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Bruno-boy
New Member


Date Joined Dec 2007
Total Posts : 6
   Posted 1/2/2008 7:33 PM (GMT -6)   
Hi:
 
First, Happy New Year to all of you.
 
I am so glad I found this site.  I am in Canada and I must admit that a site like this one is basically non existent, which is quite sad because I think it is very important for any man going through a radical prostatectomy to be able to share the experience with others. 
 
For the past few weeks, I have been reading many of the stories and realized very quickly that each situation is very different as far as recovery is concerned.  Some recovery stories are very encouraging while others leaves me with so many questions.
 
During my last visit at the surgeon, I was able to get a copy of the Surgical Pathology Report.  The Synoptic Report for Prostatic Carninoma on the Surgical Pathology Report states the following: «Tumour involves both lobes with focal extraprostatic extension (pT3a)».  My first PSA test is scheduled on February 11th and I will get the results from my Urologist on February 25.
 
Question:  When I was first diagnosed, the stage was T2a.  On the Surgical Pathology Report, it now refers to a "focal extraprostatic extension pT3a".  Has anyone had their stage T2a changed to pT3a after their radical prostatectomy and what were the results of their PSA tests?
 
You are all great and I must say that I have felt more positive since I discovered this site.  Thank you in advance,
 
Brunoboy  
 
==============================
Biopsy on October 30, 2007
PSA: 3.4
Gleason Score:  (3 + 4)  7/10
Stage:  T2a
Radical prostatectomy and left pelvic lymph node dissertion done on Nov. 8, 2007
Still experiencing leakage on a daily basis.
Have not been able to get an erection yet.
 
 

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/2/2008 7:44 PM (GMT -6)   

tongue  Hi ~ Brunoboy,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

 

The information (link) listed above is to help you get around the forum! 

     This is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 1/3/2008 12:03 AM (GMT -6)   

Hi Brunoboy,

Happy New Year!!!!

Sorry for the reason you are here, but you are right this site is full of warm, truly caring people who are will to share their experiance with prostate cancer. I don't know what I would have done without it.

When my hubby was 1st dx he was T-1c, Gleason 8, after the surgery he was T3a, Gleason 9. Look at our signature line and it will show all of his PSA results since the surgery.

Give yourself time to heal and you will regain urinary control and hopefully be able go back to a normal life in time.

Diana 


Rick & Diana
Age 68/ 67@ Dx
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
3-6-07 Triple Spinal Fusion (due to old back injury)
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 9-26-2007 PSA 0.07
11/1/07 PSA 0.1
11/30/07 PSA 0.12


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 1/3/2008 6:07 AM (GMT -6)   
My grade went from a t2 to a t3a after surgery the psa 3months later was .28 so I had radiation treatments and will go and see my urologist for my next psa at the end of this month
50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
37 treatments IMRT ended 10/26/07


Bruno-boy
New Member


Date Joined Dec 2007
Total Posts : 6
   Posted 1/3/2008 8:07 AM (GMT -6)   
Thank you mgl and thank you Diana for responding so quickly.
 
Diana, I have been told by my surgeon that my upcoming PSA test result must be "0" and if it not "0", then I will require radiation and/or other necessary treatments.   My surgeon, who has a very good reputation as being an excellent surgeon, is greatly lacking as far as bedside manners are concerned and it is very difficult to get answers and explanations from him so I greatly apreciate any feedback I can get.  It certainly makes me feel a little better and reduces my level of anxiety.
 
mgl indicates that he required radiation treatments because his psa 3 months later was .28.  Rick's PSA indicates 0.02, 0.02 and 0.03.  How come Rick is not getting radiation treatments and/or other treatments.  Do you know if there is there a minimum PSA level where radiation treatments are necessary?
 
Thank you again and have a wonderful day.
 
Brunoboy

==============================
57 year old
Biopsy on October 30, 2007
PSA: 3.4
Gleason Score:  (3 + 4)  7/10
Stage:  T2a
Radical retropubic prostatectomy and left pelvic lymph node dissertion done on Nov. 8, 2007
Catheter removed November 29th, 2007
Still experiencing leakage on a daily basis.
Have not been able to get an erection yet.
Synoptic Report for Prostatic Carninoma on the Surgical Pathology Report states the following: «Tumour involves both lobes with focal extraprostatic extension (pT3a)».
First PSA test is scheduled on February 11th with results from my Urologist on February 25.

Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 1/3/2008 9:31 AM (GMT -6)   
Hi Bruno-Boy and welcome!
While any upward trend can be alarming, generally a PSA of less than 0.1 is considered in the undetectable range. My Doctor says that as long as mine remains at that level, I will not need any additional treatments.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment.


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 1/3/2008 12:03 PM (GMT -6)   

Bruno

As you can see by my signature, I also went from a stage T1 to T3.  Biopsies prior to surgery are not exact - the only way to really tell how much cancer you have is by removing it.  Even at 3 months, when my number was .01, my docs were discussing adjuvant radiation therapy, since I had the positive margins.  Two studies have shown that if RT is done within the first year following surgery for those with positive margins, the incidence of reoccurance is reduced.  After recording a .08 three months later, I went for the RT, together with hormone therapy as well.  (The hormones will weaken any pc cells, so the RT can kill them.)  Now I'm at 0 and hopeful that all the leftover cells are dead.  The only thing is that the RT probably destroyed any nerves that my surgeon sparred, but I'll take the 0's!!!  My insurance covered it all, so I'm happy about that. 

Hang in there!


Age 57 at diagnosis,  PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5:  0.01
5 month PSA, June 13, 2007:  0.08
Adjuvant therapy began June 26 with Zoladex injection
Radiation began August 23, ended October 8
First post radiation PSA, December 18, 2007:  0
 
 


Bruno-boy
New Member


Date Joined Dec 2007
Total Posts : 6
   Posted 1/3/2008 1:42 PM (GMT -6)   

Thank you hawkfan75 and Mike A.

