catheter removal

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Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/11/2008 5:55 PM (GMT -7)   
Now my next hurdle is the dreaded cath removal. I've read on here that some of you have said that it was simply no big deal. Then I have two friends tell me that it is awful.  So, how bad is it?  For example, when they pulled the jackson-pratt drain out of my side the day after surgery, it was fairly uncomfortable.  It was bizarre to feel this tube deep in my abdomen sucking it's way out my side. It hurt, yes, but was more unsettling than anything. When it was over, the sensation faded in a few minutes.  Would anyone else describe the drain removal along those lines?  So then, is the cath removal easier or harder than the drain removal?
 
Thanks
Paul
DOB 12/08/59
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 1/11/2008 6:55 PM (GMT -7)   
More uncomfortable/painful, but, over just as quickly. Not bad enough to lose any sleep over.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 1/11/2008 7:20 PM (GMT -7)   

Hi. Gordy is right.  Both the drain and the cath just felt unusual and did not hurt me.

 

Mika 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2248
   Posted 1/11/2008 9:03 PM (GMT -7)   
I had little discomfort with either the Jackson-Pratt drain or the catheter removal.  But everyone's different.  The main thing is that it's over quickly. 

Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) 1 of 12 biopsy cores positive
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/11/2008 9:11 PM (GMT -7)   
I had No pain at all. Just a strange feeling for about two seconds.

Wish you well,

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 1/12/2008 10:14 PM (GMT -7)   
I felt no pain at all. Only a quick "jerk" that felt weird more than anything.
Diagnosed: March 25, 2007. Age 49
Biopsy: Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Three tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 1/13/2008 4:55 PM (GMT -7)   
Thinking and waiting to have it out was not woth the reality of the event, turns out it's much ado about nothing!HAppens so fast, you almost miss it, I had NO pain, jsut a strange feeling as it was pulled out, last all of two seconds! Sir back and don't look and think about how glad you will be to become "unpluged"!
Beachbum
 
PSA 10 June 2007
Biopsy July 2, 16 of 16 samples positive
T2C
3+3=6
Di Venci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 65% of prostate had cancer, but NO spread, clean margins
Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
The Lord has truly Blessed me.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/13/2008 7:05 PM (GMT -7)   
thanks for all your replies. I am soooo sick of this thing. It doesn't hurt in the least to have in...just a major pain. today I forgot I had hooked the bag on a knob of a kitchen counter, walked away, the door swung open so hard that stuff inside clattered all over the floor. sigh...there is no dignity! It comes out tomorrow. Apparently, my doc's nurse will fill me with water, have me try to hold it in, as I let the water start to flow, she pulls it out with the water. I would be willing to have the jackson pratt pulled again if it gets rid of this bag!!

bought my pads tonight...the next stage has begun - the damp pants part of the game.
Paul
47 at Diagnosis.
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 
 


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 1/13/2008 9:50 PM (GMT -7)   
For me, the pain of the drain removal was worse than the catheter withdrawal. Mind you, I wouldn't do either one for the fun of it, but like the others have said it's not too bad and over quickly! Don't lose any sleep over it. Good Luck!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/14/2008 5:06 AM (GMT -7)   
about as bad as it gets is goose bumps when you Oh) and shimmy a little. I have had four removed in the last two months having both kidney surgery in November and two prostrate surgeries in the same day in December.

wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/15/2008 8:00 AM (GMT -7)   
How did it go Paul?
12/06/07 DaVinci and LRP


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/15/2008 8:11 AM (GMT -7)   
Hey! They yanked it yesterday! Yahoo! The stuff they do is crazy, I have to say. She had me lay back on the table, with the catheter, filled my bladder with sterile water then drew it out to see if it was clear or not - blood, bloodclots, etc. Then she filled it again, told me to cough three times and pulled it out. It felt weird. I gotta say. A slight stinging, (or someone said an electrical shiver) maybe is all that it was. No where near as bad as the stinging that is felt if soap gets up there! But, no, it doesn't hurt. If someone were distracting me, I probably would not have noticed it at all. In fact, having the catheter get bumped while inside me was worse.

I'm just telling all this so that the next poor sucker who goes through this will have some idea of what it was like.

I think I am doing really well. I went through three pads yesterday, but was dry all night - and even am dry still this morning. BUT I know when the swelling goes down, that's when the waterworks really start, so I'm not to hopeful yet.

Thanks so much all you guys. It is soooooo much better to go through this with your support. Thanks for your patience.
Paul
47 at Diagnosis.
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 
 


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/15/2008 9:09 AM (GMT -7)   
Paul, I told a little white lie on my removal because I didn't want you go uneasy to the doctors office and because 3 of the 4 times my removals didn't hurt at all. But man, this last one, she yanked that thing out like she was trying to crank an old rusty lawnmower. It hurt really bad(For a brief moment) and it still hurts some when I pee after five week sbut not as bad as it did

When the swelling goes down you might not still have a problem but when you go out play it safe because I had my first sneeze yesterday and went oopps!

Randy
12/06/07 DaVinci and LRP


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/15/2008 11:12 AM (GMT -7)   
hahaha Well, Randy, thanks for the lie! From what i can tell, my experience was about normal. So, any guys who have still to go through it...listen to these other guys, they were right. It is not that big a deal and is so short, it is over really fast...like 1-2 secs.
47 at Diagnosis.
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 
 


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/15/2008 11:43 AM (GMT -7)   
Paul you are right for sure it is rare to have a problem. Interesting side note, my wife took one of them out at home(doctor approved) while talking to the nurse over the cell phone.
12/06/07 DaVinci and LRP


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/15/2008 2:31 PM (GMT -7)   
your wife? Wow, that's up there with Home Child Birth!
47 at Diagnosis.
 
1/06 PSA 3.15
1/07 PSA 4.6
10/07 PSA 5.06
Biopsy 3/07 just suspicious
Biopsy 11/07  1 of 12 with 20% involvment
Gleason (3+3)6
T1c
Father died of Pca 4/07 at 86.
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
No visible cancer. Saved both nerve bundles.
 
 


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 1/15/2008 2:45 PM (GMT -7)   
I cannot remember being more nervous. It went perfect. This after kidney stone surgery and before the prostate surgery

Randy
12/06/07 DaVinci and LRP


NewJourney
Regular Member


Date Joined Jun 2007
Total Posts : 30
   Posted 1/15/2008 6:44 PM (GMT -7)   
Tomorrow I go in for the Cystogram. If that goes well the catheter gets removed. This thread gives me a good idea what to expect. Thanks

Age: 53
PSA: 4.8
Stage: T1C
Prostate, right base, core biopsies:
Adenocarcinoma.
Gleason’s grade 3+3=6.
Carcinoma involving two core biopsies and 50% of sampled tissue with a linear measurement ofapproximately 3 mm.
Perineural infiltration present.

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