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net
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 1/7/2008 10:23 PM (GMT -7)   
Hello everyone,
It has been a while since I have visited here as our lives seem to be upside down all the time.  My husband. Brice, finally had the bracytherapy in early Dec along with a cysto to try and determine why he continues to bleed.  The urologist wanted to make sure the tumor had not returned in the urethra (the original site of CA) and the only symptom he had was bleeding, PSA was normal as well as DRE.  There was no apparent signs of this tumor but still cannot explain the bleeding ????  He had a bone scan in late Sept and the 5th and 6th ribs showed increased uptake from the previous one in May so they had him get a chest xray which did not "appear" to be cancer.  They kept telling me that we needed to proceed with the PCA and mets would not change their treatment plan. 
He is suffering terribly with the 'hot flashes', 'sweats', from the Lupron and of course the frequency is non stop.
 
On Christmas day we had our traditional opening of gifts and breakfast and prepared for guests coming later in the day for dinner.
The following Saturday, Brice's daughter came to visit us from Va. and I was showing her the shirts and pants that I had bought him for Christmas and he said to me, 'where did those come from?, thinking he was teasing me, I laughed and then realized he did not remember opening his gifts and acted as if he had seen them for the first time.  I called the oncologist's office and the nurse had me take him in on Friday and he told me that he treated the prostate and this incident had nothing to do with that and I should see my primary..
I was ticked.....asked about the continued bleeding and he says, it could be an infection and we could get a culture to see if it was and he would prescribe antibiotics....I don't think so....he just had a U/A at the urologist office and the bleeding has been going on for months!!!!!  
I feel like IF they do not know what is going on, they simply discount it and refer us out or say ...we don't know why he is bleeding....
well, that is not good enough for me....and I reminded him that Brice has nothing that is "norm" and we will have to go beyond the standards of care to monitor his progress and since we are scheduled for the IMRT for five weeks in Feb., I feel like we are expected to
go through the standard protocols for this disease without regard for his unusual circumstances.
He is extremely fatigued most of the time and other than going to church on Sundays, he isn't up to doing much of anything.
Thanks for letting me vent....
Faith

Faith
Husband - Brice
dx 8/29/07 Gleason 4+5=9 up to 90% of core bx (8)
tumor has unusual immunophenotype & features suggestive of
ductal (enodmetrioid) differentiation (???) per path report
Stage IV adenocarcinoma
urethral polyp
PSA 2.5 (never elevated)
Started Lupron & Casodex
2nd bone scan 10-15-07
rec. tx brachytherapy & IMRT
Jax., FL
 


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 1/8/2008 7:13 AM (GMT -7)   

I'm sorry to hear your husband is having trouble.  Fatigue is not uncommon with Brachytherapy however.   That was my husband's biggest side effect - fatigue.  He did not experience any bleeding or problems with urination.  Follow your instincts and continue to strive for answers until you've got them.

Regards,

JustJulie


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/8/2008 5:04 PM (GMT -7)   

Hi Faith,

Well your name says it all! I'm sorry Brice is having such a hard time. That lupron is really rough on a guy. You don't mention any other meds he might be taking that might cause him to be forgetful. If you don't think your doctor is doing right for you, try getting another. Isn't there a Mayo Clinic up near Jacks. Fla? I don't know very much and I don't mean to come off like I do but I have learned that the doctors work for us and if they don't do their jobs properly, get rid of them! I have been through quite a few since I was diognosed. I never took Lupron but I was Hypogonatic which ment my testicles were not producing testosterone and until I received treatment for it I was in terrible shape. I couldn't concentrate at all and didn't have any interest in doing anything but sleeping and crying. Men were ment to have testosterone and w/o it we are shells of our old self. I'm sure Brice is trying his hardest to be himself and it is so hard on him and your family knowing he can't be. Keep the faith! He woun't be on it for ever but by taking it he's doing the right thing. He's fighting the monster and he will win! We have to believe and stick with him even on the worst days. My prayers are with you Faith and for Brice. I appologize if I was out of line in what I said. Stay here with us, these people care about you and know what you are going through. God bless you both!

Your friend,

Pete 

 


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/8/2008 5:30 PM (GMT -7)   
Faith,
Looks like it's time to talk to another doctor. When Don went to Moffitt Cancer in Tampa - they responded to our phone call right away. I was checking Loma Linda for my husband (before I found out that he wasn't a candidate for proton therapy) I found the phone number on line and someone took my call and talked to me right away. It's difficult, I know, but if you think he might be able to get better treatment elsewhere, then find out. When you talk to someone, let them know your difficult circumstances, this is no time to worry about appearances. Your frightened!
OR...call your doc back and restate firmly what's going on and you need some solutions.
Did Brice's Doc offer medication to help the hot flashes? Also, short term memory loss can be attributed to HT.
Get copies of all his records and take them with you.(it's a good idea to do this as you move through his treatment - every 3 months makes it easier on everyone)
The fatigue seems normal as a result of brachy.
You can always vent here, Faith.
I wish you both the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1

Post Edited (myman) : 1/10/2008 6:10:49 PM (GMT-7)


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 1/8/2008 7:34 PM (GMT -7)   
You've gotten good advice above.

