
Thank you all from the bottom of my heart.  Lets get well together...
 
Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/28/2007 9:17 PM (GMT -7)   
tongue   tongue tongue Jim, you do know how to sweet talk a woman...LOL! 
 
A bit of frankness tossed with a little knowledge and blended just right with some good ole fashioned hugs is my own personal recipe. Turns out a bit different every time but the ingredients are still the same. :-)
 
It has been both an honor and a pleasure Sir! Thanks for all you do to make the forum a special place for all our men and women out there seeking respite from fear, comfort during stormy hours and of course, for all the whoo-hoo's! The list of names I'd like to thank is far too long. Lets just applaud everyone!  :-) :-)
 
God Bless,   Swim
 
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/28/2007 11:22 PM (GMT -7)   

    I second what biker has said...the Gals here are great.....thanks to all of them....

     KW

 


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/29/2007 1:15 AM (GMT -7)   
Ditto...Ditto...

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


Michael's Wife
Regular Member


Date Joined Aug 2007
Total Posts : 150
   Posted 12/29/2007 7:47 AM (GMT -7)   
Jim, what a sweet post. You guys are all amazing to me with your stories and experience. My husband has rarely (if ever) come here, but I know it has helped him to hear me relay some of what is shared. It really helps him to know that he's not alone in this.

Ellen


Husband: Age 58
Stage: T1c
Gleason: 6 (3+3)
PSA: 4.4
Biopsy: 12 samples, Adenocarcinoma involving 3 cores, right side only (95%, 90%, 30%, discontinuously)

Pre-op prostate study - November 13
Brachytherapy - December 12, 2007


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 12/29/2007 8:36 AM (GMT -7)   
You worded that exactly right :-) back at ya, Jim!

Here's wishing you & yours a beautiful 2008,

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/29/2007 8:46 AM (GMT -7)   
You are so right. If it had not been for my wife meeting Bluefird and Buddy, I would not be where I am today. Thanks so much for my wife (partner) with this thing and her unwavering support and the support from everyone on this forum.

Mika

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/29/2007 10:47 AM (GMT -7)   

Wow Jim! Thank you for such an incredibly sweet post.  I joined this forum in the hopes to become as educated as possible for my father and in the process have met the most amazing, caring and thoughtful people.  It amazes me the openess that flows in here.  Due to "the guys" sharing their experiences, we are able to share it with the men in our lives and hopefully it has made the process a little easier.  I know it has in my father's case.  I agree with you that the women ROCK!  I have found support in so many of these special gals.  Thank you all!

I find inspiration every day in this forum and that is why I have become a healing well junkie :-)

Love and less than 0.01 PSA's to you all in 2008!

Chayna


Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupon beg. Dec 03, 2007 2 yr
Radiation soon to follow
 
 


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 12/29/2007 12:25 PM (GMT -7)   
Agreed, all of the women here are great! Thanks for participating in our fight, treatment and recovery!
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .545 (5 for 9)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 12/29/2007 3:01 PM (GMT -7)   

Me too,

I can only add my heart felt thanks to all you wonderful girls that have given so much.

I hope all of you have a very Happy New Year (which you richly deserve).

Glen & Jane


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. margins
DaVinci surgery on 02/23/06
Last PSA 08/26/07 @ 18 months "0"


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 12/29/2007 5:34 PM (GMT -7)   
Dear Bright & Beautiful Ladies,

It was around Christmas 2006 that my biopsy came back with an invitation to surgery.
While confident in my behavior, I was so scared, so confused,
        - and strangely for the first time - so very alone, even among many close friends.

If anyone would have tried to tell me a year ago that I would know and trust
  so many real people of your caliber
  that can make me forget that indescribeable lonliness -
     - and be honored to count them as friends,
     I'm sure only your charming selves could have helped me imagine such kindness.

Many heartfelt THANKS from the Texas Hill Country.

Your Friend,
CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
Nine month PSA <.008
:)
At 9 months, ED treated with Pump Exercises & 100mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/30/2007 4:22 PM (GMT -7)   
Hey Jim,
 
You really have a talent for putting your feelings into words!  I second your motion and emotions! tongue
 
The women here have been and continue to be terrific!  Your opinions are soooooooo very important to us.
 
Of course, I can't say enough for our star moderator, bluebird.  What a gem!  Thank you for caring so much and for keeping us "in line" at the same time!
 
Sincere regards,
 
Barry
 
 
 
 
 

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 12/31/2007 7:58 PM (GMT -7)   
That is so sweet ((((((jim and marylu too)))))))
 
The girls on this board are Great!  But the guys have been very helpful too.  I remember lots of chats with both the boys and girls on here that not only made me understand things better, but just were there!!  :)
 
What a great forum!!
 
Tanya and Ken :)
Happy New Year!
 


Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


myflyboy
New Member


Date Joined Dec 2007
Total Posts : 7
   Posted 1/1/2008 11:03 AM (GMT -7)   
Happy Healthy New Year to my new friends, my new family. My Joe has a CT scan Jan 2 to see why he still has so much pain (his surgery was July 2007) Pca found in 2 lymph nodes. Please, please pray for him. Please know that you guys are always in my mind and my heart and my prayers...THANK you all for giving me a safe place to come to and get comfort, knowledge, strenght and an extra boost of fight !
Hugs Margie and Joe

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/3/2008 3:31 AM (GMT -7)   

  tongue   Dear Jim *Our Biker90,

 

Your message touched many hearts ~ so I’d say the words were perfect!!  yeah

 

     Thank you….

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Jim & MaryLu…

            Thank you for touching my life.

“All that you are ~ reaches out and touches others

 in ever-widening circles of friendship.”

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

 

This thread made many things swirl in my mind and I wanted to say a few things.

I guess we can call it a mama bluebird moment (after processing a lot of thoughts that this triggered)… chirp~chirp~chirp  I know you won’t mind…that I’m going to include my thanks to the ladies in this posting. 

 

Jim *Our Biker & Miss MaryLu

   I remember your 1st posting!! back on 11-07-2006

       That’s when we first welcomed you ~ on a thread we started called….

Biker90's Page.... Welcome New Friend :)

 

What a powerful journey!!  Knowledge is Power and Power takes away the fear...

   Thank you so much for allowing us into your heart

        and for taking our hands to help guide you at a vulnerable time. 

                        Now ~ your hands are one of the strongest here on HealingWell…   yeah  

 

New Members ~ I hope you take time to read each and every post and reply posting on his threads (listed below)…  They allow you to see what a personal thread is all about…. Seeing the whole journey in only a few threads.. This is truly Powerful.. your path will be smoother having read Biker’s Journey…

 

And to know that we’ve shared more than cyber hugs…. Having felt the true warmth of your hugs will forever be in my spirit!  To see your wonderful face and Miss MaryLu’s as you walked down the corridor to our motel room in Seattle.  To see your smile across the dining table.  To feel the extra warm of a farewell at the end of the evening… as you and Miss MaryLu drove away in her beautiful, powerful, rumbling……Mustang…vvvvvvaarrrrrrrrrooommmmm 

Powerful car and Powerful feeling to go with it…

 

I wish to share you and MaryLu here with so many friends.

A face with a name adds so much to the journey…I know this to be true after meeting

Jim *Biker, MaryLu, Puget, Ray *Pasayten, and Avis *sun4pasayten this summer.

Thank you for allowing me to post it.

 

Jim*Biker90..,Lee*bluebird…&…MaryLu

click

 

I got quite a giggle when reading your comments about “Our” *swimom!!! 

I too was scared of her “at first”…I was new and didn’t know a whole lot and I would see her postings…. Shooting from the hip with her honesty and tough love.  As time went by the respect meter rose higher and higher… She posted this thread…Comfort when we need it  and I finally reached out to let her know my feelings…  I’m so glad I did!  Her knowledge and her strength of sharing ~ is a gift ~ to so many here on the forum.  We sure are glad you’re still with us Vicki…  your special touch is one of many who make this forum so “powerful”…

 

M.Kat opened the doors with sharing personal stepping-stones in the recovery healing process with ED… allowing others to open up and speak more freely. 

 

wittler ~ with her STAY STRONG…. Has remained with me to this day… my Blue Ridge Mountain friend…

 

GreenAcres ~ for allowing us to “reach back to her” during their journey and continuing to stay close.  “cheers dear friend”!!!

 

lawink ~ for being here for all of us and sharing a journey that has a few extra stepping-stones in your path… letting others know there is hope even with two secondary conditions.

 

Wicket ~ dear sweet lady… I’m thinking of you and still keep you close.

 

As I look back over the past 24 months since 1st being diagnosed (Feb 06) and 22 months since surgery (Apr 06)….  It truly takes my breath away ~ to see where we “all” are today because of HealingWell.com  (Thank you Mr. Peter Waite ~for this special gift and for giving us a little more latitude in our postings and our signatures due to the specific nature of our recovery…)

 

I would like to add my thanks to a few “special ladies” listed above who allowed me to walk closely with them on their path… and/or with “us” during the early stages of “Our Journey”.

 

To all the “new” ladies (  friends  ) who have shared so much with all of us over the past 21 months since we joined HealingWell….  I dare not mention individual names ~ with the thought of missing someone. You definitely know who you are!!

 

“YOU KNOW WHO YOU ARE”

~ because you will feel the warmth of bluebird wings touching you ~ when you read this!!!

 

Friendship

Click

 

 

  tongue Jim ~ Thank you for this special thread…  Hugs from Lee

 

Biker90’s Personal Threads:

 The beginning….>>>  Biker90's Page.... Welcome New Friend :) started by bluebird

Thread started 12-12-06

  Biker90's Cancer Summary

Thread started 03-18-07

  Biker90's RRP Journey & Updates - Nov. 7, 2006 - July 18, 2007

Thread started 07-24-07

  Biker90's RRP Journey 11/7/2006 - Current

02-17-07  Why We Chose Our Treatment Option

01-09-07  Too old for treatment?


