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Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/9/2008 11:46 AM (GMT -7)   
Sorry to be so late reporting in, but I was away from a computer for several days, then when we got home, ours had died.  also, the drugs made me less than coherent and i still can't sit at a desk chair!
 
Surgery went well. No sign of cancer outside the gland. They saved both nerve bundles. 
 
I was unprepared for the pain. I've had two back surgeries and after testimonials about the da vinci, I thought it would be much less than it is.  The morphine helped at the hospital, but certainly had to take percocet for a couple days at home.  Dr. Samadi said things went very well and he was happy with it all. 
 
The catheter thing is just a pain in the butt...not anywhere else, thank god. 
 
My dick certainly doesn't feel any different - so I have to remind myself that it not going to be acting like itself once the catheter comes out.  that is going to be weird- once again, it will have a mind of its own, but not the mind it used to have! 
 
I know the answer to most of it is just time and patience.
 
thanks for all your support. I'm now part of the club.  Probably the only club that would let me join! HAHA
Paul
 
 
 
 
 
DOB 12/08/59
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
The journey has begun!
 


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 1/9/2008 11:49 AM (GMT -7)   
Paul- great to hear that all went well. Just take it easy , don't push the recovery thing too fast. Remeber, that if you have any questions or concerns, we are all here for you. Pete

Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
First Post op PSA - Undetectable
Second Post Op PSA (8/22/07)- Undetectable
ED- start injections 10/06/07
3rd Post op PSA 11/7 - Undetectable
 


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 1/9/2008 12:24 PM (GMT -7)   
Paul, way to go. You’ve made it across that bridge. Sorry to hear of your post-surgery pain. I’ve always wondered why some guys have it and some don’t. I was very fortunate in that I had no bladder spasms, gas pain or bloating, and such overall little discomfort that Tylenol took care of it.
Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 1/9/2008 12:32 PM (GMT -7)   
Good to hear you crossed over.  Recovery and healing is your future now.  Good luck  with it. 

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 1/9/2008 12:57 PM (GMT -7)   
Welcome to the "other side" Paul. Sounds like you had a very successful surgery. Things will get better in the pain department soon...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 1/9/2008 1:07 PM (GMT -7)   

It's terrific to hear that you made it through the surgery and are now in the recovery stage.  Everyone has a little different experience with post-surgical pain (I had an open RRP and experienced very little pain after some moderate discomfort for the first couple of days). 

The catheter is uncomfortable, but it's only in for 10 days to two weeks, and has an important role in ensuring that your sutures hold and that the new connections have enough time to heal.

The important thing is that the cancer has been removed, your nerves were spared as a bonus, and the worst is over.  Please keep us updated as you are able. 

Take care and hang in there...Tim

 


Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 1 of 12 biopsy cores positive
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/9/2008 2:57 PM (GMT -7)   
Paul

Glad to hear you have passed this part o the process with good results, take it easy and just give yourself time to heal. Each day gets a little better and before you know it you will feeling like your old self.
Good luck

Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07 Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test 3-22-07 <.1 Undetectable
2nd Post PSA Blood Test 7/5/07 <.1 Undetectable
3nd Post PSA Blood Test 11-12-07 .2 monitoring
Next Post PSA Blood Test Scheduled for 1-17-08
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 1/9/2008 3:04 PM (GMT -7)   
Paul,

Looks like your in the middle of a good recovery! Like we all say - get your rest and exercise...sounds like opposite advice - but good for you!

All the best to you,
Susan
Husband Diagnosed 11/17/05 Age: 63 PSA: 7.96 No Symptoms
2/09/06: LRP - Post Pathology - Gleason 4+3 Stage T2b NO MX
3 mo. PSA: 11.8 Stage T3a
6 mo. PSA: 18.8 Stage IV Systemic w/ distant lymph node involvement
Start HT - Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 1/9/2008 4:41 PM (GMT -7)   
Yay, Paul! tongue
 
Congratulations!  You are on your way, buddy. 
 
Like others have said, take it easy and do exactly what the doc says.  We're looking forward to a good post-op report when you meet with the doc again.
 
Keep in touch.
 
Kind regards,
 
Barry

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/9/2008 5:00 PM (GMT -7)   

Hey Paul,

Well you are one of the gang now! Sounds like you did great, now its time to start the rehab phase> I didn't notice anyone saying to be really careful about lifting stuff. Even if it doesn't look like alot, don't do it! let someone else get it for you. It's not worth taking a chance of ripping or buklging something in there! Also, you don't know what is going to happen w/ your little friend, he may still have the same ideas he used to! Everyone is different and some guys, well you know, are back in the saddle riding like it was a little bump in the road! You never know, you may be one of those lucky ones. I thought I was, dry as bone as soon as my cath came out and good sex after the six weeks my doc recomended back then. But even if it take a while, the pc is gone and you have a long life ahead of you brother!

Hang in there and keep us updated,

Your friend,

Pete, or is that Re-Pete?   


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 1/9/2008 5:26 PM (GMT -7)   
Hi Paul1959,
 
Welcome to the 'other site'. Glad to hear that you seam to have had a very successful surgery. May you have a speedy and complete recovery.
 
Your fellow club member,
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
Open RP 28 Nov 06
Post op staging T3
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) = 0
 
 
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 1/9/2008 5:38 PM (GMT -7)   
Hi Paul. Glad to have you on the other side. Now take it easy and don't overdo it. Walk when you can but take it easy. Hoping the new year will be better to you that the past year. Now, get well and this all will soon be a distant memory.