Be prepared to fire doctors - it happens all the time, at least with enlightened patients.

H. Lee Moffitt is one of the finest cancer hospitals in the country. Pay special attention to whatever advice "Myman" offers - she knows.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE


net
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 1/10/2008 9:16 AM (GMT -7)   

Thank you all for your encouragement and words of wisdom.  We have an appt. next Tues for follow up CT scan and appt with Rad Oncologist and plan to "lay it all out" at that appointment.  I will admit my feelings are touchy as I feel my world in caving in and I have no where to turn.  You see, shortly after we received the dx of advanced PCa, I lost my job and our savings are at rock bottom and I am having to make very difficult decisions alone as to what must be sold, eliminated, our son will have to skip this semester of college as I can't pay for it and will need to sell one vehicle, etc. to make payments on the "cobra" insurance.  I am trying to start a home based business as I fear leaving him alone right now and we start radiation in Feb for 5 weeks, 5 days a week. 

I have ALWAYS been a very strong willed person and not much could get me down but this one is kicking my butt too.  (I had to stop taking some of my medications (hormones) so I could afford to buy his meds so that explains some of it + we get to hot flash together)  We are close to our first anniversary of this dreaded diagnosis Feb. 14th, lung cancer dx.  I do have some really good friends and support from our church but I feel like all  I do is complain...not really complain..but never seem to get to say....all is well with us...we are good .....Brice is such a great man, everyone loves him as he has such a sweet spirit and people are just attracted to him and we received so many cards at Christmas with notes stating what an inspiration he is and he never ever complains and it breaks my heart to feel so helpless......(I have it bad don't I?)

so I am turning to you guys to help my with my pity party.....ok?  I need to get over this as #1  it is not ME, #2 it is not the right time

#3 it certainly isn't helping anything

Thanks again for your prayers and concern,

Faith


Faith
Husband - Brice
dx 8/29/07 Gleason 4+5=9 up to 90% of core bx (8)
tumor has unusual immunophenotype & features suggestive of
ductal (enodmetrioid) differentiation (???) per path report
Stage IV adenocarcinoma
urethral polyp
PSA 2.5 (never elevated)
Started Lupron & Casodex
2nd bone scan 10-15-07
rec. tx brachytherapy & IMRT
Jax., FL
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/10/2008 9:44 AM (GMT -7)   

Faith,

I'm so sorry to here what you are going through. No one should have to sell their posessions to pay for health related bills! Have you talked to the hospital or Dr. about payment plans or sometimes the have programs for people out of work to reduce the amount the owe. I know they have things like that here in Florida. Its worth checking into. Also you may try to contact the free legal aid in your area. Sometimes just knowing what your legal obligations are can help lighten the load. They might even have some suggestions as I'm sure they have heard from plenty of people who have run into the same problems you are having. It must feel like you have hit a brick wall and I can't speak because I'm not in your shoes but please try not to let it get to you to the point that it makes you ill. There are ALWAY shoulders to cry on here so by all means you are welcome to let it all out here. Back when I was in a really bad condition, I used to write long stories about my life and all my health related problems due to my mis spent youth. I would go on and on about myself and there were always compassionet people here who read my babble and helped to cheer me up. Plesae stay here with your friends.

Your friend,

Pete 


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


net
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 1/10/2008 10:03 AM (GMT -7)   

Dear Pete,

Thank you so much...I will be here often as I obviously need the (therapy) and it certainly makes a difference to hear from real people who "really" know how you are feeling and what you are going through.