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 1/3/2008 8:41 AM (GMT -7)   
AMEN Jim!
I can't add anything to your post except: Without the advice and support of my own wife, as well as the wonderful ladies on this forum, I would still be walking around with a growing cancer inside of me. Instead I feel alive, cancer free, and hopeful of the future! Thanks to you all, and please never feel as if your love and support is going unnoticed. Trust me, it isn't!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment.


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/3/2008 4:08 PM (GMT -7)   

You are a GREAT MAN Jim! You hit the nail right on the head! Thank you GIRLS, one and all!!!When I grow up, I want to be just like Biker Jim!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Your old friend,

Pete 


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 1/4/2008 7:47 AM (GMT -7)   
Well, well, well.  What a nice post to come into this morning.  Personally, I would have never made it through this process without the helpful insight of all of you - female and male.  The more perspectives we have floating around, the more information we get and the better we can make informed decisions.  My heartfelt thanks to all of you for picking me up, dusting me off and pulling me (and my husband of course) along the road to recovery.
 
Wishes for continued health for 2008.
 
JustJulie

siberian
Regular Member


Date Joined Oct 2007
Total Posts : 94
   Posted 1/6/2008 3:46 PM (GMT -7)   
I have not met all of the gals yet but SWIMMOM has been a great help to me. She has researched all she speaks about and is always right on the mark. I read these forums long before I started with posts,--and seeing her answers to the other guys inspired me to post, with the information I had gathered,---in an attempt to help all us dudes,---Again I concur with jim,---TO ALL THE GREAT GALS.

SIBERIAN (KEN)
age 68
diag 10/07/2007
T1c
Gleason 3+3=6
prostate 66gm
13biopsies, 3pos.
Have selected the Davinci proedure, to be done in Feb. 2008

Siberian
(Ken)


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 1/14/2008 9:54 AM (GMT -7)   
Hi Jim,

You are a real darling to put this lovely post up just before the new year. Thanks for your kind words. It was lovely to return from holidays to read your message. However as others have said it is all mutual my friend! I have found the most valuable sources of support here myself which I never anticipated, so thanks for your most welcome acceptance of us girls too. We do tend to see things sometimes a little differently I guess, and we are all pretty different and diverse I guess, united only by something pretty "deep" and rather beyond words, but you would know what I mean! Love to you and MaryLu. Tke care and we have all positive thoughts and prayers directed your way as you wait for your PSA result this week. Love Lana.
Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
PSA (2002) 2.1.  PSA (Nov 2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on Tuesday 17th April 2007 (Sydney, Australia).
Gleeson 3 + 4 = 7.  Cancer confined. Margins all clear, including bladder neck and seminal vessicles. No incontinence (thankfully).
1st PSA 0.01 - undetectable (June 07)
2nd PSA 0.02 - undetectable (Oct 07)
ED post-op recovery:  Good now with Levitra 20mg effective at 7-8 months post surgery (minimal (30-50%) response prior to 6 months on any meds).Continuing with Levitra 20 mg when needed now (at 9 months),  and noticing some gradual, spontaneous response without medication. Next PSA March 2008.


belindafeathers
Regular Member


Date Joined Aug 2006
Total Posts : 21
   Posted 1/14/2008 2:40 PM (GMT -7)   
Jim - I am new to this site as it took me a long time to find this site because it seems as if finding information about PCa is hard.  Most men won't talk about it--including my husband.  I am glad that I have finally found men and women alike that will share their experiences.  It does seem, though, that if you are operated on you have a better chance of beating the disease.  My husband's PCa has spread to bones and lymph nodes and so far doctors have not mentioned an operation.  He also has pain in groin area and ribs.  I have learned that I must find out the Gleason score though.  What exactly is that?  The doctor only talks about the PSA levels. 
 
I think the men out there who are willing to share and talk are in much better shape than someone like my husband.  He won't even tell me what he feels and even though I suggested a therapist, he won't go. 
 
Thanks to you all for your support.
 
Sandy 
Sandy


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 1/14/2008 2:54 PM (GMT -7)   
The Gleason Scale is what they use to rate the cancer.  Google for it to get an in depth course on it.  It is obtained either during the biopsy or after surgery pathology is done on the remove glad and attachments.  If you haven't had a biopsy or surgery, then all they have to go by is the PSA levels and a digital rectal exam to identify 'possible' cancers.  I think, not sure, that if there is spread to outside the gland, into the abdomen or bones, then surgery is no longer an option for the the vast majority of doctors in their treatment plan.  Radiation, Hormone Therapy, and sometimes Chemo is the usual course of treatment at that point.  If I am wrong, others will be along to correct me...lol

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacurect pump-
11/15/07  1st PSA-0.01, fully continent- no pads
12/17/07  ED- 3 mts.-continue Viagra and pump-no change-no response
01/01/08  First use of Caverject 2.5mcg, successful, erections at last

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