Finally found a doctor - and a question about post surgery situation.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/1/2008 12:08 PM (GMT -6)   
I discovered that interviewing surgeons is like interviewing religeous leaders. They all hold that their version of surgery is the answer to mankind. This was ultimately why it was so hard for me to find a Robotic Surgeon in NYC.  The more stalwart institutions are conservative by nature, and understandably, like to rely on the tried and true. The doctors' decisions had nothing to do with me, they were just doing what they believed was the best approach. I was able to get an appointment with Dr. Samadi at Mt. Sinai and am having surgery this Saturday at 10:30.  He is an amazing doctor - with a rightful sense of pride in what he does. He does cause some controversy among more traditional doctors, but, on the other hand, doctors are lined up to have him do their prostatectomies. The only reason I got a Saturday surgery is because he is doing a reknowned doctor earlier in the day!
If any of you are considering coming to NYC to have your surgery, let me know. I'll give you what little I have learned about this whole process in this city.
 
Now, the second part of my post...This seems to be quite a sensitive issue - and understandably so. But i would really like some straight talk about what happens to penis size after surgery. I even asked a good friend about it who had surgery last year. He paused and said..."well, the important thing is to get the cancer out."  Now, I am not freaked out by the thought, but the more prepared I am for the outcome, the easier it is to take.  The shortened urethra will certainly have its affect somewhere and the only place they can take the length from is the penis. So, is it an inch shorter? two inches? i am very pleasantly average 6 inches - not all that much, but i grew it all myself and am rather attached to it! So, what's the word? does it come back with use? stretching? i will be happy to be alive and live a long life with whatever, but it would be nice to know.
Paul
 
 
DOB 12/08/59
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
The journey has begun!
 


marang keru
Regular Member


Date Joined Dec 2007
Total Posts : 21
   Posted 1/1/2008 12:45 PM (GMT -6)   

Paul1959,

First, good luck with your surgery on Saturday.  I had my surgery done at Robert Wood Johnson Hospital in NJ on December 3.  Today, four weeks post surgery, three weeks post catheter, and I am cleared to resume "normal" activities.  I just came in from a 3-mile run!  I have had an incredible recovery thus far with very minimal incontinence and have already resumed sexual relations with full erections (albeit, aided with daily a 50mg dosage of Viagra). :-)

As far as penis "shrinkage" (I can't help but think of the Seinfeld episode with George), I have not noticed any difference at all (nor has my wife).  I did read a post somewhere on this subject but don't know if its for real.  Don't fret over it, its better to be an inch shorter and alive than the alternative.

Best wishes for a successful procedure.

 


Age - 57
PSA - July7, 2007 - 4.87
Confirming biopsy - August 30, 2007
Gleason scores of 6 (3+3) and 7 (3+4)
DaVinci surgery December 3, 2007 - Robert Wood Johnston Hospital, New Jersey
 
Cathether removed December 10, 2007
No incontinence after Day 2, December 5, 2007
Fully functioning sexual activity Day 2, December 5, 2007
 
Post-op pathology report confirmed Gleason of 7 (3+4), 30% involved by tumor, no positive margins.
 
Follow-up blood work scheduled for March, 2008
 
 


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 1/1/2008 1:24 PM (GMT -6)   
Before my surgery, my dr advised that, on average, the penis is shortened by approximately 1/2 inch when soft. His prediction was just about right for me. Others on the forum report no loss at all, and some more than 1/2 inch. Unfortunately for me, the loss of length is a bit more when erect -- although I haven't regained a true, fully engorged erection yet, so maybe the missing inch will reappear!
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07 = <.01 (Hooray!!)


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2287
   Posted 1/1/2008 4:13 PM (GMT -6)   

Paul--Happy to hear that you were able to research and select the best procedure and surgeon for you. And you are lucky that you were able to schedule your surgery so soon.

Regarding, ah, er, hmmm, size, I seem about the same as before surgery.  I've never done any measuring, before or after surgery, so this is just an estimate. I'm just relieved that it works with some chemical assistance. (Performance-enhancing drugs may be banned in professional baseball, but thankfully not in sexual athletics.)

You are in my prayers for a successful surgery and recovery, Paul.  Take care and hang in there...Tim

 



Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 1/1/2008 4:44 PM (GMT -6)   
Penis size after surgery is a variable. Following removal of the catheter my experience was that the penis was a lot shorter. As I went through penile rehab using Viagra and the pump it evolved to being close to what it was in a flacid state. In an erect state with the pump there was plenty of girth but not as much length. Once I started injections then I got back some length but not as much girth. When combining Viagra with injections I am close to what I was before but I would say I am a good half inch shorter but about the same in girth. I just started trying Levitra and I have to say the response is better with Levitra and I am getting a good 50% to 70% erection without injection with the Levitra. Hopefully you will be one of the lucky ones and will regain natural erections quickly. I am 14 months post op and not sure what to expect. My surgeon's PA told me that his experience is what you have at 18 months post op is about all that you can expect to get back. That may be the norm but I have read of cases where some men had return of natural erections at 2 years plus so there is hope. The important point is that there is a good sex life after RP if you are motivated to achieve it.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/1/2008 5:07 PM (GMT -6)   
Right after surgery there will be alot of truama to the area. With the cathiter and all I was much shorter. Now, 14 months post op I am back to almost normal. I probably lost almost a half inch overall.
You have done your research andmake your decision...not go for it...

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/1/2008 8:29 PM (GMT -6)   
Hey ~ Paul,
Here's a link to a previous thread with a few more responses... this will also help future readers.
 