I will check in to what resources are available as I never dreamed of being in these shoes so not even sure where to start.  I am 'great' at giving....but find it difficult to 'receive'.....must get over that somehow...

thanks again,

God Bless You All as you Bless me with your care and support,

Faith


Faith
Husband - Brice
dx 8/29/07 Gleason 4+5=9 up to 90% of core bx (8)
tumor has unusual immunophenotype & features suggestive of
ductal (enodmetrioid) differentiation (???) per path report
Stage IV adenocarcinoma
urethral polyp
PSA 2.5 (never elevated)
Started Lupron & Casodex
Flomax 0.4 twice daily
2nd bone scan 10-15-07 Slight increased uptake is 5th & 6th rib not shown on 5/07 scan
rec. CXR which revealed "no apparent" CA
12/5/07 Bracytherapy & repeat cysto
IMRT sched for Feb 08 - 5 weeks daily
Dx with lung Ca 2/14/07/ Carcinoid tumor/ upper left lobe removed 3/25/07
Jax., FL
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/10/2008 10:42 AM (GMT -7)   
Faith,
I am a year past learning I had this stupid disease, and I also had to leave my job at the same time. I wasn't fired, but I had a problem with some ethics. Tough move after 16 years, but I could not accept the alternative. So I set out with my life savings, a COBRA plan, and a new disease. Well that savings is gone already, and we are tight here. But we are strong to our beliefs that things will work for the better. Pete says it well. Your name. With faith I was able to get back on my feet and make a strong show of it. I pray that anyone else who goes that path will always land on their feet. And you and Brice are included. The advice above is correct, you need to get another doctor to give you an answer about the bleeding. You also will need to stay positive. God has a place in heaven for us all, so please keep the faith. Keep the hope as well.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


net
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 1/10/2008 3:56 PM (GMT -7)   

Tony,

You are so right. I know that God has a plan and I truly believe that I am 'supposed' to be with him right now, it is just very diffucult to cope when the well is dry but "He" does know better that me where and what I should be doing.  I am a workaholic by nature and the only income provider but if by chance, this is

supposed to be "my time" with Brice to savor, then I do not want to have any regrets, so I shall try to take one day at a day and "keep the faith"

thank you again.

by the way, can you give me some insight as to what we may expect with the IMRT treatments?

God Bless,

Faith


Faith
Husband - Brice
dx 8/29/07 Gleason 4+5=9 up to 90% of core bx (8)
tumor has unusual immunophenotype & features suggestive of
ductal (enodmetrioid) differentiation (???) per path report
Stage IV adenocarcinoma
urethral polyp
PSA 2.5 (never elevated)
Started Lupron & Casodex
Flomax 0.4 twice daily
2nd bone scan 10-15-07 Slight increased uptake is 5th & 6th rib not shown on 5/07 scan
rec. CXR which revealed "no apparent" CA
12/5/07 Bracytherapy & repeat cysto
IMRT sched for Feb 08 - 5 weeks daily
Dx with lung Ca 2/14/07/ Carcinoid tumor/ upper left lobe removed 3/25/07
Jax., FL
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 1/10/2008 5:22 PM (GMT -7)   
Faith-

Nothing to fear from the radiation. Fatigue is the common side effect. I was told to expect really bad diarrhea, but became constipated instead. No biggie. Holding the darn hospital gowns closed in the back while walking away from the sweet young things who work as radiology techs, now that was always a problem. (BTW - M.D. Anderson, in Houston, gives patients scrubs to wear - much nicer.)

about finances - many hospitals have plans where patients who can't afford to pay for treatment get it free. The state reimburses the hospital. Also, if you do have to pay a doctor or a hospital, ask them to bill you what the insurance companies would pay them, not the "retail" price. It's the least they could do.

Try not to make yourself crazy over this - it won't help. I know, I know - easier said than done. But think about it logically. Hospitals have social workers who should be able to speak with you.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/10/2008 6:18 PM (GMT -7)   
You guys give such good heartfelt advice...that's why I hang out here.. tongue And on yeah, my husband has "that stupid disease" too!

See, Faith, there is help...there is always help, it's just that sometimes it looks like something else.

I wish you & Brice the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 1/11/2008 12:07 PM (GMT -7)   
Hi Faith,
Les had the same experience that I did with the radiation. It really was a breeze after all the other things. Just a little fatigue and I didn't notice it until after the treatment. When I was done I began to feel more energy for about two weeks until I was back to normal. I would have said if you asked how I was feeling on the last day, that I was fine no side effects. Again it was later when i realized that it did fatigue me a bit. I have a prescription for him while undergoing treatment. After every treatment I took a couple mile walk. It's healthy to do anyways, but my oncologist said it does help to avoid side effects. Plus it was a good habit i picked up after I was diagnosed last year that I kept. Good luck on those treatments, and keep letting Brice know we are thinking and praying for him.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


net
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 1/11/2008 3:14 PM (GMT -7)   

Thanks Les, you made me laugh and I am glad to see that you are in better spirits these days....I have been praying for you since my first post.....

