Penis Twitching

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DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/4/2008 7:01 AM (GMT -7)   
Hi,
 
Our first night home went well and we got some sleep. I took the advice of someone and hung his night bag on a 5 gallon bucket. Worked like a charm!  Randy said his penis twitches and keeps him awake.  Apparently it's not constant and even happens during the day, but it's not as noticeable as when he's trying to sleep.  It's more of an annoyance than anything, and there's no pain.  I assume it's because of the nerves being damaged.  I'll look at the bright side and hope it's the nerves trying to heal.  I believe nerves are a difficult thing to diagnose, sort of like a short circuit somewhere.  His surgery spared the nerves on the left side, and a partial on the right.
 
Anyone else experience this?  And if so.. does it go away eventually?
 
Marie
Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, some right nodes taken
01/03/08  Home from the hospital!
01/03/08  Let the healing begin!


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 1/4/2008 7:18 PM (GMT -7)   

Hey... desert folks

It is healing time.  We all experienced twtching, aching, cramping, you name it, as our various parts began to heal.  It is hard to not react to every little thing, but I recommend that you try to ignore anything that isn't bleeding badly or extremely painful. Use common sense, but remember the body is healing and will feel like it never has before.  go ahead and ask questions here so you will be reassured, but remember it is probably just "normal" healing.


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
no continence problems
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
Six Month PSA still undetectable
Dealing with ED problems with Caverject/Viagra
nine month psa slightly elevated + .02
 
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/4/2008 8:44 PM (GMT -7)   
Any twitching is a good sign. Just take your time and let things heal. There will be plenty of time for "therapy" later on. I just hope you contenance returns. Hate to see anyone have to deal with what I am dealing with.

Good Luck. KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 1/4/2008 9:31 PM (GMT -7)   
From my own experience of the odd sensations I had going on early in the recovery process, I'd say this is perfectly normal. Also, Randy has a catheter in and that will cause some movements that one would not expect without it.  And, too, all the body's healing mechanisms are working overtime to get things back to normal after the surgery.  That's a good sign.
 
Take care and hang in there, Marie...Tim
Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/5/2008 7:44 AM (GMT -7)   

Hi Guys,

Thanks for your replies we will look at this as a positive sign of his body healing.  Sorry to complain, I'm sure this seems rather trivial compared to some  more serious complaints.  It's bothering him enough that he can't sleep at night, and he dreads going to bed.  He's usually not a complainer, so I would imagine it's because he's had a rather tough week and right now just flat out doesn't feel so hot.  This is just one more thing that is "not normal" to him. He's still a newbie of only 5 days post-op.  If it's still a problem by Monday I'll put a call into the doc and see if he can safely take something to help him sleep at night. 

Taking one day at a time! yeah

Marie


Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, some right nodes taken
01/03/08  Home from the hospital!
01/03/08  Let the healing begin!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/5/2008 9:10 AM (GMT -7)   

Hey ~ Marie & Randy,

 

Your concern.... is not complaining…. Reaching out  ~  that’s what HealingWell is all about.  Your thread will help others who follow you.  So ~ don’t ever hesitate to reach out with any concerns or questions.

 

Randy needs sleep ~ It’s important that you contact your doctor and get him a mild sleep-aid.  We did and there is no doubt in our minds that this helped the healing process.  If you can contact your doctor now… do so… he doesn’t need 2 more nights without sleep.  S(He) could call in a prescription.

 

Mr. Hang (catheter) is a very important part of the healing process…. Make sure Randy is up and walking… this too is soooo important.  Sleep, eat, walk, sleep, eat, walk. And continue to listen to his body.

 

Our thoughts are with you and we are keeping you “both” tucked close…

In Friendship ~ Lee & Buddy

 

:-)  Helping to keep this journey together for future readers.

Threads started by DesertGal

12-24-07  My husband is scheduled for DaVinci Surgery

01-03-08  Finally We're Home

01-05-08  Penis Twitching

 

Post edited to add direct links to personal threads

Post Edited (bluebird) : 1/5/2008 5:47:04 PM (GMT-7)


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 1/5/2008 11:29 AM (GMT -7)   
Marie and Randy,
I don't recall any "twitching" per se, but I remember having spasms in that area. My Doc told me it was "bladder spasms" and that they should go away anywhere from a few days to a few weeks. Mine went away just before I had Mr. Hang removed. Mama Bluebird is right on (as always): call the Doctor and have a prescription phoned in. Sleep is essential! Glad the five gallon bucket trick worked for you - It sure helped me get around!
BTW, I'd give anything for a good twitch or two down there now!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment.


DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/5/2008 3:19 PM (GMT -7)   
Hi Mike and Bluebird,
 
I think you are right on about the bladder spasms. Everything is so close in proximity, maybe that's what is causing it. I would imagine that if the bladder was moving it would in turn move the penis also.  I wish you could get a twitch too Mike.  It takes a very long time for nerves to heal and repair, so don't give up!  They apparently sometimes short circuit and need to find another pathway. 
 
I offered to call the doc for a sleeping aid, but he said he'll be okay.  He's not one to ever take pills, although he has asked for pain meds this week when he's fading.  He's pretty surprised how rough this has been on him and zapped his energy.  He's got 5 holes in his belly, looks like he's been used for target practice.  By a bad shot I might add!
 
Thanks again, you guys are the greatest!  It's so comforting to know there's help out there from caring and loving people that want to help others get through this difficult time.  You truly are the pioneers of this journey and will help countless men facing the same issues in years to come. 
 
Marie
 
 
Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, some right nodes taken
01/03/08  Home from the hospital!
01/03/08  Let the healing begin!


montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 1/5/2008 10:42 PM (GMT -7)   
I believe they are correct about the bladder spasms, I was sent home with prescription to take if they occurred and when it happened I took them and it stopped the spasms.  Seemed like it was always at night. Also was sent home with 2 CIPRO to take day before and day of catheter removal. Glad to hear your husband is doing well.  Praying your path report will all be negative.

diagnosed sept 06
gleason 3+4=7, right lobe only
psa 4.7  (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern.  If I can find out about PSA velocity, why didn't he know!)
Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT
RP Emory Atlanta December 2006
Path-negative margins, negative lymph nodes
negative seminal vesicles, multifocal perineural invasion, both lobes involved
40% gland involved
gleason 3+4=7
1st psa April 2007-<0.04
 6 Mos PSA <0.04
9 mos PSA still <0.04
12 mos PSA still <0.04


DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/6/2008 7:10 AM (GMT -7)   

Thanks Montee,

I'll put a call in to the doc and see if there's something he can take for it.  Like Bluebird says, he needs his rest so he can heal, there's nothing worse than laying in bed at night unable to sleep. 

Marie

 


Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, some right nodes taken
01/03/08  Home from the hospital!
01/03/08  Let the healing begin!


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/6/2008 10:29 AM (GMT -7)   
Marie,

Unless he's having painful twitchng, try to get Randy to relax. Bengin twitching is a normal process and a pretty good sign. He'll experience this to some degree for a while then it should clam down. Believe it or not, he always has had a twitch. Men twitch, so do women. It's so subtle that we just don't realize it, nor do we have a reason generally. With a heightened self awareness, Randy may notice many things he typically never paid attention to. Maybe a mild sleep aid would be helpful for a short time. If he's not getting a restful sleep, his whole body suffers.
Yours too I might add.

God Bless,

Swim
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 1/6/2008 10:45 AM (GMT -7)   

Marie,

Tylenol PM helped me a lot to sleep well during the first couple of weeks post op.  There were a lot of different feelings that I had for several weeks after surgery.  What we men that have had the surgery must remember is that it is major surgery and a lot of trauma occurred in a relatively small area.  For me it took about two to three months before things settled down.  I was hoping that some of those feelings were good signs for ED but that was not the case.  Hopefully it will be for the two of you.

Tamu


Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/6/2008 11:40 AM (GMT -7)   

Hi Swim and Tamu,

I told him maybe his body is doing the kegel exercises on its own.  Perhaps the cath is making it more noticable with the movement.  Restless (middle) leg syndrome?  he he  I won't suggest he take the meds for that because he may have a sudden uncontrollable urge to gamble and have sex!  We have to keep our humor about this. tongue

I take Tylenol PM to help me get through the night, especially since his dx. So I'm sure one wouldn't hurt him either, long as he's not taking a pain med with it. He's not feeling as well this morning and I'm assuming its because of the lack of sleep last night.  I'll try him with one tonight and see if it helps him relax to sleep.  Plus encourage more naps today.

Thanks,

Marie


Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, some right nodes taken
01/03/08  Home from the hospital!
01/03/08  Let the healing begin!

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