It has been a while since I have visited here as our lives seem to be upside down all the time. My husband. Brice, finally had the bracytherapy in early Dec along with a cysto to try and determine why he continues to bleed. The urologist wanted to make sure the tumor had not returned in the urethra (the original site of CA) and the only symptom he had was bleeding, PSA was normal as well as DRE. There was no apparent signs of this tumor but still cannot explain the bleeding ???? He had a bone scan in late Sept and the 5th and 6th ribs showed increased uptake from the previous one in May so they had him get a chest xray which did not "appear" to be cancer. They kept telling me that we needed to proceed with the PCA and mets would not change their treatment plan.
He is suffering terribly with the 'hot flashes', 'sweats', from the Lupron and of course the frequency is non stop.
On Christmas day we had our traditional opening of gifts and breakfast and prepared for guests coming later in the day for dinner.
The following Saturday, Brice's daughter came to visit us from Va. and I was showing her the shirts and pants that I had bought him for Christmas and he said to me, 'where did those come from?, thinking he was teasing me, I laughed and then realized he did not remember opening his gifts and acted as if he had seen them for the first time. I called the oncologist's office and the nurse had me take him in on Friday and he told me that he treated the prostate and this incident had nothing to do with that and I should see my primary..
I was ticked.....asked about the continued bleeding and he says, it could be an infection and we could get a culture to see if it was and he would prescribe antibiotics....I don't think so....he just had a U/A at the urologist office and the bleeding has been going on for months!!!!!
I feel like IF they do not know what is going on, they simply discount it and refer us out or say ...we don't know why he is bleeding....
well, that is not good enough for me....and I reminded him that Brice has nothing that is "norm" and we will have to go beyond the standards of care to monitor his progress and since we are scheduled for the IMRT for five weeks in Feb., I feel like we are expected to
go through the standard protocols for this disease without regard for his unusual circumstances.
He is extremely fatigued most of the time and other than going to church on Sundays, he isn't up to doing much of anything.
Thanks for letting me vent....