God Bless,

Faith


Faith
Husband - Brice
dx 8/29/07 Gleason 4+5=9 up to 90% of core bx (8)
tumor has unusual immunophenotype & features suggestive of
ductal (enodmetrioid) differentiation (???) per path report
Stage IV adenocarcinoma
urethral polyp
PSA 2.5 (never elevated)
Started Lupron & Casodex
Flomax 0.4 twice daily
2nd bone scan 10-15-07 Slight increased uptake is 5th & 6th rib not shown on 5/07 scan
rec. CXR which revealed "no apparent" CA
12/5/07 Bracytherapy & repeat cysto
IMRT sched for Feb 08 - 5 weeks daily
Dx with lung Ca 2/14/07/ Carcinoid tumor/ upper left lobe removed 3/25/07
Jax., FL
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 1/11/2008 5:03 PM (GMT -7)   
Faith-

I'll try to behave myself this time, and say "thank you".

Not so sure about my spirits. They go up and down - mostly down. Just last week I asked my therapist (the one I started seeing six months ago when I found out about my condition) what my clinical diagnosis is and she spouted the numbers of the ICD code and then said "severe depression". Although I enjoy our sessions, I think I've been steadily getting worse and not sure if it's in spite of her or because of her.

I'm looking forward to my visit to M.D. Anderson in Houston during the first week in February, although I'm not expecting any good news, other than that my situation is status quo. Someone who's not depressed would probably take status quo as a good thing.

I've said this before, but, maybe not to you. There's a wonderful PCa doctor, who also happens to be a PCa victim, too, named Stephen B. Strum. He's an MD and has written a book with Donna Pogliano entitled A Primer on Prostate Cancer: The Empowered Patient's Guide. When he writes on sites such as this, as part of his signature he sometimes writes "Don't forget that MD does not stand for medical deity".

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/23/2008 1:54 PM (GMT -7)   

Dear Faith & Brice,

    Thinking of you at this moment....

            and all who have posted on this thread 

    ~ and just wanted to let you know!

 

As time permits ~ please let us know how you're doing!

Keeping you close in thoughts and prayers.

Hugs from Lee & Buddy


net
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 1/23/2008 3:54 PM (GMT -7)   
Dear Lee & Buddy,
Thank you for your note.
We went to see oncologist and urologist last week and he had his follow up CT for the seed implants and another extensive CT scheduled on 30th. Brice was telling him the side effects from the meds were worse than the cancer
symptoms and he made a comment that we could ask the Uro to discontinue the Lupron and Casodex (which he knows is impossible) and then when on to say that "you have one of the most aggressive types of cancers we have ever seen, in the top 20 and we are trying everything out there to try to stop it..Brice responds that no one had said that before and he would suffer with the side effects and I wanted to vomit and scream at him to shut up at the same time. We saw the Uro next day and explained the memory loss problem and he immediately ordered
CT of brain and lab work and we are waiting results of that.
In the meantime, I am a basket case and seem to have 'lost it'. I have cried so much the last week, can't think straight and reality is I am angry enough for both of us.
Thank you all for your prayers (please keep them coming) and I will update as I can. I am attempting to look for work but not sure how I will get him to radiation everyday for 5 weeks or if we should even bother at this point.
How do you know if you are making the right decision to continue treatment on not and this point?
God Bless,
Faith
Faith
Husband - Brice
dx 8/29/07 Gleason 4+5=9 up to 90% of core bx (8)
tumor has unusual immunophenotype & features suggestive of
ductal (enodmetrioid) differentiation (???) per path report
Stage IV adenocarcinoma
urethral polyp
PSA 2.5 (never elevated)
Started Lupron & Casodex
Flomax 0.4 twice daily
2nd bone scan 10-15-07 Slight increased uptake is 5th & 6th rib not shown on 5/07 scan
rec. CXR which revealed "no apparent" CA
12/5/07 Bracytherapy & repeat cysto
IMRT sched for Feb 08 - 5 weeks daily
Dx with lung Ca 2/14/07/ Carcinoid tumor/ upper left lobe removed 3/25/07
Jax., FL
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 1/23/2008 8:50 PM (GMT -7)   
I don't know if you are aware, but most pharmaceutical companies also have Patient Assistance Programs to help pay for products. Tap pharmaceuticals is the maker of Lupron and they do have a patient assistance program. I have copied the number to call below. Hope it helps! Hang in there! This disease is so heartbreaking. My parents are having a hard time with the medical bills too and it's the last thing I want them to stress about. I believe that it will work out and I hope you know the same. Peace be with you!

Does TAP provide a patient assistance program for Lupron Depot?
Yes, TAP provides the Lupron Patient Assistance Program (LPAP). It is a service that:

* Reviews patient qualification criteria and determines patient eligibility
* Ships Lupron Depot to the physicians of eligible patients

To qualify and enroll patients in LPAP, call 1-800-621-1020, option 7.
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07
Lupon beg. Dec 03, 2007 2 yr
Radiation soon to follow
 
 

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