Mika

beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 1/9/2008 8:19 PM (GMT -7)   
Paul, welcome to the other side. When I saw my $39,000 hospital bill included $19,000 for drugs, I wanted a refund! $19,000 and I never got a buzz, and always felt like the pain was a 3 out of ten..but it was still much less then when I had my appendix out years ago! Sit back in your recliner and let yourself heal, it just gets better every day from here on out! tongue
Beachbum
 
PSA 10 June 2007
Biopsy July 2, 16 of 16 samples positive
T2C
3+3=6
Di Venci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 65% of prostate had cancer, but NO spread, clean margins
Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
The Lord has truly Blessed me.


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 1/10/2008 4:05 AM (GMT -7)   
Paul,

Good to hear from you!

As for sitting in a chair.  I found the semi-inflated donut cushion available at most drug stores invaluable for the first month or two.

To repeat the chorus line: Walk a little more each day.  Drink a lot of WATER.
Rest between walks.  Your strengths will return slowly but return they will. 

Personally, this surgery had an emotional impact on me unlike several other surgeries.
Take time for joy!  (Abandon despair.)

Your friend,

CCedar
ICTHUS!
2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
Nine month PSA <.008
:)
At 9 months, ED treated with Pump Exercises & 100mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 1/10/2008 11:26 PM (GMT -7)   
Hi Paul1959: Dittos to Cedar's comments. Sitting was a pain in the *** for me and many others here after our surgeries. But day by day, it will get better and before you know it, you'll feel like your old self again.
Hang in there bro!
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 1/13/2008 9:45 PM (GMT -7)   
Paul,
Glad the surgery went as planned! I know things will be better in the pain department soon, just hang in there. Take some substantial time to rest and check in when you feel up to it and let us know how you're doing!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/16/2008 5:13 AM (GMT -7)   
Now, It's really OVER! I had my doctor fax me my pathology report since he was unable to see me when I got my cath out.

Good news.
-10% involvement, Gleason 6 (3+3)
-left and right mid lobes but no other lobes.
-no seminal, lymph glands, perineural, nowhere!
-totally contained!

they got it all. Yahoo! Now we just wait for the PSA's for the next several years to confirm this.
47 at Diagnosis.
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 
 


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 1/16/2008 6:14 AM (GMT -7)   

Paul,

Great news. Welcome to the other side. On now to total recovery. Hoping and praying for your first PSA to be 0.000000000000000000000000000000000000000000000.

Have a great day.

War Eagle (Walt)


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
 
 
"I will persist without exception - I will find a way where there is no way"


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 1/16/2008 6:17 AM (GMT -7)   
Grand news! You're off to a great start.

Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/16/2008 7:34 AM (GMT -7)   

Fantastic News Paul!

2008 is off to a Great Start!  Cancer Free! 

I haven't noticed the term "cured" being used.  How long before someone claims to be a cancer survivor? Randy's doc seemed so positive when telling us the path results, that we want to believe in his experience and knowledgeable remarks "that he'll have to find some other way to die". I realize the next PSA test is necessary to be certain there's no cancer cells lurking around. But how many months or years does one continue to worry?  No doubt we'll probably get the "jitters" again when he takes the PSA test in Feb.  I'm hoping the doc will just call us with the news instead of scheduling an appointment. That would make me more nervous! 

Keeping a positive attitude!

Marie


Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, right nodes taken
01/03/08  Home from the hospital! Let the healing begin!
01/11/08  Cath removed, post-op gleason 3 + 3 = 6, nodes clear
                Margins - capsular invasion but no penetration.  T2C


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/16/2008 7:50 AM (GMT -7)   
Great start to the whole recovery process getting the good patholgy report, here's hoping that the PSA tests of the future are nothing but 0's

Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07 Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test 3-22-07 <.1 Undetectable
2nd Post PSA Blood Test 7/5/07 <.1 Undetectable
3nd Post PSA Blood Test 11-12-07 .2 monitoring
Next Post PSA Blood Test Scheduled for 1-17-08
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 1/16/2008 8:38 AM (GMT -7)   

DesertGal:

I think the standard time line is 5 years cancer free.  I have heard some say you never can consider yourself cured, because of the recurring nature of some cancers, decades later.  But 5 years is the goal my doc said and I am going by.

James C.

DesertGal
Regular Member


Date Joined Dec 2007
Total Posts : 65
   Posted 1/16/2008 11:23 AM (GMT -7)   

Thanks James,

Five years is a long time to worry!  yeah

For now, we're taking one day at a time and concentrating on getting healthy!  And looking forward to lots of 0's!

Thanks,

Marie


Husband 55 years old
No symptoms
PSA taken on routine health exam
06/18/07  PSA 9.2
07/14/07  Put on antibiotics for a month
09/18/07  PSA 8.77
09/18/07  PSA % Free  9.61
10/17/07  Biopsy =  Gleason 3 + 4  (7)
10/17/07  Biopsy 40% Right Side less than 5% Left Side
12/31/07  D Day!  Davinci Surgery Day - Jon Huntsman Cancer Institute
12/31/07  Left side nerves spared, Right side partial, right nodes taken
01/03/08  Home from the hospital! Let the healing begin!
01/11/08  Cath removed, post-op gleason 3 + 3 = 6, nodes clear
                Margins - capsular invasion but no penetration.  T2C

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