I have now a much better understanding of what the PSA results mean and what may be involved depending on the results I will get following my upcoming PSA test on February 11th.   Of course, I am hoping for the best so I won't need treatments but if the results are not positive, I will have to deal with the situation and do what needs to be done.  It is better than the alternative, that is for sure.

Good luck to each of you also.

Bruno


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/3/2008 4:22 PM (GMT -6)   
Bruno,
Welcome to our site. I'm so glad you found this group of caring concerned people.
You can see from my husbands stats that his cancer had spread (unknown) prior to surgery. Because his cancer is systemic (spread to distant lymph nodes, not in the prostate bed) radiation was not an option for him. He's on hormone therapy (Lupron) which is doing it's job.

The waiting is very difficult but the best thing you can do is eat well, exercise and try to maintain a good attitude. I know it sounds simplistic but it does help and you do benefit in all ways. Educating yourself, as you are, gives you a better understanding and therefore control. You'll be better able to ask your physician questions and that will let him know you understand what's going on. Sometimes they need to know that - the respect works both ways, yes?

I wish you the best and please keep us posted...you can ask anything here.
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 1/4/2008 12:35 AM (GMT -6)   

Hi Brunoboy, as you can see, my stage went to T3a after surgery, my PSA also came in at 0.5 (twice), so I am presently having proton beam therapy to kill the rest of the little buggers, I have a positive attitude to the situation as my oncologist is very confident that the treatment will be a success, have heard that the radiation can damage the nerve that was spared, who cares, I am alive and can do anything else, ED is minor to the alternative eh?

Best Wishes Mal.


age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7  right side tumour adenocarcinoma stage T2a
RP on 30th July,
Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.
Post op PSA 0.5 26th Sept. next PSA 26th Oct. seeing Radiation Onocologist 31st Oct. PSA 0.5 23rd October. Started radiation treatment on 5th Dec, to continue until 24 Jan. 08


Bruno-boy
New Member


Date Joined Dec 2007
Total Posts : 6
   Posted 1/4/2008 5:51 AM (GMT -6)   
Hi Mal:
 
Thank you very much for the details regarding your situation.  When it comes down to it, you are absolutely right ..... the treatments (radiation) are definitely better than the alternative.  So I guess I will have to see what the PSA test results are and take it from there.
 
Good luck with your treatments and please let me know how it is going.
 
Bruno
 
==============
57 year old
Biopsy on October 30, 2007
PSA: 3.4;  Gleason Score:  (3 + 4)  7/10;  Stage:  T2a
Radical retropubic prostatectomy and left pelvic lymph node dissertion
  done on Nov. 8, 2007
Catheter removed November 29th, 2007
Still experiencing leakage on a daily basis.
Have not been able to get an erection yet.
Synoptic Report for Prostatic Carninoma on the Surgical
  Pathology Report states the following: «Tumour involves both lobes
  with focal extraprostatic extension (pT3a)».
First PSA test is scheduled on February 11th with results from my Urologist
  on February 25

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/4/2008 9:30 PM (GMT -6)   
Hey Bruno, Glad your reading here. Just how much are you leaking? Are you dry when you sit and sleep? If you have read my journey you know I am one of the long term leakers here. Just interested in everyone's contenance recoveries.
Good Luck on your PSA test....

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


Bruno-boy
New Member


Date Joined Dec 2007
Total Posts : 6
   Posted 1/5/2008 6:12 AM (GMT -6)   
Hi kw:

My leakage is improving day by day. Yes, I am completely dry when I sit and sleep. For the first three weeks after surgery, I was doing the kegel exercise following my surgeon's recommendation, three times a day, 20 times each time for 10 seconds on and off. I found that I was in more trouble after three weeks. After reading other cases doing the kegel exercise, I found a few people indicating that sometimes, recommended kegel exercises can be too much so I reduced the number of times to twice a day, 10 times each time for 7 seconds on and off. Believe it or not, the improvement was almost immediate and the leakage started diminishing within the next couple of days. Conclusion: try to determine what works best for you since we all seem to respond differently to recommended kegel exercises.

It has now been 7 weeks since the surgery and I am down to one pad a day ... for perhaps a couple of small leakages per day while laughing or sneezing or lifting something.

Good luck and I will pray for you so you and your doctor can resolve your leakage situation.

Brunoboy

==============================
57 year old
Biopsy on October 30, 2007
PSA: 3.4
Gleason Score: (3 + 4) 7/10
Stage: T2a
Radical retropubic prostatectomy and left pelvic lymph node dissertion done on Nov. 8, 2007
Catheter removed November 29th, 2007
Still experiencing leakage on a daily basis.
Have not been able to get an erection yet.
Synoptic Report for Prostatic Carninoma on the Surgical Pathology Report states the following: «Tumour involves both lobes with focal extraprostatic extension (pT3a)».
First PSA test is scheduled on February 11th with results from my Urologist on February 25.
57 year old
Biopsy on October 30, 2007
PSA: 3.4;  Gleason Score:  (3 + 4)  7/10;  Stage:  T2a
Radical retropubic prostatectomy and left pelvic lymph node dissertion
  done on Nov. 8, 2007
Catheter removed November 29th, 2007
Still experiencing leakage on a daily basis but improving day by day. Down to one
  pad a day with minimal leakage.
Have not been able to get an erection yet.
Synoptic Report for Prostatic Carninoma on the Surgical
  Pathology Report states the following: «Tumour involves both lobes
  with focal extraprostatic extension (pT3a)».
First PSA test is scheduled on February 11th with results from my Urologist
  on February 25.

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