Ahem, (shyly clears throat) mmm, What about penile shrinkage with surgery (esp. da Vinci)?

started by: naimnut

 

Ø       bluebird ~  Moderator for Prostate Cancer Forum

 

 

jrponalameda
Regular Member


Date Joined Dec 2007
Total Posts : 56
   Posted 1/2/2008 8:14 AM (GMT -6)   
puget said...
Before my surgery, my dr advised that, on average, the penis is shortened by approximately 1/2 inch when soft.

I'm pretty close to that average also. I'm still working the ED issues, so I can't make a valid comparison on erect size yet.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/2/2008 8:33 AM (GMT -6)   

I am 15 weeks post surgery.  When I first had the catheter removed, my flaccid penis seemed much shorter (an inch or more).  However, with proper healing and times passage, it has returned to near original state.  My penis in flaccid state is now maybe 1/2 inch shorter, but seems fatter also.  Using a milking motion when finishing urinating will get me the lost length, but it will go back down somewhat.  On a regular daily view, it does seem shorter, but fuller.  I have used Viagra, the pump, and now injections.  The Viagra and Levetra are a total failure so far, the pump brings me close to before as far as length although not near the 'elevation' and firmnesss that I was used to, and seems a little fuller.  The Caverject injection returned my length to the old days, elevation approachs what I had 20 years ago, rising to almost straight up and the girth is more than before, maybe from regular use of the pump.  All in all, it seems that I lost a little visually when flaccid but get it back and maybe a little more in firmness and fullness when erect using the injections.  Of course it remains to be seen what I will end up with when natural erections return, without any aids..  Hope this info helps. 

 

 


James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacorect pump-
11/15/07  1st PSA-0.01, fully continent- no pads
12/17/07  ED- 3 mts.-continue Viagra and pump-no change-no response


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/3/2008 5:34 PM (GMT -6)   
Hi Paul,
Well I guess I am one of the guys who did lose quite a bit although I know now that had I been a little smarter at the time I doubt it would have been near as bad. I did not do the pre surgery research that many here did, nor did I find a great site like this untill long after my surgery. I was never told about any penile rehab or tools that were avalable at the time and it actually wasn't that bad untill several years had passed. Mine is a long story so I'll try to make it as short as possable while getting the info across.
After surgery, I had no problems w/ erections and started having sex again w/ my wife at 4 weeks as my Doc advised. Although my orgasms were painfull and slightly scarry at 1st, I learned how to enjoy them mainly because the duration and intensity of them as they had increased greatly.
Sorry, I'll be back to finish! Something just came up!
Pete
54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/3/2008 6:25 PM (GMT -6)   

Sorry about that Paul,

Anyway like I said, everything was going along better than I expected and then I (for reasons unknown to me at the time) started going down hill. I totally lost intrest in sex and all the things that I loved doing. I lost intrest in living! I came really close to cashing it in and if it were not for my wife and 2 sons in High School at the time, I'm quite sure I would have. I know what loosing a father at a young age is like, my died of PC at 51 years old when I was 21.  Fast forward to November 2006 when I found this site right after my Doc, while having a physical found through blood tests that I had very low testosterone. All the shrinks, uros and endos I had been to never figured it out in 3 years of misery and NO SEX. So what happened during this time is my penis had atrified from lack of use. Use it or lose it couldn't be more true! Yes, I'm just guessing but I think I lost at least 2" of prime boner! Luckily for me, I was a bit larger than most to start with so I'm probably a little shorter and narrower than the average guy now. But hey, I'm alive, my family loves me and my wife still has orgasms during intercourse and she is way too nice and sensitive to ever tell me that she misses the old me knowing that it would hurt me. With my loving wife and a bunch of GOOD friend here at Healing Well, I am a better person than I was before the PC. Inches don't make a man and anyone who implies that is a fool!

So my friend, I guess what I'm saying is that there is a lot more to life than a big shlong. Stay the course and do everything you can to promote healing and use every theropy at hand to prevent ER or loss of those (not as important as you think) inches. Stay with your friends here and listen to those who have gone before you and you will be fine. I would be glad to answer any questions you may have after reading my bable. My prayers are with you!

Your friend,

Pete

 


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


siberian
Regular Member


Date Joined Oct 2007
Total Posts : 94
   Posted 1/5/2008 6:44 PM (GMT -6)   
Hello Paul,
I think pete said a lot on the subject,---and well ; but my  thinking on the subject after some research  is that the bladder is pulled down somewhat to compensate  for the bladder neck which was removed. The urethra is somewhat pulled up to make the new connection,---but not too  much. It is unclear whether the urethra that goes throught the prostate is saved. The Drs.  should prescribe cialis. or viagra in reduced strength to keep a steady blood flow to the penis.  This and exercises,stretching,and kegels should stop any lessening in penis size. Also sexual thoughts, and Arginine will help keep steady blood flow to penis.----Hopes this helps,
 
Siberian (ken) 

age 68
diag 10/07/2007
T1c
Gleason 3+3=6
prostate 66gm
13biopsies, 3pos.
Have selected the Davinci proedure, to be done in Feb. 2008

Post not edited ~ approx 6" of extra white (blank) spacing at the bottom of posting has been cleared

Post Edited By Moderator (bluebird) : 1/5/2008 5:53:58 PM (GMT-7)

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, April 23, 2018 9:46 AM (GMT -6)
There are a total of 2,954,580 posts in 324,134 threads.
View Active Threads


Who's Online
This forum has 162177 registered members. Please welcome our newest member, sksk111213.
348 Guest(s), 15 Registered Member(s) are currently online.  Details
George_, BlakeAlexander, JayMot, bleepitybleep, Abhirraai, tarhoosier, Artist Mark, Michael_T, Serenity Now, Hope4Happiness, Ashp9790, ltc1225, Tall Allen, straydog, sksk111213