Artificial Sphicter

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jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 1/13/2008 12:50 PM (GMT -7)   
I am a newbie to this forum and had a sphicter put in me September 10,2007.  On about the middle of December my scrotum was beginning to drain and I went to the urologist to find out the cause and was told I had an absess.  When they operated he said the pump broke and they cleaned it out.  Now he says I need a new pump installed and I have a lot of questions.  I have an appointment with him on Tuesday January15 amd wonder if any of you can help me
Jerry

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/13/2008 1:06 PM (GMT -7)   

tongue  Hi ~ JerryV ,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

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 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

 

The information (link) listed above is to help you get around the forum! 

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          Welcome ~ New Friend from all the members here... on HealingWell.com

 

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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/13/2008 1:19 PM (GMT -7)   

Hey ~ Jerry,

 

We’re glad you found us!  We have several members who are researching the artificial sphincter.  There are a few threads here and Hagrid is a member who has had one for quite a while. 

 

Hagrid's Journey: Life with an Angel! Started by Hagrid

Reason for my continued incontinence: "Stricture" Started by Jefner

Penile implants and artificial sphincter implants   Started by Biff
Incontinence - Artificial Sphincters and Slings  Started by Berb

Keep reaching out and your reaching out will help all of us!  As we walk with you on this path. Stay Close… it’s important.

In New Friendship ~ Lee & Buddy

 

Post not edited ~  signature deleted J

Post Edited (bluebird) : 1/20/2008 3:10:23 PM (GMT-7)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/13/2008 8:06 PM (GMT -7)   
Just curious here. The Dr. I am seeing at the OU Medical Center for my incontenance says he does about 6 AUS implants a year. He also said he probably does more of them than anyone in the state.
My question to all of the that have the AUS or have talked to you Dr. is How many AUS implants does your Dr. do in a year?

Would appreciate any info you may have.
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 1/13/2008 9:26 PM (GMT -7)   

Jerry,

I hope you will stay with us through this problem.  A few of us on the board who are still incontinent past the normal post op time would be very grateful if you continue to post as you learn more about your situation.  You are in a position to help us to understand our real options.  Thank you for your help.  And may you come through this problem with a successful outcome.

Gene


Age: 63
07/05 - Biopsy: Suspicious looking cells. 
12/27/06 - Biopsy
1/24/07 - Dignosed cancer: Gleasn Grade: 3+3=6
02-14-07 Radical Open Nerve-sparing surgery
Pathology Stage of cancer: T2c
4-18-07: First Post-Op psa = 0.011
05/31/07: Cystoscope reveals "Stricture"
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05
8/31/07:  First Bio Feedback session.
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. 
9/26/07 - Started injections 
10/27-07 - Began using clamp at uro's encouragement.
1/6/08 - Still incontinent & impotent... and still "down."   
 
 
 


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 1/14/2008 9:25 AM (GMT -7)   
I want to get info as well as keep you informed as to what is happening in my case.  I did have the artificial sphicter put in and after three months the pump broke.  The urologist wanted to put in a new pump immediately but i did not want that because i wanted more info.  I am going to see doctor tomorrow and ask him some questions.  I would like to see the broken pump and see what the manufacturer has to say about it.  I don't know how many of these unit this dioctor has installed but i am going to ask him.  I don't know where the switches are to turn on and off.  I do have a catheter in my abdomin and want to know if this thing operates properly why the catheter can't be removed.  If i get the proper information i do intend to have it correctd.  I will keep you all posted if you are interested in hearing about it.  By the way i am 88 years young and i suppose many of you wonder how long i want to live but my body is i good shape and i think my mind is OK.  you hav to make that choice.  Please reply
Love and blessings to all of you  .
Jerryv

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/20/2008 3:06 PM (GMT -7)   
tongue  Hey ~ Jerry,

 

  “God Bless You”

 

        It's a little prayer  ~  "God Bless You" ...but it means so much each day,

               It means may angels guard you and guide you on your way.

 

Thank you so much for reaching out to all of us!

 

There are many threads with questions about the AUS.. and very few answers for us!

Thank you ~ thank you ~ thank you for planning to stay close…

 

We may not have answers for you ~ but our gift to you is friendship! yeah

Our thoughts are with you as you continue to search for answers.

Keeping you close.  And sending a special HUG to you!!!!

 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/BluebirdStayClose.jpg

 

In Friendship ~ Lee & Buddy

 

 

Click here for ..>  Abbreviations used in Prostate Cancer lingo! thread started by Tony *TC-LasVegas

 

AUS ~ Artifical Urinary Sphincter


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/22/2008 8:48 PM (GMT -7)   
Jerry, Please keep us informed. I am a Young 44 and may be facing the AUS. I am extremely interested in any information you may share with us.

Thanks, KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 1/22/2008 9:52 PM (GMT -7)   

For Member Information:

 

re: (AUS) Artificial Urinary Sphincter

Information from Ann

 

Jim is a professional individual who is willing to talk with anyone in reference to his procedure and his life with an AUS.  Please contact bluebird for their telephone number

You will need to leave a phone number for him to return your call due to his schedule.  His call back to you is covered in his calling plan (no charge for him)…

 

So ~ please …. Reach out to someone who’s willing to talk with you.

 

Jim’s surgeon:

 

Dr. George D. Webster

Professor of Urologic Surgery in the Department of Surgery

Link:
 

jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 1/25/2008 2:56 PM (GMT -7)   
I did meet with my doctor and he said the pump broke and that's what caused the abcess.  When I was operated for that he cut the tubes leading to pump and closed me up again.  Because there is only one manufacturer of AUS you don't have any choice as to where to go.  I have opted to have another operation on February 4,2008 to replace the whole unit.  He said on of my problems was with the amount of radiation I had my bladder isn't all that strong.  What I now have is a catheter in my belly and that will have to stay there.  The pump on the unit i had never drained my bladder fully and so i don't know if the new on will or not.  If it does not operate fullt to drain my bladder i wll have to use the catheter tube to pee.  I don't like that but i have learned to adjust ot whatever i have left and make the best of it.  I enjoy my life and want to continue until the Lord calls me.  Good luck to all of you.  Please contact me for any info i can give.  I will report again after the next operation.
Jerryv

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/30/2008 8:50 PM (GMT -7)   
Please keep us informed. Good Luck to you.
KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
    Jan. 12th - First visit to Dr. of Traditional Chinese Medicine (Accupuncture) for Incontenance.
   


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 2/11/2008 7:29 AM (GMT -7)   
Hi to all
I had the new sphincter put in last Tuesday and everything went  Was home the next day with some discomfort but not serious.  For those  of you who don't know the last unit i had malfuctioned because the pump became inoperative.  The second operation was less stressful because i knew what was to happen.  I now have to wail 4 to 6 weeks before the unit can be activated.  I have a catheter in my abdomin and have had that in for about for about five months.  Hoping that the new unit will allow me to have cathter removed.  That would be a real blessing.  I am feeling great and and look forward to having things straighten out
Blessings to all
Jerryv

cowboy bob
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 2/14/2008 10:06 PM (GMT -7)   
Jerry- Good luck to you! I am getting an AUS in mid-April (the first, and hopefully the last). I've heard great things about them and can't wait to get it switched on at the end of May.

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 2/15/2008 8:55 PM (GMT -7)   
Hope your on your way now Jerry.

KW
    43
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second opinion Doctor at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 4th, 2008 - Appointment with Original Dr. to discuss options and recomendation for surgical fix for incontinance.
    Feb. 22nd, 2008 - Surgery to install the AdVance Sling.
 
     

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