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peddler
New Member


Date Joined Dec 2007
Total Posts : 3
   Posted 12/31/2007 5:31 PM (GMT -7)   
I have read quite abit about ED successes and failures following prostate surgery but have not seen anything addressing a problem that I am having.
 
I am still trying to find a solution for the erection situation. Viagra did not work and I recently started using Cialis with some success. I realize that I probably need more healing time for the erections to come back, undoubtedly with some prescribed assistance.
 
My main concern is the lack of intensity when I do have an orgasm. Sometimes I'm not sure whether I have climaxed of not. Is this something that will get better over time or improve with the return of erections?
 
I sure would like to hear if anyone has had a similar experience or can offer advice.
Thanks.
 
 
__________________________________________________________________________________________________
 
Age: 56
radical prostatectomy 4-18-07
took nerve bundle on one side
cancer confined to prostate
(3) post-op PSA's undetectable

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/31/2007 6:09 PM (GMT -7)   
    I also lost one nerve bundle but have great sensations during orgasam.  For most of us it actually is more intense than it was before surgery.
 
    Just keep working at it.  If it continues talk to your Dr. 
    KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/31/2007 8:55 PM (GMT -7)   

tongue  Hi ~  Peddler & Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

 

The information (link) listed above is to help you get around the forum! 

     This is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg

 


peddler
New Member


Date Joined Dec 2007
Total Posts : 3
   Posted 1/1/2008 11:42 AM (GMT -7)   

 Hey KW,

 Thanks so much for your reply, even though it is a bit discouraging for my particular problem.

 Had another question for you. Since you also lost the nerve bundle on side, what has been your experience with the erection situation ? After 8-1/2 months I'm still not getting much results, even with Viagra and Cialis. Any hope ?  

 


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 1/1/2008 12:57 PM (GMT -7)   

I will be at one year in just two weeks.  ED is still my biggest problem.  I had one nerve spared and the doctor was encouraging regarding good recovery.  So far that has not been the case.  I get my best erection with a Caverject shot, but can also have a usable erection with 100mg Viagra and the pump and rings. My biggest disappointment is the quality of orgasm.  It lacks intensity and duration, it just sort of ends. Some men report an orgasm similar to before, that is definitely not my experience.

Someone in an earlier post asked about penis size after surgery.  My erect length is about 1/2 inch less, but the girth (circumference) is greater (bigger around) than before surgery.


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
no continence problems
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
Six Month PSA still undetectable
Dealing with ED problems with Caverject/Viagra
nine month psa slightly elevated + .02
 
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/1/2008 4:13 PM (GMT -7)   

    I'm not sure how long it took to get a good firm erection using 100mg viagra after surgery.  Maybe 4-6 months?  Orgasams were great soon after the cathiter came out even without an erection.  I have even had some morning erections without medication.  Otherwise, it does take a little more effort to get and remain erect during intercourse.  Some of my problem could be the constant worry due to my incontenance.

    Just take your time and let your body heal.   Like everyone says.  0000's are the main thing we should wish for.

   Good Luck,  KW


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 1/1/2008 5:53 PM (GMT -7)   
Peddler,

Both my nerve bundles are intact. I think we are pretty much in the same situation. Cialis does help somewhat, but still does not give me an erection firm enough for intercourse. I am right with you when it comes to an orgasm. They suck. I have seen comments form others.....and a quote that I remember from someone...."best sex ever". Like you the orgasm just comes up short, and it takes forever to get there. I think for now it's the best we are going to get. Maybe with time our orgasms will get better.

I can say that I started using bimix twice a week. It works. I started with .5 ml which really lasts too long. I have started using .2 - .25ml. Seems about right for me. A rock hard erection for about an hour. My wife has a smile on her face for the next couple of days. I have not really had an orgasm with intercourse....even though I have tried very hard.

I keep telling myself that I really should remember that I had cancer, and don't any longer. The quality of life is certainly a factor right now. I am hoping and praying that things will get better.

Good luck with your journey.
51 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
Bladder Sling installed during prostate removal
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins
PSA after 6 weeks <0.1 - undetectable
PSA after 4 month .07 - undetectable
11 weeks post-op - no more pads


charlieo
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 1/2/2008 11:48 AM (GMT -7)   
Hi peddlar, I too experience something similar, I use a trimix injection with very satifactory results and it seems that about half the time I experience a real blast of one and other times a few real small ones where I build up and don't quite peak but pleasurable all the same. With the trimix I go for over an hour, climax or not. Hey, some guys never do it again after surgery, let's be thankful.   charlieo

siberian
Regular Member


Date Joined Oct 2007
Total Posts : 94
   Posted 1/6/2008 4:13 PM (GMT -7)   
hi peddler, welcome to healing well. you will find that this is a great place for information; more so then you get from the Doctors . I have been a member since Oct 2007 when I was diagnosed. What I have gathered is,----lots of the dudes are satisfied with the use of caverjet and somewhat less with vacumn pumps. It is also the consensus of the guys here,--that you take lesser doses of viagra or cialis,--to keep flood flowing to the penis. And some have recommended that you can take the amino acid Arginine for that same purpose,---plus a lot of sexual thoughts from your memory, etc.
age 68
diag 10/07/2007
T1c
Gleason 3+3=6
prostate 66gm
13biopsies, 3pos.
Have selected the Davinci proedure, to be done in Feb. 2008

Siberian
(Ken)

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